Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-12-2007, 12:58 AM #1
Ruperts_mom23 Ruperts_mom23 is offline
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Join Date: Jun 2007
Posts: 5
15 yr Member
Ruperts_mom23 Ruperts_mom23 is offline
New Member
 
Join Date: Jun 2007
Posts: 5
15 yr Member
Confused New and desperate for help

Hello everyone. I'm new to the site and I'm really looking forward to maybe finding some support if nothing else. I'm a young, otherwise healthy mom living with thoracic outlet after a work injury two years ago. It has been a very long exhausting road and I am incredibly frustrated with the little bit of information my doctors can give me. It took eleven months to get a correct diagnosis and I have heard everything from 'its just a pulled muscle' to 'its all in your head'. I have had several x-rays, CAT scans, MRI's, EMG's, and SSEP's, as well as numerous vascular studies on top of a VERY painful myelogram. I have had one nerve block in the c5/c6 space to no avail, and several trigger-point injections in my right shoulder that did not help either. My symptoms have worsened dramatically over the last two years, and I fear living the rest of my life with this condition. My TOS is strictly right-sided and a cervical rib has been ruled out. Currently I have sever pain that radiates down my scapula and around my rib-cage; there is sub-clavicular pain as well as chest-wall pain similar to the feeling of angina. I have right-sided arm pain that seems to start at my armpit and follows the underside of my arm, through my elbow, into my wrist and fingers, primarily my fourth and fifth digits. I have increased sensitivity to cold and experience tingling, numbness, and swelling with any abduction of the arm greater than 30 degrees. To complicate matters, I am expecting my second child in three months, and with the increasing size of my abdomen putting pressure on the brachial plexus, my symptoms seem to be more difficut to control and none of my doctors have ever treated such an advanced stage of this condition in a pregnant patient, so they have been unable to tell me what I might expect in the next few months.
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