I am getting tired of being treated badly, so I was wondering about forming a group that would show up and stanp up for issues.

First, how many of us are in the contiginious (sp} US? Total guess?

When and at what even might we show up?

My daughter is an "Ad Man" and used a publicist back in my day, so would we want to show up at say STATE LEGISLATION on work comp? Someone would have to hold our signs...

ALso to protest hospitals who do not have staff who understand our disease...

I'd like to call Dr. Annest and Dr. Collins for info. on free flight for protestors, etc., and ideas.

I'l love to show Arnold what TOS is.

What do you all think?

Maybe just start by voluteering to go to one another's doc appts. because when I went from my very strong vocal friend, she melted into tears (just as I do,) and we don't get out own point across as well as a freind can.

I am about to throw this keyboard out the window...boyfirend took off voice software AGAIN.

Well, it's a starting point.

Just one thought... if and when a TOSer finds a willing, knowledgeable and experienced enough provider to handle our load, we may scare that one off. I'm still hurt over the way I was mistreated. I did cry on many visits. My friends just have that "deer staring in the headlight look" when I rant and rave about what a doctor said and did or didn't do.

I also would fight back with Dr. Goodman... still ended up crying... and then he made some nasty notes in my permanent record... and I know he called the referring physician and scared the referring doctor off, Dr. Baker, ENT, and he was helping me at the time, with Botox to the scalenes. so I shot myself in the foot again. Sometimes you're just nail and they're the hammer, but I'm still hurt over it. And even the Dr. Goodman visit went very, very wrong - I could've sued and won, me and my neurologist - and yea, he was stupid enough to put enough notes in there about my neurologist that it would have been a slamdunk case against both of them Powell and Goodman. I'm not angry at Dr. Goodman, even though I should be, because it was what he said about my neurologist, in his ranting and raging that let me know why Dr. Powell did misdiagnose me and I know he did it on purpose.

So Dr. Powell is the closest thing to hate I know of in my heart and that scares me too. Powell's visit was Nov 2001/Goodman's visit was around July 05. So after my confused world became clear by Goodman's enlightenment, I was hurt and furious. So, from then on, when my 04:30 pain alarms started going off, I started going off and cussing Dr. Powell, till a fly wouldn't light on his ***. I want him to know that. I wasn't able, didn't have the strength to fight him then. Would've been ugly and nasty and expensive.

I don't want to let Dr. Powell get by with what he did, even though it's been 8years now. There for years I was not able to take him on, but I am going to call his office today and ask if the asshole is still alive. I want to get beyond my ill feelings about what he did so I can heal more, but he was just wrong for misdiagnosing me and I know why.

but what burns me up is, Dr. Powell's business name is Tri-State Christian Neurosurgical Associates... and he said "Work hard on your PT" and looked at me with his black beady eyes and said "God bless you."

I've already been to a lawyer about the religous business. They said he could name it "I'm Jesus Christ" and I couldn't do anything about that. "Let the buyer beware." Attorney wanted to operate on their bank accounts then. Wasn't able for what I would have to do to carry that out, plus they would fight back, nasty style.

Thanks for the spark

Might as well start this morning, I guess.

...5 minutes later I'm back at the board

Well, I posted this, got up to make coffee, and I need to find the Kinesio tape for my nostrils. They're flaring again.

I just don't know how to handle this stuff either. Open for suggestions.

for the last couple of years I'm not "painwrecked" but still mending. I don't wake up and I'm already crying in pain so I've not been cussing Dr. Powell that much lately.

And I do thank God for the recovery I've gained. humbly greatful...

I do need very much to deal with him, in a direct fashion, and find a way to forgive so I can have closure and move on. But I think I will call his off and see if he's still alive. I have to do something about it, though.

I'd suggest Lawyer-ing up before you say anything to this Dr's office (other than "is he still alive?"). Find out if you have a solid case first.

my 2¢ ,
Anne

Depending on how tech savvy he or his staff is - they might google for info or do a internet search - if anything comes up..
might be best to edit his name so they won't find info here.
maybe all the drs names -just so 2+2 won't equal 4
Dr P etc..

And that's worth a lot here. thanks

I didn't call or do anything yet.

I have lots of lawyer friends and know a lot of hired guns...

I sought counsel of a friend and was advised. I choose not to sue, although he assured me we'd win.

I wasn't wanting to sue. I know that don't make sense. I know I could've and probably should've... still bugs me like the dickens.

So not looking to be compensated, but IF I'd sued and IF I'd won, then yeah I'd gladly accepted the award, and rightfully so. I wanted an apology and "Christian" removed from his business name, which legally I've been advised has never been done.

I pick my battles and this is not one I want. To me, there would be no winners here no matter what the outcome, other than compensation. You can win and still be the BIGGEST loser. There would be no apology there. And the business name change...

He definitely caused me to suffer. I want him to know that also; and that, what he said did matter to me "Work hard on your PT. God bless you." I believed. MY BAD!

First pain management doctor, a month later, notes it as: "Again I tell the patient she has TOS." He was a good pain management doctor. I was telling other doctors and therapist I didn't have TOS because Dr P said I didn't have it. I refused their good advise and suffered until Dr G enlightened me. I changed my course of treatment and started making appointments which led me back to injections. I was willing to accept their advice then and started on my road to recovery. I am much much better, as documented by medical records.

Deep now, aren't we?

Still want to get past this. I need a

That's a good thought, but forensic computer scientists can get it back.

Do what you have to do or need to do for the integrity of this forum. If that's not proper, then I'll refrain, but TOSers should not go to him. He tested my pulse by crossing my wrists at my bellybutton level... didn't raise wrists over my head or up or out in any direction.

Anyone out there been tested like that?

And yes, I am very comfortable here and may have violated my own rule: "Never put anything on the Internet you wouldn't want the whole world to see." And not just on the "Dr. P" subject. Things can be taken out of context and blown out of proportion. One should be aware of snares and take heed.

I don't think I've been so open with anyone as I have with my fellow TOSers and visitors here. And really, I don't care if the whole world sees his name and avoids him as a accident wreck victim too.

If it helps or prevents suffering, I'll share it.

i was scheduled for surgery and had two opinions of tos in 2006 and so far nobody had raised my arm. it was the 4th opinion who finally did. one of the docs who failed to raise my arm was dr u.

i had wildly variant neuro testing too, ranging from "worst case of tos i have ever measured" to normal.

my dr nightmares extend well beyond tos. medicine in general seems like chinese bamboo torture to me. with a large geriatric population the whole infrastructure is vulnerable to medical conmen who are in it to milk it for their financial gain and our ruin. the science itself is vulnerable to conflicts of interests and has thus reverted to nothing short of a medieval quality.

oh oh i am getting oral diarrhea...

With my various RSI's and shoulder strains- I went to a couple MCO drs, 3 personal docs & their co office mates as fill in a few times, and then the 2 IME drs {1 was OK & 1 was horrible} Oh and 1 chiropractor.
But I don't really count the IMEs drs.

The only ones that really did any sort of TOS arm checks were the chiro, and the 2 advanced PT guys.
my stuff started out as RSIs and I didn't learn about TOS till a couple yrs later..
The MDs were focused on the RSIs only.