Yes, this is what I was thinking, too.

You and Jo mentioned the MRI and I just have to work up the courage to actually ask about that. I seem to have a problem asking docs to run specific tests. My PCP did have X-Rays taken and all he said it showed was arthritis in my neck.

I just had an upsetting phone call from the doctor's office. I had left a message for the doc to call me back and a nurse called back instead and she basically left me with the fact that the NCV didn't show anything that would affect my bicep / shoulder so there is nothing they can do. I feel so blown off. I guess I really do have to keep the neuro appt now because I don't think I'm going to get anywhere with that office.

Keep the faith Holly.

I had an Mri that showed minimal disc bulge and x-rays really were unremarkable. EMG showed something moderate which is why the doc questioned the X-ray and sent me back to do x-rays with my neck flexed in different directions. And bingo. But it was process of elimination and I had to keep at em.

Dont feel blown off they are only reacting to what they can see on the test in front of them. They are not always intuitive which is why its a partnership between patient and doc.

Keep the neuro appt and lets make a short list of what you need to tell him. I often only go in with a list no longer than 5 things or I lose his attention. I take the emotion out of it and appeal to his logic.

Holly up at the top of the TOS forum we have a list of docs that are experienced. Maybe there is someone in your area.