IS THIS A SILLY QUESTION? ,

After being told 5 years ago post surgery with symptoms returning within 2 months I was told:
1. "Give the surgery time" by the surgeon.
2. There was nothing my Neurologist said he could do for me except for trigger injections & anti-seizure medications.

I freaked & just knew there had to be something that could be done.
Saw a commercial on TV for webmd.
Immediately went on-line, started clicking links & happened upon braintalk now NeuroTalk.

O MY GOSH - I was NOT alone. There were real people, real patients out there that had the same condition, same symptoms, same issues as I. It wasn't in my head, TOS was for real.

Words cannot express how happy I was to have found this forum!
It has been my life line!
Met some of my best friends in person here in So Cal & some really cool pen pals here.
I have found my specialist(s) from patient's here: Dr. Collins, Dr. Edgelow, Dr. Ellis, Dr. Agnew, Dr. Jordan, Dr. Gelabert...
I have received valuable personal help from W/C - therapy

And you know what Jo55, you do a darn good job as a insightful & educated moderator. I give you props!

HOW DID YOU FIND NT?

I was told by my chiropractor that he thought that I had TOS. I had no idea what that was. I was "lucky", this was only 3 -4 weeks after my accident.
I came home, went online and looked it up. I found a lot of useless info, and then I found Braintalk. When it went down I came over to Nuerotalk, and have been so grateful.
It is wonderful to have other people who know what I am going through.
Trix

Feeling very depressed about my symptoms, knowing i have TOS not yet diagnosed i decided to see if there was anyone else out there with this condition - typed in TOS chat (or something like that!) and neurotalk came up....one of the first in the listings.

You have all been a great help to me over the last couple of months (im still a newbie!) and i no longer feel alone!

I was doing all kinds of searches about RSIs/comp claims, etc and I have been on the sorehand list since '99.
- I think I got the BT link from a sorehand poster - and then joined BT - and then came here as soon as I got the email telling me about NT being started up after the BT crash.

Great thread Cyn!
My doc told me about "brachial plexopathy and TOS " so I googled them, and found here and BT.... I think that was right after BT crashed. So here I've been... And a big thank you to all of you for your help and support.

I was devastated when BT crashed. Like most. I found it after googling TOS. I had been told I had TOS by an IME doc for WC, so obv he couldn't treat me or recommend someone. My own series of docs kept implying it was all in my head. It was such a relief to find others had similar experiences.

The group here was well established when I finally found my way here. I am so grateful Neurotalk is here !

Great idea for a topic Olecyn !

Hi All,

I found it after googling TOS. Its the best and most informative thing iv found. I dont even know anyone with TOS in Australia so its soooo great to find this site.

Hope everyone is happy and pain free today.

Ozzy

I found NT when I got home from a long stay at the hospital. Having just been introduced to my new lifelong condition of TOS and having just had surgery, I was so eager to learn more about this nasty diagnosis - why it happened, what was I to expect for the rest of my life...

So, I was in so much pain and could hardly move post surgery, with the keyboard in my lap Googling TOS, I stumble upon all of you here at NT. I read about all the pain everyone lives in day to day (and again being in so much pain after surgery, wearing pajamas for days on end, having had to have my husband help me shower and put my hair in a pony tail, I was a mess!) I thought "Oh my god, Im going to live like this for the rest of my life?" I was too devastated to join up, reading some of the stuff here and what people were going through was too difficult for me to even comprehend. It wasnt until a couple of weeks later that my doctor told me that there are different types of TOS (DUH!) and I was one of the lucky ones who would probably not live in pain every day and that soon I would be able to lift my arm (and that my husband would not have to do my hair for me everyday!)

Since then, I have so enjoyed chatting with all of you and have found your advice and support invaluable to my recovery and new life with TOS.

I found the old BT by googling "extra ribs". I was looking for any help on what to do and I found many wonderful people who knew what I was going thru. Then BT crashed and I sent in a donation to help resurrect the servers - thinking it was a one-time thing. Then ? a year? later it went down again without warning - just as I was told I was having pec-minor release surgery in Denver that afternoon! It was down for a long time. I think another Member told me about NT, and it became my new home.

I would NOT be able to keep my sanity if it wasn't for everyone here!