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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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02-07-2008, 11:41 AM | #21 | ||
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In Remembrance
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Fern and Milou - what we were doing as an experiment was to take one of our articles that we had on the Web and obviously mess them up (and then we took them off of here very quickly so that people would not rely upon them or violate the terms here) and then ask, how would someone really know if they had gotten a messed up version? I think in talking it all out, that research, as Jo's thread suggested, would be best. I, personally, see what doctor wrote the article himself, (or herself), and I call him and talk to him (sometimes they will talk for hours about TOS) and I have gotten so much information that way, and what I should do about my treatment. (Also, that was before my surgery, so there was a lot of talk about whether they would have the surgery themselves.) So this was sort of an off-hand question that seemed to get bigger as I asked myself about it. Last edited by tshadow; 02-08-2008 at 08:17 AM. Reason: We joked on an article to see if anyone would notice as an argument for being careful about authenticating articles |
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02-07-2008, 03:31 PM | #22 | ||
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Junior Member
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It sounds reasonable. I do not think we can use these articles to exactly find a name for our symptoms, but to get an understanding ,how things can be connected. Dont know if you have read my story under the thread "symptoms of TOS" i think it is. But I have had many neurological symptoms (and not only in upper part of body), and most of them are gone after surgery. That makes one think that this is not as simple as some would say. Only reason i am researching again is, that some symptoms get worse again, and i worry about that. The more i know, the better treament i hope to get, if i get the need again. How to use the knowledge ? That depends of the situation, the patient and the doctor. Let me hear if you come any further in research - i will do the same.Though, I have difficulty to belive, someone would use their time to fake such articles. For what reason??
But that dosnt mean other doctors believe or agree. |
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02-07-2008, 08:59 PM | #23 | ||
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In Remembrance
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Milou, I will read your story you have posted. I look forward to getting to know you better as we progress. Also note that for some reason last night, my fiance thought it would be funny to change some of my posts just a little to make me "not to serious" as he put it...in my opinion, it was not funny at all, and I like funny pranks, but I am going to go through and fix the unfunny pranks now...(as if I had nothing better to do while in pain but to fix bad pranks. So sorry!!!
Last edited by tshadow; 02-08-2008 at 08:14 AM. |
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02-09-2008, 06:40 AM | #24 | ||
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02-09-2008, 06:42 AM | #25 | ||
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Oh forgot: My post is not on the TOS symptoms thread but the "Questions for TOS"
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02-09-2008, 07:35 AM | #26 | ||
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Have you seen a cardiac surgeon ?? to make sure, you do not have vascular Tos. As far as I know the ear symptoms could stem from compression of the vertebral artery. I had lots of neurological symptoms before my surgery (and seen lots of neuros, who found nothing in spite of severe vascular tos on both sides) . I was only seen by a cardiac for the TOS. He dit not go in to the neorological things but emphasised that of cource there were nerve impingment, when there were vascular. Sounds reasonable that hypermobility could course our problems in the first place, but not much research on that from what i have seen. Ps. I often have pain from the "neck" of my tooth, but have never had the thought, this could be connected too. If you have more "odd" symptoms , would you please tell about them.??? My intention is to list the results when there are more replies, so we could all get a broader wiew on this. Anyone else who have symptoms or conditions that is not considered of your doc to have connection to your TOS? I myself will add the symptoms i have not mentioned yet, those i had before my surgery. I just need a few days to get the time doing it. |
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02-10-2008, 11:15 PM | #27 | ||
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02-10-2008, 11:35 PM | #28 | |||
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Community Support Team
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Take a look at this Triggerpoint chart - find where your pain or symptoms are and then click to read more info and see pictures and also self care that you can do to see if it helps.
http://www.pressurepointer.com/pain_reference_chart.htm Ear & Jaw pain is in the middle of the right hand column you would then click on the Trapezius or SCM to see more info about those.
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"Thanks for this!" says: | trixlynn (02-11-2008) |
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