Reply
 
Thread Tools Display Modes
Old 09-23-2006, 09:32 PM #1
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Arrow It's OK to tic

This is a repost of something I wrote a very long time ago... thanks Chemar for suggesting I repost.

Just want to share something with you all, please.
Sometimes I find it hard to express myself on some of the threads. I hear you but I don't always know how to get across how I feel.

People with TS tic. It's OK!

Sometimes some tics can be self-injurious or problematic, that cannot be denied. Some tics interfere with all manner of things, like reading, writing, walking, breathing, talking etc. etc. etc., (yes, I know) but the majority of the time they are JUST tics.

I don't even notice people's tics much anymore. I know this might sound most peculiar to some people, but I also find tics of people I know very well, quite endearing.

People tic when they are relaxed. People tic when they are stressed. People tic when they're driving. People need to feel they can tic freely and not feel as if they're being watched, or being studied. It feels good to let it out. People tic 'cause they gotta tic!!!

My son sure has bothersome ones but they are only bothersome to ME when they are dangerous or are causing him grief for some reason or another. I think the most grief he faces is from people who don't seem to just see him as _him_ anymore. They see his constant ticcing and it's as if they negate the existance of his 'self'.

Every single day I am reminded how comfortable home is for my children. That's because school, for example, causes so much build up of unreleased energy. Kids and staff at school, despite education, still don't see past the tics. They don't see past how much my children have changed tic-wise since they were in Year 1. They don't look!!!

I'm not denying that tics can be of concern. I'm not denying that tics can be a right pain. I'm not denying that tics can really affect some people's quality of life. I'm not living in some unrealistic place where I deny the concerns and the pain these _can_ and do present. Believe me, please, I know. However, I think we need to understand in our own minds, that there are many more things that can cause more distress to a person than tics.

We need to start with ourselves. Start at the source. Change the way people view TS from here. I truly empathize with you all who are struggling with this in your young children. I have struggled, still do struggle, and will struggle in the future with some issues. I think the greatest thing we can all do though, is to look BEYOND the tics. Hey, maybe the rest of the world might get the same idea!

Your children's tics are just part of the tapestry of who they are and who they will become... just a tiny part.

Last edited by Lara; 10-29-2006 at 12:27 AM.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Boyolad (06-05-2013), Ingwaz (01-30-2010), khakis (04-10-2013), Spanish Moss (01-05-2012)
Old 09-24-2006, 08:14 AM #2
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 26,989
10 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 26,989
10 yr Member
Thumbs up

I am so glad you have posted this Lara.

I remember when I was new to being a mom with a TS child,and so distressed and confused, and yes, obsessed with "fixing" him, and then I read this on OBT and it just gave me the right perspective!

(((Lara)))
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Lara (01-22-2011)
Old 10-31-2009, 12:25 AM #3
Smokeyej Smokeyej is offline
New Member
 
Join Date: Oct 2009
Posts: 1
10 yr Member
Smokeyej Smokeyej is offline
New Member
 
Join Date: Oct 2009
Posts: 1
10 yr Member
Default

Well said, Lara. A turning point for me with my TS was when I 'de-pathologized' my tics and accepted them as part of who I am. This was thanks in no small part to going to a national conference and meeting adults who were thriving with TS. I find that overall, relaxing and accepting my tics , no matter how they appear is always a helpful strategy.
Smokeyej is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Chemar (10-31-2009), Lara (01-22-2011)
Old 11-23-2010, 02:42 PM #4
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 26,989
10 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 26,989
10 yr Member
Heart

bumping this up and thanking Lara again for these wise words! They helped me get things in perspective when my son was first diagnosed. He was still a preteen and all seemed gloom for his future.

He'll be 21 soon and has proven how TS is truly just a tiny part of the tapestry of his life, and he has used it as a stepping stone, learning and growing from the challenges it has brought. Yes, he still has some tics....but it's OK

Thanks again, Lara
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Blessings2You (12-02-2010), Lara (01-22-2011)
Old 05-04-2011, 04:15 PM #5
cmbarton (tigger) cmbarton (tigger) is offline
Junior Member
 
Join Date: May 2011
Location: Port Hueneme, CA
Posts: 7
8 yr Member
cmbarton (tigger) cmbarton (tigger) is offline
Junior Member
 
Join Date: May 2011
Location: Port Hueneme, CA
Posts: 7
8 yr Member
Default

What a fabulous post!! And it's true. I don't try to hide mine anymore, fortunately I only have a few a day (unless it's around Christmas time!) I realized one day several years ago that I have never lost any of my friends who have seen me tic so why was I working so hard to hide them. Thus, I no longer try to hold them in and so far it has not been an issue for anyone. A few people have asked questions...which just gives me the opportunity to educate!
cmbarton (tigger) is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Lara (01-06-2012)
Old 01-05-2012, 06:12 PM #6
Spanish Moss's Avatar
Spanish Moss Spanish Moss is offline
Member
 
Join Date: Jan 2007
Posts: 338
10 yr Member
Spanish Moss Spanish Moss is offline
Member
Spanish Moss's Avatar
 
Join Date: Jan 2007
Posts: 338
10 yr Member
Default

What a balm to the soul these words of truth are!

(I also must say hi and send hugs to Lara, who I have had the great pleasure of meeting in person - and Tigger, who I met in the old MGH forum)
Spanish Moss is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Chemar (01-05-2012), Lara (01-06-2012)
Old 01-06-2012, 06:13 AM #7
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Default

What a balm to the soul the sight of your post is to me!
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Chemar (01-06-2012)
Old 06-27-2012, 10:29 AM #8
MsTati MsTati is offline
New Member
 
Join Date: Jun 2012
Location: Evanston, Il
Posts: 2
5 yr Member
MsTati MsTati is offline
New Member
 
Join Date: Jun 2012
Location: Evanston, Il
Posts: 2
5 yr Member
Red face It will be Ok,

I found NeuroTalk while researching Tics in Children, My almost 9 year old daughter has developed a tic, and only seam to get worse. Her Pediatrician referred me to a Pediatric Neouroligist but cant get an appointment for another 3 month. So I am her trying to find out how i can help her, and reading all of yours posts makes it that much easier fro me, So Thank you in addvanced for past and future post that i can learn from.
MsTati is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Lara (07-14-2012)
Old 06-05-2013, 10:22 PM #9
Boyolad Boyolad is offline
New Member
 
Join Date: Jun 2013
Posts: 1
5 yr Member
Boyolad Boyolad is offline
New Member
 
Join Date: Jun 2013
Posts: 1
5 yr Member
Default Another set of parents researching Tics

Quote:
Originally Posted by MsTati View Post
I found NeuroTalk while researching Tics in Children, My almost 9 year old daughter has developed a tic, and only seam to get worse. Her Pediatrician referred me to a Pediatric Neouroligist but cant get an appointment for another 3 month. So I am her trying to find out how i can help her, and reading all of yours posts makes it that much easier fro me, So Thank you in addvanced for past and future post that i can learn from.
Like MsTati, I found this site while aimlessly seeking answers to my 9yr old son's sudden tic impulse. His doctor found nothing that would explain it following a thorough physical exam so now we are waiting for a Pediatric Neurologist. My had developed a series of noticeable lymph gland nodes behind his ear but ENT doctor was not concerned and reassured us this was harmless.
Only 48hrs since his snap-head-turning tics began I've found two bumps behind his head finger tip sizes and two inches apart. His pediatrician missed them and now I wonder if there is a connection. MsTati I share this with you because I feel the pain too. I hope your dearest will soon overcome this tic.
Boyolad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013), Lara (06-06-2013)
Old 06-06-2013, 12:58 AM #10
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,267
10 yr Member
Default

Welcome to the forum, Boyolad.
I've not seen MsTati post again unfortunately.
It would be a good idea to get those new lumps checked. Just so you know, there are lymph nodes on the back of the head.
I hope to see you posting again to let us know how things are going.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (06-06-2013)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:16 PM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.