Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-28-2007, 08:33 AM #1
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Default I am so confused and TIRED!

Hi all

I am back - been a while since I've been on here. Sorry I've been away so long but I've been dealing with so many things. I can't sit at a computer for more than 2 minutes. I now have a laptop to use so I can sit on the couch and type for a little bit. It seems to work.

I have been going through Hell! It's now been almost a year of chronic PAIN and not making ANY PROGRESS! I have been seeing a chirpractor who said he "can fix me" I was sent to him by my w/c attorney. Well, going to him 3x a week and he's doing NOTHING for me! I'm worse than I was before I went.

I don't know how much more of this pain I can take. I'm broke, upset, frustrated...you name it..it's me.

I finally went another step and looked for help in the city. I went to Thomas Jefferson Hospital for HELP! I am now under the care of SEVERAL Doctor's who have been running a battery of tests. I have been having problems with dizziness, nausea, balance, hearing and of course the neck pain. Also, since the chiropractor has been treating me ...I have back pain all the way down into my lower spine.

I was sent for new MRI's. These show problems in my whole spine. multilevel degenerative problems, narrowing, straightening of the lordosis, tear in the annular (in Lumbar spine) which I wonder if it was caused my the chiropractor twisting me (that caused shooting pain up my spine). I have disc problems all over..diagnosis spondylosis. ok, that's that part..so now what caused that? posture? or is this something else? My mom has degenerative disc disease and rheumatoid arthritis! I'm only 35 though! I just don't know now what's going on. My whole back hurts! my neck and arm is killing me.

Ok, now to the ENT..I have hearing loss in both ears, vertigo and major balance issues which were shown on the balance testing. Now he wants to try vestibular rehab! ACK! But..problem...my neck. He feels this might all be caused from the neck problem but doesn't know for sure.

I have so many things going on. What is causing what? I don't know why my spine is a mess. My hand still is COLD, fingers turn color, have no strength..it's a mess. I believe I have TOS but some Dr's don't agree. They look at my spine and think it's the problem.

Now, did the chiropractor make things worse? Should I keep going to him? I don't know what to do!

I am going to see a vascular surgeon on Friday. I have a neurologist saying I don't have TOS but yet all the other doctor's say I do but nobody has ruled out anything else. I am so dam frustrated!

When I go to the vascular surgeon - what questions should I ask? what should I look for in this Dr? What if he says it's not TOS! Where is all this neck, shoulder and arm pain coming from? Where do I go?

I am sorry for this long message but I need help and don't know what direction I'm going. I was told I shouldn't drive, I'm dizzt a lot and don't feel well.

Also, I had surgery a couple weeks ago to remove my right ovary. I knew after my hysterectomy 3 years ago...something wasn't right there either. I was in excruciating pain and bloated. My right ovary was full of endometriosis and I also had major adhesions in my abdomen. They were pulling on my intestines and other organs. I was a real mess and it was a good thing I got to a Dr who could do surgery right away.

My primary Dr is clueless and doesn't even read reports of anything. She asked me why I was going to the city and she can't interpret their reports.."too complicated"

Is it just me or what? Does anyone else have my kinda luck!

I hope everyone had a nice Thanksgiving and I hope to hear from you! I think I'm skipping the Holiday's this year!

Take care.

__________________
momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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