[brisco71]

Anyone have an issue with your bra strap hurting your shoulder/collar bone area on the TOS side? I wear mine super loose, and it still drives me crazy.

[elap]

Same problem here. I have bilateral neurogenic TOS, the right side far worse than the left. Not just bra straps, but contact in this general area by any clothing on the right side is extremely bothersome (sometimes painful, other times highly irritating). The area is hypersensitive to any contact or weight. I often have that shoulder free of clothing, which can look silly and doesn't work well with cold New England weather.

Originally Posted by brisco71

Anyone have an issue with your bra strap hurting your shoulder/collar bone area on the TOS side? I wear mine super loose, and it still drives me crazy.

[elap]

Originally Posted by elap

Same problem here. I have bilateral neurogenic TOS, the right side far worse than the left. Not just bra straps, but contact in this general area by any clothing on the right side is extremely bothersome (sometimes painful, other times highly irritating). The area is hypersensitive to any contact or weight. I often have that shoulder free of clothing, which can look silly and doesn't work well with cold New England weather.

continued: I often wear a lidoderm patch on the affected area. Helps a little and any relief is welcome.

[ginnie]

I don't have your condition, but I sure found a comfy loose fitting bra. Try a danskin sports bra, one size up. Very comfortable without any pressure points. ginnie

[Coop42]

I feel sorry for you girls having to wear a bra. Being a guy, I don't have to worry about that, but I cut the sleeves off of most of my shirts because they drive me crazy. Even sleeves on a tee shirt are uncomfortable.

[elap]

Originally Posted by Coop42

I feel sorry for you girls having to wear a bra. Being a guy, I don't have to worry about that, but I cut the sleeves off of most of my shirts because they drive me crazy. Even sleeves on a tee shirt are uncomfortable.

I'm curious if there are others out there - guys too - who have this hypersensitivity to contact and weight as an apparent TOS symptoms (bras aside). For me it's spread to the top/back of both shoulders and back of the neck. When TOS symptoms are bad in general, this symptom gets significantly worse. It will calm down a little, but never goes away. Dr. Donahue says he's seen it before with other TOS patients.

[Coop42]

Originally Posted by elap

I'm curious if there are others out there - guys too - who have this hypersensitivity to contact and weight as an apparent TOS symptoms (bras aside). For me it's spread to the top/back of both shoulders and back of the neck. When TOS symptoms are bad in general, this symptom gets significantly worse. It will calm down a little, but never goes away. Dr. Donahue says he's seen it before with other TOS patients.

Yes, I have that. I can't stand having any weight at all on my shoulders. I keep my clothing as light and loose as possible. I can't tell you how many times someone has messed up my day by coming up and putting a hand on my shoulders. Then when I pull away, they say, "That can't hurt". They have no idea.

[brisco71]

Originally Posted by elap

I'm curious if there are others out there - guys too - who have this hypersensitivity to contact and weight as an apparent TOS symptoms (bras aside). For me it's spread to the top/back of both shoulders and back of the neck. When TOS symptoms are bad in general, this symptom gets significantly worse. It will calm down a little, but never goes away. Dr. Donahue says he's seen it before with other TOS patients.

It's definitely been an issue for me. I haven't carried my own purse in months. Poor hubby

[rbn4jsus]

Ive done it all, therapy, chiro, massage, surgery, and the most relief Ive had is from breast reduction surgery.
http://rtosjourney.blogspot.com/2010...n-surgery.html

[winic1]

I have found that a small piece of that soft, fluffy, microfiber fleece fabric on my shoulder under my clothes makes them much more tolerable.

Can't wear a bra, can't wear a regular t-shirt, have to have a much more open neck. Can't wear even a moderately tight sleeve, have to be completely loose. No straps on my shoulder, no straps around my ribs, either, I got my vtos from a car accident four years ago, broke collarbone and ribs, neither has accepted the touch of most anything ever since. At home, also in the frozen New England area, I wear tank tops with the right shoulder strap hanging around my arm. Recently found cotton shelf-bra tank tops with very soft elastic, bought them a size big so that they don't hurt my ribs. On a good day, get about 6 hours before I can't take it anymore.

Found the soft fuzzy fleece fabric trick when trying to pad the shoulder strap of car seat belts, which hurt like hell, even when there's the padding of a winter jacket between me and the seat belt.

Cut smaller pieces from a supersoft fluffy fleecy blanket throw. Helps with clothing, helps with the weight of winter coats, seat belts, even the pressure of my pillow on my shoulder at night. Looks a little weird if I forget and go out in public with the piece of blanket under my shirt, but it feels so much better.