Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-03-2008, 01:43 PM #41
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Just got an infra red lamp - seems to be doing the trick nicely as the days and nights get colder......it cost £50 ($75?) but is worth the cash.

Im considering infra red sauna too - u can choose different colour therapies to accompany each treatment to address different issues (pain, stress etc)

worth a try right?
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Old 11-03-2008, 07:39 PM #42
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Quote:
Originally Posted by TraceyW View Post
Just got an infra red lamp - seems to be doing the trick nicely as the days and nights get colder......it cost £50 ($75?) but is worth the cash.

Im considering infra red sauna too - u can choose different colour therapies to accompany each treatment to address different issues (pain, stress etc)

worth a try right?
x
Keep us posted on it ok Tracey?
*fingers crossed*
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Old 11-04-2008, 12:29 PM #43
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A comment on infrared light:

Infrared lasers have been approve by the FDA to treat carpal tunnel syndrome and have been shown in studies to help TOS. The lasers are just a special kind of diode and aren't that expensive. I have seen a number of companies sell lamps with them.

The only problem is that often the consumer catalogs don't tell you how "strong" the light is (technically the flux of light). The laser light has been shown to have significant pain relieving properties above a certain dose of light and no effect below that dose.

in some states, you can get this treatment covered by worker's comp because it has been shown to be cheaper than carpral tunnel surgery.
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Old 11-04-2008, 12:43 PM #44
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I have links on lasers & infrared light in post # 1 in the stickys.
here- there might be newer info out there - I haven't searched on it for a year or so.

Laser/ Infrared/ far infrared info
http://laser.nu/
http://www.purehealthsystems.com/infrared.html
http://www.purehealthsystems.com/mus...in-relief.html
http://www.toolsforwellness.com/far-infrared.html

It's interesting to read about the differences between Infrared{near/far}, low level laser/cold laser and LED light therapy.
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Old 11-12-2008, 06:45 PM #45
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Love this thread...
infa~red, gotta try it and lookig forward to doing hyperbaraic chamber soon.

I have to tell everyone that the BOTOX helped. It's done every 6 months & Dr.J has patients who get it every 6 months for the last 10 years. I'm just scared of the botox medication itself. I guess Medicare pays for it now. It's in their book of covered medical necessities for neurological conditions my Mom's friend said. Another year of waiting to get SDI. 10 months to process appeal, 10 months to get a trial date. Geeze. Waiting on my retirement disability to take effect since June. One legal issue down 2 to go.

My sister n law has an anethesiologist who lives up by her on Point Loma, San Diego. He does this for injured military men & women & they get so much relief. Isn't that FABulous veterans get BOTOX to help with pain & muscle spasms?

Mine lasted up until a couple of weeks ago. Had it August 6th. The severe burning & pains is returning steadfast. Dr. J is going to do it bilaterally next time instead of just the baadass right side. Loaded up on Lidoderm patches more & more.

Still use gentle stretches & breathing, stationary bike, guided imagery, hypnosis & OPANA IR & OPANA ER, diazapam & anything I can get my hands on when I have a flare.


Excited to see everyone Sunday! Wish we could ALL get-together. Can you just imagine the smiles & happy, happy, joy, joy faces & hearts meeting everyone in person?
Cyndy
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Old 11-12-2008, 06:53 PM #46
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Victoria,
Your website is so incredibly coool! You are so creative & the cards you make are FABulous!

Will you show me some technically techniques to help me get started when you are here? I'm so **** technically. Basics to get me by.
Cyn


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Hi,

Here is a link for buckwheat pillows better than the sobakowa pillow as it has no chemicals on it just the husks. The lady is great I actually met her at a hospital in Ottawa Canada when she was selling them there. her shipping rates are reasonable and I am sure if you said you were on disability or told her of your Tos then you may get a discount....may......it is always worth a try!!!!!!!!!!!!!!!!!!!!!!!!!!!!! But I don't think she inflates her prices.
she actually makes the pillows at a shop in her backyard at home. But it got so big she had to get a wherehouse and work there now!!

http://www.perfectpillow.com/buckwheat.htm

best of luck with it,
love and hugs,
Victoria
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Old 11-12-2008, 06:58 PM #47
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Thursday,
oooo good one.
My problem is turning pages too. My nerves burn like they are on fire.
Cyndy

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I'm in love this week with my new book clip!!!!!
I got it at The Container Store and is called The Original Book Magic- Book Clip & Stand. Its super simple and without the bulk of other book stands. Its like a mutant paper clip that holds down the pages at the spine just to give u an idea of how it works.
I found them online by googling book magic clip and found this site: http://www.ezbookclip.com/index.htm (the prices and checkout page are here)
My thumbs and neck are happy and I can take this anywhere! I give this my full endorsement!!!
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Old 11-12-2008, 07:01 PM #48
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If you wanna bring anything, just bring ANYTHING CHOCOLATE! Otherwise I will have it all.

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Please let ujs kno if there is anyh non-food item to bring, since we're coming from the desert, andit's hotter than hades here.

Tam has lived now for one year on the top of the moon,sweating well.
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Old 11-13-2008, 06:13 PM #49
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Today I, got a different puppy after my recent puppies passing (she was 15 and lived wwll annd gave us great joy) The house just didnot seem right so right up to the SPCA (please if you are thing of getting an animal rescue one) and Daisy Chose us with those eyes a little bark, took her out side she did her duty! If you double click on my 3rd pic yoy will notice how red ,swoellen and angry my left hand Looks oh heck double click on all to to see my Girl Daisy>>TO A GOOD DAY FREE OF PAIN !!!
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Our TOS Tips - What helps you to be comfortable?-daisy-3-jpg   Our TOS Tips - What helps you to be comfortable?-daisy-5-jpg   Our TOS Tips - What helps you to be comfortable?-daisy-6-jpg  
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Old 11-13-2008, 10:12 PM #50
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I need to look into the laser/infrared....sounds nice!!

Cyn- i'm glad that the Botox helped you! That, I think, has been a lifesaver for me. Thinking about it, I haven't had to increase my meds since we started botox about 14-15 months ago.

I also use the breathing techniques my wife and I learned in the Bradley Method (childbirth) class 2yrs ago to help me relax.... it helps pretty much anytime/anywhere.

Knock wood, I also get some relief from nerve blocks. I think the block my PM does is an axillary brachial plexus block. no anastesia, just an injection on the inside of my arm up near my armpit/shoulder.
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