Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 06-10-2008, 04:17 AM #1
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Default How Did You Find Neurotalk?

IS THIS A SILLY QUESTION? ,

After being told 5 years ago post surgery with symptoms returning within 2 months I was told:
1. "Give the surgery time" by the surgeon.
2. There was nothing my Neurologist said he could do for me except for trigger injections & anti-seizure medications.

I freaked & just knew there had to be something that could be done.
Saw a commercial on TV for webmd.
Immediately went on-line, started clicking links & happened upon braintalk now NeuroTalk.

O MY GOSH - I was NOT alone. There were real people, real patients out there that had the same condition, same symptoms, same issues as I. It wasn't in my head, TOS was for real.

Words cannot express how happy I was to have found this forum!
It has been my life line!
Met some of my best friends in person here in So Cal & some really cool pen pals here.
I have found my specialist(s) from patient's here: Dr. Collins, Dr. Edgelow, Dr. Ellis, Dr. Agnew, Dr. Jordan, Dr. Gelabert...
I have received valuable personal help from W/C - therapy

And you know what Jo55, you do a darn good job as a insightful & educated moderator. I give you props!

HOW DID YOU FIND NT?
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"Thanks for this!" says:
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Old 06-10-2008, 09:33 AM #2
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I was told by my chiropractor that he thought that I had TOS. I had no idea what that was. I was "lucky", this was only 3 -4 weeks after my accident.
I came home, went online and looked it up. I found a lot of useless info, and then I found Braintalk. When it went down I came over to Nuerotalk, and have been so grateful.
It is wonderful to have other people who know what I am going through.
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Old 06-10-2008, 11:23 AM #3
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Smirk

Feeling very depressed about my symptoms, knowing i have TOS not yet diagnosed i decided to see if there was anyone else out there with this condition - typed in TOS chat (or something like that!) and neurotalk came up....one of the first in the listings.

You have all been a great help to me over the last couple of months (im still a newbie!) and i no longer feel alone!
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Old 06-10-2008, 12:02 PM #4
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I was doing all kinds of searches about RSIs/comp claims, etc and I have been on the sorehand list since '99.
- I think I got the BT link from a sorehand poster - and then joined BT - and then came here as soon as I got the email telling me about NT being started up after the BT crash.
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Old 06-10-2008, 08:19 PM #5
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Great thread Cyn!
My doc told me about "brachial plexopathy and TOS " so I googled them, and found here and BT.... I think that was right after BT crashed. So here I've been... And a big thank you to all of you for your help and support.
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Old 06-11-2008, 02:15 AM #6
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I was devastated when BT crashed. Like most. I found it after googling TOS. I had been told I had TOS by an IME doc for WC, so obv he couldn't treat me or recommend someone. My own series of docs kept implying it was all in my head. It was such a relief to find others had similar experiences.

The group here was well established when I finally found my way here. I am so grateful Neurotalk is here !

Great idea for a topic Olecyn !
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