Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 08-12-2007, 08:14 PM #1
ladybird1957 ladybird1957 is offline
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Hi I am new to this forum I used be on Brain talk..to get to the point I have been having problems since the ealy 90's.I am a dental hygienist or was for 20+ yrs. I have been disabled since Jan 2004 and am presently on Social Security disability and fight WA State depart of Labor and Industries to reinstate my pay as the cut me of 14 mos.ago because of an IME that was not an honest write up concerning my situation.I have bilat-TOS with bilat-carpule tunnel and ulnar nerve irritation.My TOS is neurogenic however with that and is common I had a vascular workup that shows I have severe compresion of ateries and veins on the left and mod on the right. Bu this does not mean I have vascular tos it does however prove the nerves as well as the blood flow are being compomised.I started having abnormal EMG studies of the muscles in my left hand in 2002 very slight almost insignificant.with in 9 mos it showed in bboth hands. I knowhave atrophy in both my hands. The state won't allow surgery until thee is 50 percent nerve damage and I am told this type of TOS that doesn't happen mean while the pain is severe unless I absolutely do nothing but lay around.But as soon I start doing anything I suffer for it.I have severe headaches 3-4 x a week where I have to take migraine meds for and I almost always know when I am going to have them because my neck is sp tight and painful. I am having a new IME on the 21st as the state are not recognizing the neck pain ans part of this disorder and on the 21st of Sept I have mediation hearing concerning the headaches as the state doesn't recognize those as well. I am trying to get as much documentation to take to bothe appoints concerning neck pain and TOS and Headaches and TOS.If there are any Dental Hygienist out there with this disorder who has documentation of not just TOS butalos neck injuries being associated with our proffesion that I could give to the IME docs t would really be appreciated.I was just notified on Friday this exam is the 21st and that is only a little over a week away.Anyone with TOS in WA State there is agreat doc at Swidish!!In Seattle!!! Thanks good luck to all who suffer with this debilitating disorder.
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Old 08-12-2007, 11:16 PM #2
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Welcome ladybird1957,
I'll post a bump up for your thread.
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Old 08-13-2007, 01:24 PM #3
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Hello Ladybird! Welcome to NeuroTalk!! We are glad that you are here!! This is a wonderful group of wonderful, supportive individuals! I am sure that you will like it here!!! Dorrie
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Old 08-13-2007, 02:35 PM #4
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Hi,

Welcome to this very supportive and amazing group of people. I owe my life to many of the friends I have here. So enjoy the deep friendship offered and kind words of support!

Welcome!!!!
Victoria
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Old 08-14-2007, 07:08 AM #5
DDayMBB DDayMBB is offline
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Hi Ladybird and let me do an most unplesant welcome to you... not that my wish is not cordial nor do I feel I am being unwelcoming to you it is just that I feel sorry that you are here and that is the hurt that brings you about! The group here is so wram invitining, true a family who has its ups and downs and yes we have our spats and it may seem as though the preverbial knife is still fresh in ones back... I consider this area an extended family and hope that for just one moment change does not take place and each person remains free to express their spririt... with that said plase allow me to introduce myself... on the outside and name given at birth is Mark, however a number of years ago I had an entity move into me known as TOS and since this "BASTARD" *please do mind me being frank and speaking with this slight profanity*unpacked his bags and moved in I thought this entity should be give a name so what came about was GOOBER ! On a different note I offer my prayers and thoughts to the miniers and their families!!! Mark~n~Goober
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Old 08-14-2007, 12:36 PM #6
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Here are some of our useful links/threads-

useful sticky - also has links to some of our Polls and links to videos of therapy and & bodywork http://neurotalk.psychcentral.com/showthread.php?t=84

Drs and PT listing by state/country
http://neurotalk.psychcentral.com/showthread.php?t=135
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Old 08-15-2007, 09:02 AM #7
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Welcome LadyBirdI agree with Mark that I am sorry you have to be here but he is right, it is a group of great people. I had surgery 7 years ago and DiMarie was there for me all the time. At the time, we were at a different site and different people were there. I am just back recently. You will get great advice and support. Good luck. Linda
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