Yes, that is my question too. How reliable is this??? I found the article on medline too( i think it was medline) but it is rather old, and it seems,there is no following up on this. But i think it is worth researching on, and if we are several doing that ,perhaps we come to something we can use???
I would not take this to my doc either, but looking for confirmation of some kind. I have found out, that this is a life lasting condition, and it is hard work to find out how to help one self, so everything takes its time.But as long i am doing something to solve my problems, i can live with things. In my case, it is only my own research i have got any help from, and i have succeded to a certain lewel. Had i done nothing, i would be lying in bed now, instead of the fullfilling life i have now, in spite of some few symptoms, i hope will not get much worse.

NEVER GIVE UP!!!

I followed the pub med link near the top and looked at the related articles link to find more-

http://www.ncbi.nlm.nih.gov/sites/en...ractPlusDrugs1

I've got a whole host of probs in addition to TOS including the throat clearing, hypermobility (which is now affecting various joints), cervical disc and joint disease, fibromyalsia (though not severe), shoulder blade (knifelike) pain, muscle spasms in the upper back, shoulder arm and hand pains, and a lot of head and ear stuff--fullness in the face and jaw area, pain in the jaw, pain that radiates down from the ear, very stuffy ears, extreme pain during and after flying (enough that i hardly ever fly and gave up any multiple flights per day), and plenty of tinnitus.

but for me i found i have a CSF leak that goes into my ear. i'm planning on having that repaired very soon. i was hoping the surgery would clear up many of my ear symptoms but i was told that they are likely to be unrelated. i would like to learn how the ear symptoms are related to TOS before having the surgery.

I also have gum problems. I was told that they were possibly caused from taking so much Neuronitn for so long but I realize that the nerves might be affected from the TOS. Anybody else have gum probs?

The neurologist I saw last week tried to tell me I have carpal tunnel and also elbow tunnel and shoulder probs in addition to or instead of TOS but he isn't very knowledgable about TOS. I'm afraid my list could go on if I am to include everything. I have a real propensity to develop RSIs from doing just about any activity--but I now think that that is due to the hypermobility. My recent PT told me that she believes that the hypermobility helped lead to all of my problems-from neck to TOS and all extremity probs.

**Administrative edit**


Of more than 1,300 patients, some h111111111111111111ave undergone up to 8 different surgical procedures in each operation for a total of 3.800 procedures. THIS ARTICLE HAS BEEN TOTALLY CHANGED AND GOOFED WITH TO PROVE A POINT THAT THESE ARTICLES AND THEIR INFORMATION CAN BE COMPROMISED AND THIS ARTICLE'S INFORMATION IS FALSE, OK? DON'T USE THIS ARTICLE. SORRY IT WAS USED FOR A "FOR INSTANCE" - AGAIN, DON'T USE THIS ARTICLE.

So here I changed a BUNCH of information about the article and reposted it, so that's what I mean, how do we authenticate all aspects of the article -

that it is accurately reproduced on the Net
that the information is correct or the findings were done in a scientific manner

I don't know how to take an article like this and authenticate it and understand its findings or figure out if it is relied upon and agreed upon by other specialists in the field.

Does anyone know how to do all of that? I mean, where did this article come from so that I can confirm all aspects of what was retyped on this Web address?

(And I'm not saying I don't believe it or am accusing anyone of playing with it, I'm just asking how does one properly authenticate and interpret it.)

"The benefit of this surgical technique manifests immediately because of the disappearance of the vascular and neurological compression produced by the anterior scalene muscles at C6-C7 and by the sternocleidomastoideo muscles at the entrance of the brain where the Atlas is situated. This has been demonstrated in patients with CTOS, Symptomatic Parkinson's, Functional Alzheimer, Early Symptomatic Parkinson's, psychological disturbances by hypoxia, Epilepsy, multiple Sclerosis, hemodynamic Parkinsonism and threat of gangrene of the upper limbs."

Tam, are you saying you have CTOS? Is this in addition to or diff from regular TOS? The surgery sounds very positive but I didn't understand the MickeyMouse & DDuck refs.

I understand your point, but would like to point out that, if posting remains within the guidelines for NT, this really wouldn't be an issue.

Per NT guidelines and DocJohn's post here: http://neurotalk.psychcentral.com/thread37384.html

posts must contain only a paragraph or snippet of information then the link to the original article. This way members know that what they're reading is exact or "authentic" from the source.

So, to comply with copyright laws, as well as NT guidelines, posts such as the example removed (wherein an entire article seemed to be pasted then altered, without a link), shouldn't be an issue here.

This is how we try to keep accurate information here at this site.

However, to authenticate what we're reading from the source, I would certainly look for valid references posted to know where they've come up with their information.

I hope that helps a bit.

Thanks!

KD

Perhaps it is my poor english skills, but i dont quite understand, what is the issue here. There has been found a link on the net, and the question has been : Is this article found on the net reliable? If we use all we find here as the whole thruth (spelling????) we will be dissapointet. It can, if we are lucky be used for further investigation.
Dont Know what the fuss about changing anything comes from? Who changed what?and when? and where have been an administrative edit?

Here are some Pub Med links for CTOS
(Cerebellar Thoracic Outlet Syndrome)
or Cerebral Thoracic Neurovascular Syndrome

be sure to explore the related articles also

http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/2...ubmed_RVDocSum


The geocities site is one where anyone can make a site and post things anyway they want, it may be copied exactly, or there may have been changes made, that's why I posted the link to the PubMed site also -for the original articles there.

Thank you all for helping me with this - I actually got so tired that I feel asleep at the computer while you all kept working. What I have highlighted in RED is EXACTLY what I was trying to say, actually using legal speech and Jo has done it so much better.

Thank you SO MUCH Jo.

Milou - I thank you for your article. But your article is just a starting off point where we must then do our BIG work of making sure that the article has been written word for word as the authoring doctors wanted, and concluded in their opinions, and, then, we have to take another step to see if any senior doctors - or doctors whom we are following their career and believe they are on the rigth step, as using this article and agreeing with it in whole or in part, IF we ever wanted to use it in any research or use other than just enjoying reading it.

and I do thank ou so much Milou for talking to me about it, and I didn't mean it to run off to this big tangent...I'am assuming you're having to understand my strange English - let's just say I often have "daydreams" about "what if" and then I go ahead and ask a lot of questions that many TOSers here at the Board probably go..."here she goes again..." Oh no! (hahaha)

It comes from my background in research I am sure.

I will let everyone know how my new testing comes along and if the doctors do find out if I have any addtional neurological diseases to my TOS - type problems already noted. (RSD, fibromyalgia (seems in remission), bladder and kidney (just starting up again), face, molar, ear pains, (in very bad situation right now), head pain very bad right now....