Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-07-2014, 11:07 AM #11
JulieJem JulieJem is offline
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I was told that I was risking frozen shoulder by using a sling, ie completely immobilizing my shoulder joint. If you are only limiting the arm movements, it doesn't seem like it would risk frozen shoulder. Good luck
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Old 12-08-2014, 09:17 PM #12
Daesin Daesin is offline
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Originally Posted by JulieJem View Post
I was told that I was risking frozen shoulder by using a sling, ie completely immobilizing my shoulder joint. If you are only limiting the arm movements, it doesn't seem like it would risk frozen shoulder. Good luck
Good to know! Doc thought it was frozen once and the mua was not a thrill. I don't ever want to go through that again. My heart goes to those that are frozen.

Having to replace dishes to all plastic. I dropped a pretty ceramic bowl tonight....seems like dishes that are freshly washed or full of food have less resistance to the gravity.
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Old 12-09-2014, 08:01 AM #13
Nellyzen Nellyzen is offline
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It sounds like you are in pretty bad shape. I would not waste any more time on alternative methods and go find a TOS specialist which would be a surgeon. There is a list with the drs for all areas. I wasted a whole year on PT, massage balls, you name...aggravated everything for nothing.

Had surgery on both sides, still recovering but doing much better.
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Old 12-09-2014, 11:03 PM #14
Daesin Daesin is offline
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Sadly, I am at the point of accepting that fate. Hence my original post about experiences with surgery. I have been pouring through any bit of info I can find. The resources/folks on this forum have been quite helpful.
Part of me is still in denial and hopes to wake up feeling great tomorrow. It gets quieter each day though.
it will be nice to be on the other side of the mountain, I can hope at least.
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Old 12-23-2014, 04:55 PM #15
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I can't answer your questions on surgery. I am still undiagnosed.
My new neuro called me the other day: "Good news! EMG not find anything wrong. You must just have tight muscles". Wanted to kill her
I SOOOOO understand the feeling. I am so tried of passing every test, most are painful too. it really is draining. I have a tentative dx of nTos. Ortho wont say for positive as this isn't his area but is sending me to St Louis to a tos specialist. Should only take a few months for insurance approval to get a date set.

Some days aren't as hideous as most. I know that I will pay tonight for the actions I took this afternoon...stretching exercises. I feel so guilty if I don't do them but gosh the karma attached is a bear.

My kids are home for the holidays and its been wonderful and taxing. I am learning a lot of hard lessons. Seems that I might be a bit stubborn and not a quick learner. But the boundaries seem to change daily so its hard to keep up.

We have passed 10 months now. I know that isn't very long to some of you guys but its enough time to grow a human being. I am really scared that this will be forever.

Oh well, Merry Christmas to all and to all a speedy recovery!
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