I have epilepsy due to my brain injury...Petit Mals, Simple Partials and Complex Nocturnal. I didn't want to take anti-seizure meds on top of all the other meds I was on until I got educated and learned on my own and from my neuro that even the smallest of seizures can eventually evolve into the more severe Grand Mals which are much more difficult to control.

I can't seperate my epilepsy from my brain injury and don't seek seperate support for just epilepsy anymore. For me, the epilepsy is just another symptom of my brain injury but it may help you to check out the epilepsy site Mark recommended.

I would strongly recommend talking with a /your neuro about having an EEG, but tremors can also be caused by other meds you may be taking. Never self-diagnose, get checked out first then go from there. Wishing you well-being.

Jinx,

My neuro told me to not consider my seizures Epilepsy. Instead they are a trauma induced seizure disorder. Same symptoms, different etiology.

I think he was trying to prevent me from labeling myself and putting my diagnosis into a long term condition.

I eventually overcame my seizures. I have had repeated times when I was symptomatic with seizure free years and even decades between them.

I usually have other PCS symptoms manifest before the seizures manifest. Over time, I get my brain healthy again and the seizures end.

Now, the only time I have any seizure activity is when trying to fall asleep. I will sometimes have seizures just as I start to fall asleep. When this happens, I need to get up and sort of reboot my system so I can go to sleep without the seizures. It usually helps to eat something before trying again to go to sleep.

I am doing this right now. I could tell that my body was going to seize so I got up and sat at the computer while eating a small snack. My body gets a sort of tingling tension feeling. It is like my muscles are a stretched rubber band. When they finally relax and I feel warm, I can go back to bed.

Mark,

I've had that pre-seizure feeling also, even on anti-seizure meds. I have noticed that if I eat a small bowl of cereal (bran flakes, Cheerios...) it does seem to subside.

I rejected anti-seizure meds in the beginning, but then I was walking down a flight of stairs, had a small seizure and fell down the stairs, broke my leg and ankle on the way down

My seizures are small and nearly unrecognizable if one doesn't know what the outward signs are. My daughter was with me and knew immediately what was happening (she knows the "look") but couldn't catch me in time.

I take the meds now

Jinxicat~

Can you describe your seizures? They are almost un noticeable? Mine are that way so I am having a hard time believing they are really there.

Thanks~