Thank you for suggestions. She has not done any upper body weight lifting, she has only been working out her legs. I will definitely share the link with her. She is coming home for a week and we plan to spend time reviewing all the info I have been researching and documenting a pain journal to have available to discuss with next surgeon and any future specialists. We will review info on this site as well. She has tried trigger point therapy as well with little success. Shockwave, bladding and tapping seem to provide some relieve, although they are short lived.

I have read about the top rib mobilization recently and will have her talk to her Chrio for sure about it now that you indicate you had success. I have on the list for her to ask about Upper Cervical Chiropractic as well as I read some success stories with it. This is why I am hoping to find a clinic which has chrio, physio, etc. specializing in TOS. Hopefully they would be aware of all the options to try with her. It almost sounds like its trial and error to see what find works for each individual and of course I worry if someone doesn't know what they are doing they could do more damage than good. I don't know if that could have even been the case with the physio, chrio, massage etc. she was doing with the other diagnosis, i.e. if any of the work made her TOS worse.

Because this is not WSIB injury or accident with insurance, there is no income supplement if she is not working, but she does understand she has to reduce the stress on her arm movement and is trying to when she can. HOpefully a week at home will give some relief, but I am sure it will only be temporary. Really hoping to find some relieve with PT/Chrio and Massage if can find the right people.

Do you know if vascular surgeons provide those type of recommendations?

When we saw the 1st surgeon and we asked if PT, Chrio, Massage or Accupuncture would help, he said no, she has to stop doing anything that causes pain. This was very upsetting as even brushing her teeth hurts, so wonders how she is supposed to stop doing everything. We are hoping the next surgeon will provide more hope that some of these services could help.

Glad to hear you are doing well.

Do you get flare ups or times when you overdue it again or are you pretty much back to a normal state of being able to fully utilize your arms and have normal strength?

I just looked up IF Stim to see what it is and realized I read about it as well. Did that help and do you recommend it? Do you know as well if it would be covered under regular perscription appliance benefits?

Many questions, hope you don't mind. Happy to have someone to talk to. Researching TOS has become an obsession for me, trying to find anything to help my daughter.

I had to remove the link you included as it said I couldn't post yet with links.

Hate to say it but surgeons are usually surgical focussed, unless they are TOS specialized and have associated PT clinics or such that they personally recommend..

It is so individual as to what factors might be the reason for each person's TOS..
If you can find a way to track down a top Physical therapist /body worker that really does a complete eval, hands on ful history.. it may take many tries to find a really good one..

You can use the site search for specific symptoms to find past posts on those..
and the sticky threads have lot more info on many aspects of TOS.

Thank you again. What you recommend is exactly what we are looking for and what inspired me to join this support group. I am hoping anyone who had success in Toronto with TOS will reply and advise who they had success with. It is so difficult to know who t trust and who really has experience with TOS without recommendations.

We purchased an intelliskin top today. As my daughters says the most expensive top she has ever purchased and the least appealing. Hoping it gives her some relief. Will let everyone know if it helps her.