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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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So-Cal get together! Oct 28-Nov4

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Old 10-22-2007, 08:42 PM #41
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Unhappy Bad News
I have already told Johanna but I found out a few days ago that I wont be able to attend. I have to be up north in San Francisco for work for the weekend.

I am so bummed but I know you will all have a great time and I look forward to hearing about it.
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Old 10-23-2007, 10:48 AM #42
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Default shelley there in spirit
Hi Shelley,

Sorry to hear that you will not be able to attend. You will be there in spirit and we will toast to all who are not there!! We will miss your presence as we miss all of you who are here but won't be there!!

love and hugs,
Victoria!
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Old 10-24-2007, 12:24 AM #43
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OK, I sent a test email tonight- if you didn't get it but you are interested in the party let me know your email by PM

Thanks
Johanna
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Old 10-25-2007, 07:04 PM #44
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I sent out directions...so once again if you didn't get them and want to come, please let me know!!!

Looking very forward to seeing you all,
Johanna
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Old 10-25-2007, 09:42 PM #45
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If I was on the west coast I'd be there in a heartbeat!! Hope you all have a wonderful fun meeting!
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Old 10-26-2007, 04:27 AM #46
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I honestly wish everyone could be also IHTOS.

I know everyone there feels the same way, and in fact, that's what OleCyn and her hubby are starting a foundation for, to try to get funds to get us all a national get-together!!! So it may happen yet!!! Wouldn't that be great?!

But like I said before, if anyone can find even one TOSer to connect with in-person, do try. And, God willing, fiance will bring camera / video stuff so hopefully we can get somethings to share with all.
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Old 10-26-2007, 07:37 AM #47
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Everyone have a great time. Would love to see pictures. New Jersey to SoCal woldn't work for me. Have a drink on me! Linda
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Old 10-29-2007, 01:51 PM #48
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Heart Ride coordination help!!!
Hi all, if you would like to come but need a ride,

OR

Can come and give someone else a ride who is close to you...

Could you please PM or email me with your location and how far you can either get on your own (if you need a ride) or how far out of your way you would be willing to drive (if you could offer a ride)??

I know there are lots of folks out there who would like to come but have no good way to get here.

Thanks so much for the help,
Johanna
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Old 10-29-2007, 05:57 PM #49
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Default meeting
Johannakat,

I can come to the meeting if someone will pick me up. I live in Oklahoma City...lol
just kidding but I so very much wish I lived by all you guys.
I am fortunate in that I have one person who knows how bad TOS is, (she has it too), and that is my best friend. We've been in this together now for 4 years.
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Old 10-29-2007, 06:07 PM #50
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Default next INTERNATIONAL meeting....
Hi all,

Tam said national.....but I think I could try to come if there was a meeting....so can we call it INTERNATIONAL?????? Hope so...how about a visit from our down under pals or Japanese or hmmm CANADIAN......or British...
so can we all agree it should be international ? I hope so ...

love and hugs to all,
Victoria
oh and I am REALLY getting excited now.......oh the anticipation....
love V
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