Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-23-2007, 11:20 PM #21
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Default Geeze Louize

I MISS SOMETHING, HERE?
Its a REALISTIC, PROTECTIVE Thread ON safety for us, right?
We are ALL substance "users" at different levels, right?
We have chronic pain.

DI,
THANKS, girlfriend for sharing with us your expertise.
I wonder at times when I refill my film bottle and put it in the car.
My daughter said I shouldnt carry it with me.
Now I have a "Diaper Bag" filled with ALL my needs.
Me going in the car is like packing up a baby, a toddler.
You have to be ready for every circumstance with a neurological chronic pain condition.

XXOO
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Old 09-23-2007, 11:51 PM #22
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Quote:
Originally Posted by jo55 View Post
On the COPS TV show they had a girl carrying her meds loose in her purse and they said it was illegal - but I don't recall the state that episode was filmed in. {Vicodin}
I would use an empty container and out a day dose in it. Never carry all the meds. What if they were lost, stolen, misplaced. Another thought....When we pick up our meds there is a document attached tht has the medicaiton, dose and any side effects. If I carry my in case meds, It would be a help to just have the paper of those meds with me.Maybe photocopy the ones I carry onto one page and take that. I have a med book, like a fold calendar book, with all the doctos and meds I refer to for doc visits. I have my eye glass perscription in it, and could keep the pharmacy paper in it too.

After all, even illegal users could put illegal drugs in an antibiotic or allergy container...that does not make it legal!

I am guilty of putting the three meds together in one container. If it is an issue the reg. bottles or pharmacy can give proper information. But, I donl;t take these meds all the time. They are rescue meds I may need if flare happens out of the home.

The client we had with the vicodin lose; he is a PA in a specialty heart clinic. I wonder first he should not have brought them into the center, leave them in the car. What if one fell and a child found it. ALso, it raised my awareness, what is his condition to need Vicodin, and can he work a high risk unit?

That seems dangerous?
make me go ummm.
di
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Old 09-24-2007, 12:02 AM #23
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That's a good point - save the med container and use it for a smaller emergency dose. So not to be carrying around large amounts of any med.
And have copy of rx list and maybe pharmacy # too so if any questions it can be verified quickly.

It would be a hassle carrying separate regular sized containers for each med - is there any mini med containers- that the pharmacy can give for things like that?
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Old 09-24-2007, 01:04 AM #24
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Heart med dosettes

Hi guys,

I am guilty of the pill in the purse as I said earlier.....I think..... but what I did is put all my meds out in a dosette for the week for my four times a day. I always put my emergency meds in my purse as well so if I go out I have my regular meds as well as my emergency meds for well emergencies.....

I am thinking now I will keep my med papers from the pharmacy in my car or my purse so that I have them there if I need them. I am unsure of canada's laws on this but I think that I will look into it.

I am really glad this topic has been brought up to discuss we are such a good group of contributers that I feel with each and every addition to all the posts I learn more and want to help more. I have never felt more support from anywhere than from here...ok the waterworks are coming on now.....sorry guys just want to let ya'll know how much I appreciate all of you. No exceptions. As Tam says she is here to help others and no malice or contempt is held in anything posted. I feel we are all this way. It is so hard to communicate in this form so as Tam says again, things can be misinterpreted. I am also guilty. Again the meds effect my judgement here as well as behind the wheel!!!!

Much love to you all and have a wonderful night or Monday if you read this tomorrow...

huge hugs and lots of love,
Victoria
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Old 09-24-2007, 02:21 AM #25
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Thank you Victoria.

QUESTION:

Is there a bracelet we can wear, if we were unconscious, that could list our meds, or direct the person to call our med doc to get what we're on?


I have worried that there would be no way anyone would know my meds unless I'm there to list them.

I was on 9 and sometimes more meds. I have reduced myself to all but three now. The oxy, percocet and topomax are the last. I think I'd like to switch to Opana, Neurontin and that's it. (Of course, diabetic and thyroid are still a must.)

I think very much we should have a list of meds / doseage in our wallet, and in our glove compartment, etc.

I do love you guys, and the people who may have felt that my post was about them - you know who you are - I have such love and admiration for you I'd never in a million years think that you abused your driving privileges. I've never heard / seen "those" who were hurt in anything less than excellent driving. And I mean that.

God bless.
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Old 09-24-2007, 05:36 AM #26
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Default I hope I too did not scare anyone

Not my intention, only my experience...Im not offended in the least Tam...I know from my experience and knowing the small town biggots in this town ..I have to be careful for my kids sake...
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Old 09-24-2007, 06:29 AM #27
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Default Ideas

Di, Vic, Gin, Tam, etc...

Its 4am and not been able to sleep for days
Ok I have ideas:
In my emergency diaper bag I'll add:
1. My Medical Hx paper work
which contains...hx of course, docs, meds & emergency call #'s
2. Copy the med bottle script's
3. TOS info doc which is 15 pages long with names of docs, attorney, meds and, TOS hx

Anything else I'm forgetting?
Gotta be prepared as always
XXOO
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Old 09-24-2007, 11:25 AM #28
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oh my gosh cyn - you have a book to carry around

A bracelet or something actually on your person might be a good idea- at the very least something that says "chronic pain patient" or something basic that ER, police, firemen or paramedics, etc will understand.

Has anyone seen anything like that? {I'll do a search too}

Ok adding links-
http://www.americanmedical-id.com/
http://www.n-styleid.com/
http://www.medicid.com/
http://www.medicalidalertbracelet.com/

full googled listing-
http://www.google.com/search?hl=en&c...tbracelet.com/
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Old 09-24-2007, 11:28 AM #29
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Help Medic Alert Bracelet

yes you can get a medic alert bracelet...just like many diabetics do..


http://www.medicalert.com/home/Homegradient.aspx

they keep continuosly updateable medical records.
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Old 09-24-2007, 01:34 PM #30
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Default medic alert

This is the best option.
When called they will list all your issues and problems all your meds and they will call your personal contact you list in your file.
Marc is diabetic and he has one and it even lists that he has contacts as well.

It is a great tool and perhaps I should look at getting one as well. I had not even thought of it. Their rates are very reasonable. If we have one and are pulled over then the cops will see this and know we have issues, perhaps they could be more understanding knowing we have chronic pain and TOS.

I hope this is a suitable option for us!!!

Take care guys,
love and hugs,
Victoria
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