Beth, I'm so sorry to hear this.

It just seems so 'experimental'... the reason why I won't consider a SCS implant (yet). I can understand wanting even a partial relief of pain, but to have muscle cut into (implant at hip) and wires inserted that can dislodge, too scary for me. I'd not have the procedure. And not only because of the fear of the big let-down if the procedure didn't work, just the stress of being 'knocked out' after having had so many other procedures. Then the RSD issue... oh my honey, I'd be too scared.

Regarding the adhesions, did you not have an EMG-C8 nerve root test done? I've had 3. Could there be adhesions there from this procedure?

Anne

ps: thanks for the kind words and inquiries on my situation. LTN is a possibiliy. will start a new thrad for that. don't worry all.. it will be rated G.

I wish I had some advice to offer, instead I can only lend support.

I know this is probably a silly question, but is there someone else that you could see for a second opinion??

I think I have told you my hubby has an interthecal pump to manage his radation burn from his cancer treatment. It is very effective, not completely but he was in agony prior, bedridden and miserable. At least now he is mobile and able to get out and about!

They had him barely moving for 1 month post op. to allow the pump to scar in. That was really emphasized!! Also, He could tell once it scarred in. It felt more stable, more secure.

Is there any possibility they would consider that for you?? I myself would consider one ( if I needed that kind of pain management) after seeing how much relief he has had from his.

I hope you will be able to come to a decision soon and be able to get the pain relief you desire and deserve!!

G~

My heart goes out to you with such a huge discision to make.. No one can make such a descision but you.. And I am sure that in your heart you will make the right one whatever the outcome is..
If I had to go thru such a desicive surgery and counting my options and to look down the road into my future.. I would go thru with the surgery and have the Dr do the best he can.. It is always possible that everything will go as planned and if it doesn't and he goes higher it still may help..
I will keep you in my prayers that this will work for you..
Best of luck and keep us posted..
((Gental Hugs))
Dawn