Hi to everyone,

I received this email article about a teen with a SCS in my inbox...not sure I should hide it in this post but we all like success stories.

Most of us want to see RSD & TOS articles out there in the newspapers.
This teen even provided a POWERPOINT PRESENTATION to show her doctor !!!

I'll put it on the RSD forum too, but here b/c it affects Beth's & other's lives on this forum also.
Maybe it should be a separate thread, but it's here till someone decides if it
needs it's own thread. IN CASE the link doesn't work, I included some of the article in here:

http://www.mlive.com/news/aanews/ind...361.xml&coll=2

http://www.mlive.com/news/aanews/ind...361.xml&coll=2

ANN ARBOR NEWS

Treatments at Cleveland Clinic have put disease in remission
Teen RSD patient educates others.

Wednesday, October 04, 2006 BY JO COLLINS MATHIS News Staff Reporter

Life is so good right now for 15-year-old Jordan Keen ...... throw a party..... On tap for the evening's entertainment? The burning of the crutches she no longer needs.

Jordan, of Dexter, was 12 when she twisted her knee while skiing in January 2004. ....the pain never stopped...., her parents took her to one specialist after another, including a surgeon at a children's hospital in Orlando, Fla.

They all said the same thing: There was nothing wrong with her leg. It must be in her mind.

It took months to be admitted to the Cleveland Clinic, but Jordan finally got in nine months ago and was there for six weeks. She underwent physical and drug therapy and psychological counseling to help her deal with the pain. For some patients, that's enough. But what made the difference for Jordan was a spinal stimulator, which sent electrical signals to her spinal column. Those signals blocked the pain signals Jordan's system was receiving.

Jordan is in total remission now, but she has to be careful. To prevent another injury that could lead to a flare-up of RSD, she doesn't run. She wanted to try out for the basketball team but realized ......

An active member of the YMCA in Ann Arbor, she enjoys swimming, ..........High School marching band.

"I feel amazing,'' she said .... "I'm pain-free, going to school like a normal kid.''

Doctors in Cleveland told her she probably had RSD when she was as young as 3.......................when she sprained an ankle and was in so much pain that she resorted to crawling.............

Jordan is so grateful to be pain-free again that she's telling everyone who'll listen about RSD in hopes that others won't have to suffer through what she did for so many painful months.

She's created a PowerPoint slide presentation about RSD, .... she's already shown to one physician.

"The doctors were telling me I was psycho, and I knew I wasn't psycho,'' she said. "I want to teach all doctors that if there's nothing wrong with you orthopedically, it doesn't mean you're fine. There could be the hidden things, like RSD. I want to help educate everybody about it.''

Jordan learned about Rachel Schneemann, a 12-year-old Pittsfield Township resident with a severe case of RSD, ................mother while they were each buying coffee at the hospital.

"I loved meeting Rachel,'' Jordan said. "It was so amazing because..........I wanted to hug her and tell her it was going to be OK.''

Jordan did get to tell Rachel it will be OK. But she, more than anyone, knew this: The hug will have to wait.

Jo Mathis can be reached at jmathis@annarbornews.com or 734-994-6849


Another article on "Living with Pain" was posted in another Michigan newspaper yesterday.