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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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10-15-2015, 10:59 PM | #1 | |||
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I live!!
Or at least my body still shambles across the earth. The surgical pain has mostly resolved, unfortunately after that fateful ER visit, pretty much All of the nerve issues returned. So all in all I guess I'm healing up well. It's like I Never had surgery at all. I still don't necessarily think it was a Bad Idea. Just that it hasn't resolved my issue. It made more room for my brachial plexus nerves, removed the crazy extra wide, blade like rib that was mushing them, and cut the extra short, steel cables that was my anterior scalene. The ER visit, and cray as that was, turned up with something interesting too. The CT scan to make sure the sudden pain wasn't from a post surgical blood clot luckily didn't find any blood clots, but it did find a calcified ligament in my neck. The ER staff poo pooed it, but when I got the results it said I had something called Eagle Syndrome. I'd never heard or it! Apparently it's elongated styloid processes, or calcification of the stylohyoid ligament and muscle. It's asymptomatic in most people, but in some people it causes a lot of crazy problems and can irritate the arteries and even cranial nerves. It's notorious for causing issues like gagging, sudden pain when turning your head (!!!), migraines, brain fog, etc. It can also wreak havoc on the Spinal Accessory Nerve, with innervates the Trapezius (Scapula, shoulder elevation, arm abduction), and the Sternocleidomastoid (head tilt and turning, straightening neck)! WHAAAT! It's apparently also very unusual, and unfortunately the Radiologist seems to be the one who was most familiar with it. I don't just have an elongated spike, but the whole stylohyoid muscle has calcified into a spike on my right side. The gagging etc may be separate from my TOS issues, or it may be part of why I can't heal. I'm trying to track down someone who is familiar enough with it to help me. If the TOS fight has been any indication tho.. this could take some time.. Just something to look in to, people with failed surgeries or mysterious symptoms! Maybe there's a spike in your neck. I'm also building up an impressive collection of scholarly articles on how Eagle's syndrome produces a lot of TOS like symptoms, arm and shoulder pain/weakness if anyone is interested! |
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"Thanks for this!" says: | Aqua4fun (11-23-2015) |
10-15-2015, 11:04 PM | #2 | |||
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Jzp119- Positivity, bro.
Akash- They are actually likely 700 centipedes wearing a lab coat and scrubs as a disguise, I'm beginning to suspect. Eight- Torodal was the ONLY thing that calmed the pain in the ER and when I woke up from surgery! I didn't know you could get an Rx for it at home! I tried to get it, but they gave me more oxy's instead. They are basically Ipecac Pills for me. Hope you're starting to feel better and glad you have Some relief |
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10-16-2015, 11:09 AM | #3 | |||
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You can add a post about Eagle Syndrome & any info links in our useful sticky thread, it might be helpful for future members.
Do you think you had that all along , or did it come about after the surgery? I'm surprised the TOS surgeon didn't find it during testing .
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