Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-18-2015, 09:31 PM #7
20YrsTOS 20YrsTOS is offline
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Join Date: Jul 2013
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10 yr Member
20YrsTOS 20YrsTOS is offline
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Join Date: Jul 2013
Posts: 80
10 yr Member
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Quote:
Originally Posted by rich88 View Post
22 years and 3 surgeries!!! God, ur a trooper!

Thanks for the advise. Il be weary of more tests. Luckily iv got a pain specialist and neurologist who both acknowledge the tos diagnosis. It's definatly I time for a vascular surgeon since the symptoms and getting worse- now hand weakness and trouble keeping my arms up.

What do you do for work? I can't see myself being able to work as a geologist again due to the amount of desk work, and the physically demanding environmennt of a minesite.
Thanks for your response. I'm glad u are going to see a Vascular Surgeon. Yes, 22yrs and still dealing with more issues. I haven't been on here for awhile because of the issue I'm having from my 3rd surgery. I have so much to write about it, but don't have time. Just a snip it of what I've been through since this third surgery. The first two surgeries were on my right arm. After those two surgeries I was still have problems. I worked as an accountant, on computer every day. As I was working, I started to have problems on my left side. I'm shortening my story, but a lot has happen. Same symptoms started on my left. As I continued to work, my left side had gotten worse. I went to the doctor and he informed me I had TOS on left side. He stated if I didn't have the surgery a sap, I was on the verge of losing my arm. I kept working about 3 more months. I had the surgery. They removed two scalene muscles and first rib. Well every since this surgery I haven't been able to use the arm period. The arm is of no USE to me!!! My job fired me while I was on STD/ LTD. I was told by doctors I had frozen shoulder, had surgey for that. But I still can't use the arm. No strength, burning, electrical shocks, swelling, and on and on. I can't make a muscle and lift anything. I've been to sooooo many doctors and repeating the same tests, only to be told they believe my Ulnar nerve is damage and still having TOS related issues. Could write more but I'm going to leave it there.

So make sure you ask all the questions. Ask them what kind of TOS u have? If u are having surgery, what are they going to do? Please, please make sure it's a doctor that knows what they are doing. If I can be any help, please keep asking questions. Despite what I'm going through, I know the LORD is still in control and the head of my life. Keep fighting and seeking answers. TOS is a disease that is baffling the medical community. So find the best Vascular Surgeon in your area. Take care and I'm praying for u.
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