Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-07-2016, 02:23 PM #27
Blackstar25 Blackstar25 is offline
Junior Member
 
Join Date: May 2012
Posts: 9
10 yr Member
Blackstar25 Blackstar25 is offline
Junior Member
 
Join Date: May 2012
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by shug2003 View Post
Thompson did my surgery. He was great prior to the surgery. He told me afterwards that I absolutely needed it because of all the scar tissue. Post-op was a different story. You go to the physical therapists for 1 session and they give you a few exercises to do when you go home....that's it. I live in Michigan so I wasn't going to travel to St. Louis for PT sessions. I had post-op imaging done at Mayo clinic 1 and a half years after the surgery and it showed scarring over the brachial plexus nerve roots, trunks, and cords. It showed suprascapular neuropathy. Also, they said I had chronic DVT in my right arm where the surgery was done, and possible arterial occlusive disease at the right radial level. None of my studies before the surgery said I had DVT in my arm so I believe it was caused by the surgery. When I brought this up with Dr. Thompsons office, they stopped answering my calls and emails. Verdella Brink is the secretary....she answered every single email I sent before the surgery. When I brought up the fact that I was still in pain and had a DVT in my arm 2 years post-op....no answer. They pretty much wrote me off.

I think what is really needed if you do have this surgery is someone (manual therapist) who is hands on that will break up some of the scar 4 or so weeks after surgery. Otherwise, you have no idea where the resected scalenes will reattach to. That's what they do, they scar and form onto surrounding tissue. My pec and scalenes are WAY tighter than they were prior to the surgery. My whole chest burns and has allodynia because of the surgery. I was fine right after the procedure, the nurses said I was the best patient they've had post op because I didn't complain about the pain. It was months later where all the issues came up. Thompson did not take the scalenes out all the way either, he resected medial and anterior scalene. He also only partially took out the rib, something I wasn't aware of until after the surgery.
That's really disappointing about Thompson. I'm hoping they could give me advice on conservative treatment and avoid any talk of another procedure.

Your story sounds just like mine minus the DVT. I started having issues about 3 1/2 years post op. If I understand correctly, my surgeon removed part of my anterior and didn't take out all of my middle, I still have my rib. My scalenes are hard as a rock now. What you said about them reattaching, that's what I would love to know. Are they stuck to the BP somewhere else now?

5 months ago I had a neuritis flare up that kept me out of work for 2 months (I've been back for about 2 months, 8 to 5 desk job). What I think is my anterior felt like it was on fire below my clavicle and next to my sternum. This lasted for about 4 to 5 days and was followed by months of pain that felt somewhat like soreness. Burning in my hand during that time too, all in the medial pattern. I'm still feeling some of this pain, my anxiety is through the roof thinking about it happening again.

And BTW, I live in Birmingham. We have one of the best medical systems around (UAB and the Dr. Andrews group) and I have yet to find a PT that has much knowledge of TOS.

Sorry I highjacked your thread jzp119...
Blackstar25 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jzp119 (04-08-2016)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I need some insight...please tnfilmgirl Dentistry & Dental Issues 2 04-25-2015 11:22 AM
looking for insight medicguyette Traumatic Brain Injury and Post Concussion Syndrome 5 04-29-2012 01:36 PM
can someone give me a little insight here please? Louloutinks Peripheral Neuropathy 6 08-27-2011 06:12 AM
Some Insight Family First Traumatic Brain Injury and Post Concussion Syndrome 7 10-15-2008 02:03 PM
Looking for insight EE03 Spinal Disorders & Back Pain 2 05-11-2008 08:57 AM


All times are GMT -5. The time now is 07:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.