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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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02-25-2009, 12:06 AM | #1 | ||
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In Remembrance
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I am getting tired of being treated badly, so I was wondering about forming a group that would show up and stanp up for issues.
First, how many of us are in the contiginious (sp} US? Total guess? When and at what even might we show up? My daughter is an "Ad Man" and used a publicist back in my day, so would we want to show up at say STATE LEGISLATION on work comp? Someone would have to hold our signs... ALso to protest hospitals who do not have staff who understand our disease... I'd like to call Dr. Annest and Dr. Collins for info. on free flight for protestors, etc., and ideas. I'l love to show Arnold what TOS is. What do you all think? Maybe just start by voluteering to go to one another's doc appts. because when I went from my very strong vocal friend, she melted into tears (just as I do,) and we don't get out own point across as well as a freind can. I am about to throw this keyboard out the window...boyfirend took off voice software AGAIN. |
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"Thanks for this!" says: | gibbrn (02-28-2009) |
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