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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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So-Cal get together! Oct 28-Nov4

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Old 11-02-2007, 11:02 PM #61
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I hope everyone that is near can make it to the get together.
Have a great time!
And remember I'll be there in spirit!
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Old 11-02-2007, 11:44 PM #62
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Default Victoria
I LOVE LOVE LOVE LOVE SKEEBAL AND AIR HOCKEY
They are my favorites
I havent played since my injury

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Originally Posted by gibbrn View Post
not much Cyndy, I am in a bit of a flare had fun last night......was at the universal walk and played air hockey.....bad idea......and the skee ball......bad idea.....so couldn't sleep due to pain last night and had to knock myself out with 4mg zanaflex...still feel woozy and out of it...and the pain sucks sooo bad right now...so will be laying low for a bit ....DAMN IT ALL TO HELL

thats pretty much it.....
Thanks for asking Cyndy

take care alll
love and hugs,
Victoria
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Old 11-03-2007, 12:05 AM #63
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Default psychedelic for sure!
Hi guys,

I just thought of this.....is there a way we can have name tags with our name here and our names.....I sort of have some memory issues

Oh and just for the record it is not a good idea to take cesamet and zanaflex....stoned for sure I don't know how MS patients take these drugs together.....I can barely move and my back is on fire and my feet feel like I have restless leg....I cried in my sleep last night.......

I did the starline tour today from Hollywood blvd and the two hour tour...think I saw Lindsey Lohan and her papparazzi crew.....INSANE that was!!!

oh this town you guys@!!!!!!!!

hope that the muscles settle down and I am comfortable tomorrow.
love and hugs to all,
Victoria
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Old 11-03-2007, 10:55 AM #64
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I hope everyone feels okay today for the get together.

See you all later....

Judy
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Old 11-03-2007, 01:09 PM #65
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IS today the day?

Wish I were there but more importantly
Wishing all of you a Joyful Splendid Get Together!
Last edited by fern; 11-03-2007 at 01:34 PM.
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Old 11-03-2007, 01:31 PM #66
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have an awesome time. i can't wait to read all the stories of your get together and hopefully see some pictures!
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Old 11-03-2007, 10:03 PM #67
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Top Row: LAarchitect, Ocgirl, Corine, Dustin, Olecyn
Bottom Row: SoCalShopGirl, Stardust, Gibbrn, Johannakat

Hopefully someone got better pics than these...but here are the ones from my camera. A wonderful time had by all, I think. We truly missed Sea Pines, Shelley, Dawn, and TShadow.

Hope was there and Nicole stopped by but neither made it into the group shot.

I so hope Alison, Dawn, and Tamara are feeling better by now, you three and the hard working Shelley were all truly missed.

I personally enjoyed meeting many I had not seen in person before, and I hope we can do it again sometime soon...!


Johanna
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Last edited by johannakat; 11-04-2007 at 12:08 AM. Reason: added one more pic
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Old 11-03-2007, 10:33 PM #68
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That is soo cool to see you all.
I'll post my pic on this thread too, maybe some of the others of us that couldn't get to the bash will too.

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Old 11-03-2007, 11:52 PM #69
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Default Let Me Be The First To Say
Johanna was the perrrfect hostess!
Cutest home and the bestest kids.
Didnt really meet or talk with the hubby but I hear he's one smart dude.

The whole group was so cool as we shared so much information.
We alsoate and ate and ate.
As you can tell I'm the porky one.
Don't ever let anyone tell you to eat whatever you want and as much as you can during chemo after you have already gain 50lbs after stopping work due to the pain!

It was calm, low key and very California casual day, right?
Just perfect for us pain in the a**es.
And the guys had a good time too.

Everyone did a FAB job bringing so much food to share not to mention their time and hearts.
Heart to Heart Dustin

The honorary Victoria is a kick in the pants.
She is smart, pretty and so fun!
Her man is one cool doc too!

Steve & Stardust...
THANK YOU for bringing a car load of TOS patients who needed help getting there.
O yeah, and THANKS for bringing yourselves TOO.

Love ya guys!!
XXOO
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Old 11-04-2007, 12:25 AM #70
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I'm glad ya'll had a good time!! Wish I could have been there.....
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