Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-08-2008, 01:27 AM #1
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Angry HMO (Aetna) Nightmare !!!

Does anybody have Aetna HMO? I was so thankful my local (in my network) vascular surgeon opted to NOT do my surgery (or even decide if I should have it) because of a lack of experience. So, he sent me to someone with more TOS knowledge and surgeries under his belt. The dr. he referred me to is Dr. Jeff? Ballard in Orange, CA. He's on Aetna's HMO plan, but not in my physician's group. Naturally, I had to get authorization through a request from my PCP just to consult with this "new" surgeon.

Apparently, my medical group physicians actually decide if the auth. will be approved and they chose to deny mine saying that I need to see someone in my group. But, what if there's NOBODY with TOS experience in my group? I don't want some Joe-Smoe doing it! Don't they understand it's a relatively rare condition that many physicians don't even know about? What if some doc with a big head on his shoulders decides he's good enough to do it, even without experience? Don't I have a say in who does it - somehow?

I guess I don't really understand how the whole HMO thing works in this situation (haven't had to deal with it yet). If anybody can help, please write!

UGH - I'm so frustrated, I want to scream! Thanks for listening.

Carrie
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Old 12-08-2008, 07:42 AM #2
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yeah, you're not the only one who wants to scream, and with good reason. I have had experience with out-of-pocket services. You can have it, but you will also end up paying for about 80% of the total bill yourself. You can write a letter of medical necessity and sometimes, because of his expertise and if they're not another comparable surgeon for your condition (if the 1st doctors writes a letter stating he's not qualified for your situation, and he's within your group, they may allow it under your HMO. Don't hold your breath though. They really don't have to. I fought the system and I paid is all I'll say. Maybe there's another doctor within your HMO. A longshot, but try to talk the surgeon's office into joining your HMO. It's a contract between the provider and insurance co. Aetna is good to pay, just by their rules. You probably have a policy there that will explain a lot more than I can about your ins. I ended up contacting my state representative and the Department of Insurance. I made a lot of noise, but in the end I still paid.

It's not fair how insurance companies, or the lack of coverage, can make you suffer too.
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Old 12-08-2008, 10:15 AM #3
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Question not true

Hi! I had Aetna for my 4 surgeries.

The first surgery was in-state but not in my city. The Dr. was in the Aetna HMO Network. This guy knew nothing of TOS and did me serious damage. Lucky for me he didn't attempt the rib resection, but he mangled a nerve in my rt arm and caused some scar tissue.

After this botched surgery, a Forum member (Beloved Beth) directed me to one of the top TOS surgeons in Denver. He sent a letter to Aetna - and I spoke directly to Aetna, explaining the need to go out of state. I do believe "Dr. A" accepted Aetna Insurance. I was cleared for the next 3 surgeries! Aetna realized the 'expense' of sending someone to a surgeon who is clueless.

My last surgery (bi-lat pec minor disinsertion) fell at the end of my coverage - literally 4 weeks from cancellation. For costs associated with the hospital that I had to pay out of pocket, I was able to write a letter to the Hospital board requesting assistance as I was unable to work now. That last procedure ended up costing me $13. I did agree to pay my surgeon his requested amount (which he discounted for me), so that was more.

I hope my dealings with Aetna haven't made it harder for you. They now know what is involved - the PT required, the risks involved and the need for surgical assistants (which requires advanced approval from Aetna).

If your surgeon is not in the Aetna Group, his office staff could get him signed up - if you ask. PM me if you need any of my reports to jogg Aetnas' memory. maybe you'd have better luck seeing my surgeon?

good luck!
Anne
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Old 12-13-2008, 09:35 AM #4
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Smile hilarious!

Family Guy on HMO's.

Oh, I forgot to mention that after my first consultation in Denver, the Dr who did the failed/attempted surgery got dropped from Aetna? I got a copy of that letter.
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Old 12-17-2008, 05:20 AM #5
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Crazy Update

Thanks for your input - I really appreciate it. My PCP referral gal is working on this still, but says my next stop has to be Loma Linda Univ Med Center. While that's a VERY reputable hospital, I'm still not sure if there's a TOS-worthy doc there.

I have a feeling that, if I do require surgery, I'll need more than one 'cuz the symptoms on the right are getting pretty significant too now (started on left). Also, my left arm is losing blood flow at lower and lower positions - even holding my arm (lightly) against my chest, elbow down, with my hand on my face to put on lipstick or whatever. And the veins in that arm are starting to actually bulge a little. The nerve pain is "lovely" too (not!), as I'm sure you know.

Naturally, I'm getting anxious for this process to move along! I don't want to end up in some emergency situation with PE/blood clot/stroke or something and at the mercy of a doc in my closest ER.

I hope they figure it out - just waiting to hear - and waiting - and waiting. I wonder how many docs I'll have to consult with (at the insurance's expense) before they'll agree to send me to the RIGHT one!
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Old 12-17-2008, 10:43 AM #6
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Default SoCal members: TOS Dr. in CA?

Just in case this is helpful: the Dr. that Aetna sent me to (who did the first failed surgery) was a TOP thoracic surgeon. Heart/lung transplant guy. Very experienced...

... but no experience with TOS or cervical ribs.

Honest, if you want me to give you the info for Aetna, just PM me.

Anyone in CA have a line on a TOS Dr. for o2b?
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Old 02-20-2009, 08:18 PM #7
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Quote:
Originally Posted by o2bponca View Post
Does anybody have Aetna HMO? I was so thankful my local (in my network) vascular surgeon opted to NOT do my surgery (or even decide if I should have it) because of a lack of experience. So, he sent me to someone with more TOS knowledge and surgeries under his belt. The dr. he referred me to is Dr. Jeff? Ballard in Orange, CA. He's on Aetna's HMO plan, but not in my physician's group. Naturally, I had to get authorization through a request from my PCP just to consult with this "new" surgeon.

Apparently, my medical group physicians actually decide if the auth. will be approved and they chose to deny mine saying that I need to see someone in my group. But, what if there's NOBODY with TOS experience in my group? I don't want some Joe-Smoe doing it! Don't they understand it's a relatively rare condition that many physicians don't even know about? What if some doc with a big head on his shoulders decides he's good enough to do it, even without experience? Don't I have a say in who does it - somehow?

I guess I don't really understand how the whole HMO thing works in this situation (haven't had to deal with it yet). If anybody can help, please write!

UGH - I'm so frustrated, I want to scream! Thanks for listening.

Carrie

Print out our docs list and show it to the doctor or fax it with a letter to the insurance co. saying, I have a rare condition and there are only certain surgeons with enough experience to do a brachial plexus release with scalenectomy (or whatever you think your surgery would be, if diff.), and for Dr. Annest they had the curricular vitae (spelling?) basically listing ALL of his experience and publishing in the TOS field.

Whenever dealing with Ins. Co.s, if you send a letter certified, this seems to lay a paper trail for a malpractice / bad faith claim, and they then do the right thing.

I don't know Dr. Ballard, and I lived in OC all of my life until just recently.

Hoag Hospital has a GREAT TOS PT, they don't push you, in fact, they know that ANY pain means, stop, with neuro TOS. Their knowledge was great.

I see you're in Temecula. Tell them to send you to Dr. Jordan - for our OC group, I think he was tops, for identifying what you have (diagnosis) and treatment options.

Unfortunately, we have to go many miles to find a knowledgeable doc and one who can write well. For surgeons, I suggest Denver. For the top docs there, they DO take insurance, and I know Dr. Annest's office works hard to get authorization.
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