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Hi everybody. I am new on this forum. I have been reading some peoples posts and i am so sorry to read some of you are going throug so difficult situations, i will include you in my prayers. On the other side, i also find it comforting to hear people are going through similar things i am. I would like to ask you some questions and to know about the evolution of your neuropathy, i am not a native english speaker so sorry if i make any mistakes.
About a year ago I started experiencing weird sensatiosn in my legs, they would go numb, i felt some tingling, i felt something walkimng in my legs, something moving in my legs as if there was a worm sliding through my legs, then i felt contractions, then i would feel extremely tense.... after a month of experiencing this everyday i thought it was not normal and i went to de neurologist. At the begining he thought i was "resteless legs syndrome" but then RLS was ruled out since i can sleep well and have no need to walk or move. Then the doctor had me take all kinds of test until i got a Nerve conduction test and velocity test. The result was a demyliating (don't know if it's the right spelling) polyneuropathy. The doctor said it was a mild one, probably due to a vasculitis. He prescribed corticoids (prednisone) and i have been taking 60 mg a day for three months. I haven't experienced much improvement. I still have the sensations in my legs. I feel muscle contractions, tingling, now i have some fascicullations and my toes move by themselves, sometimes i can feel and see me muscles "jumping". These sensations are not painful but they are terribly irritating, i have had difficulties to concentrate, they make me be in a bad mood, and worried because it's been a year and i haven't gotten rid of these sensations. I was planning on moving to France (I live in Mexico) but i have decided to postpone it because i do not know how this is going to evolve or if this will get worse. Also, i have been a bir depressed because i no longer enjoy life as i used to, i feel scared and fearful thiking this is going to be bothering all my life or it's going to become worse. I have also gotten many side effects from the corticoids (weight gain, moon face, acne, mood changes and terribly hungry). Sometimes i feel desperate, hopeless, angry and deeply upset. I am a student, i need to write many papers and read, i have had a lot of trouble concetrating and getting my work done, because these sensations are always there. I know some people here experience much more painful things. I don't mean to sound insensittive to your situatons, but this situation of mine is really disturbing me and i need to talk about it because my loved ones firstly don't understand what i feel and sometimes i think they think i am exagerating. With my friends i avoid talking about this because i don't want them to get tired of listeting the same things, and i don't want to sound like a baby. I would like to know what you think of my case, if you experiencend something similar and then improved, if you have any recommendations, anything, i am willing to try anything. I have considered hyperbaric medicine, what do you think about this? Is there any medicine that you can recommend? Thank you so mucho for reading me. Monica from Mexico. |
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