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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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#1 | ||
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Junior Member
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Last week, EMG showed carpal tunnel, physiatrist also put TOS as diagnosis, though all she found was CP. I def has more pain in the shoulder, neck, underarm than even CP area.
So, I had my first p/t today and he had me lie down on back, breath in, while he pressed downward on my first rib--he said he wasn't trying to move it, just loosen. On both sides, he had me breath in and then out as he push down--hard to explain, hope some of you understand. It didn't hurt, just felt like a strong stretch. Is that normal? I am having the usual flare up that I get by every afternoon--behind right shoulder blade, under arm burn, some front of shoulder burn, back of upper arm. I also get this weird neck thing all around that feelis like fire ants crawling. OK, just trying to see if I'm on the road to healing...? He showed me some ways to sleep with pillows, sleep has gotten terrible the last few nights--I instinctively roll at some point from my side and in starts burning all over and wakes me. Thanks for all the help, khaki |
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#2 | |||
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Co-Administrator
Community Support Team
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Sounds like a pretty good PT person so far..
Checking and mobilizing the first rib, is what it sounds like to me. My chiro, the adv PT guy & the PT teacher all did it a few different ways for me, but the idea is the same. I hope he does check around for Trigger point also. It was a multi pronged approach that worked for me. reduce the spasms resolve as many trigger points as possible drop the top rib/s back into place I did most of the posture work at home but chiro adjustments really helped with the forward head/shoulders & the hump at the back of the neck area..
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"Thanks for this!" says: | khakis (04-17-2012) |
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#3 | ||
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Junior Member
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Thanks Jo*mar--I was hoping you'd reply-I feel WAY better hearing you say that. He did also try some trigger points and talked about doing more with that next time, and bringing in one of the other P/T to talk with me more on posture--thanks, I feel relieved that maybe I'm on the right track
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"Thanks for this!" says: | Jomar (04-17-2012) |
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#4 | |||
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The pain and PT you describe sounds like par for the course with TOS. The fact that you also have carpal tunnel is a complicating factor.
You must get the sleeping under control. I was once caught in the vicious cycle in which sleeping was making me worse each day. I started seeing a neurologist who's specialties include pain management and sleep disorders (I don't have sleep disorder...just pain). I suggest seeing a pain management doc and finding the right drug regimen. With this bad pain, it must be managed or else it just multiplies. Now I start my mornings out feeling pretty good (especially after a long hot shower). Things still go downhill as the day progresses. But, it is hell when you wake up with excruciating pain and know it is only going to get worse. You must avoid this place.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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#5 | |||
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In the past many with severe pain ( and post op) would end up sleeping in a good recliner or using many many pillows to prop & position the body.
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#6 | ||
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After my first surgery, I found it necessary to sleep almost sitting up for the first few weeks. I stacked a bunch of pillows below me and put a rolled up blanket on either side of me, so that it would be much harder to roll over in my sleep. I am a "side sleeper", so it definitely was not comfortable, but certainly better than dealing with lots of pain the next morning.
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#7 | ||
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What is the best type of pillow to use? I love my down pillows I can make them pretty flat,but I've been waking up at night with bad pain in my trapezius muscles and heavy arm and hand. I usually end up using no pillow by the am.
Has anyone tried using a neck pillow? I tried one but I think it was too big. |
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#8 | |||
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Co-Administrator
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We have a mix of pillows and when I was in pain I used all sorts of configurations, whatever worked best..
I have 2 sizes of the contour memory foam type now, small and medium, and I try the larger size and the smaller size curve/bump to see what fits best for me. Some liked the long body pillows for propping/positioning the body. I'm a light sleeper so none of the noisy pillows worked for me - like the Styrofoam beads and the husk? or hull pillows. (buckwheat hull)
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