Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-11-2010, 12:49 PM #1
PCSLearner PCSLearner is offline
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Great article (where the heck was that 7 months ago???). I'm forwarding it to my daughter's school counselor for future reference.

I was suprised at the term "complex concussion" vs. post concussion syndrome. Our neuro used that term but I didn't realize it had the same meaning as PCS. I agree with Mark that their list of symptoms was limited. However it is the best description I've seen aimed at the high school administration population.

If going to movies or exercising, for example, cause symptoms then you can wait awhile and try again later. That much we can figure out by journaling.

But other things are harder to figure out. Was it the bright, sunny day, or sitting through an hour of class that caused the headache? Or was it just a routine brain-healing headache? From what I can tell these headaches can come along for no reason whatsoever. Compound that with monkeying around with medication that may or may not cause headaches itself and you've got a serious puzzle to solve.

At 5 months would it be reasonable to think she is past the point of second impact syndrome?

Nancy: I'm sorry to hear your daughter's headaches came back after last week. Just when you get to thinking, "we're getting there...we're improving" there's a big WHAMO to set you back. In our experience those WHAMOs are getting further and further apart. They do make you feel like a flake, though. Your friends and family and school administration just heard you say last week that things were getting better and now she can't come to school. It's a lot longer and more complicated healing process than I think either of us has fully realized at this point.
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Old 03-11-2010, 01:14 PM #2
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One more thing that complicates identifying triggers...we are relying on 15-year-old girls for our information. Here is how our conversations go:

Her: My head hurts.
Me: I'm sorry. When did it start?
Her: I don't know...maybe 3rd hour.
Me: Were you reading, or...
Her: I'm fine.
Me: Did it hurt all day? (silence) Or was it one then and one now? (silence) Do you want some Tylenol? (silence)
Her: Guess what Matt did today at school?

Once in awhile, like maybe once every two weeks, my daughter will concede to a full inventory of how many symptoms she's having, what might be making them worse or better, etc. I thinks she's pretty honest and open during those inventories so I try not to get freaked out by the short conversations.
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Old 03-11-2010, 02:18 PM #3
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Quote:
Originally Posted by PCSLearner View Post
Great article (where the heck was that 7 months ago???). I'm forwarding it to my daughter's school counselor for future reference.
It took me a LONG time to find this article. I found a version of it posted on an school in California website and then hunted and found the original source. I too sent it to my daughter's school. It was really an eye opener for them and helped understand the situation better. They were already supportive and now they are even more supportive.


Quote:
Originally Posted by PCSLearner View Post
Nancy: I'm sorry to hear your daughter's headaches came back after last week. Just when you get to thinking, "we're getting there...we're improving" there's a big WHAMO to set you back. In our experience those WHAMOs are getting further and further apart. They do make you feel like a flake, though. Your friends and family and school administration just heard you say last week that things were getting better and now she can't come to school. It's a lot longer and more complicated healing process than I think either of us has fully realized at this point.
I couldn't agree more! I felt like a TOTAL flake when she didn't make it to school earlier this week. My friends that have had kids with concussions - remind me that everything is baby steps and to not get discouraged.
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Old 03-11-2010, 04:49 PM #4
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Honestly I don't think there is anytime that second concussions don't happen.

Sometimes it is just something folks have to work with.

It also takes medication at times, and changes of medication.

Donna
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Old 03-11-2010, 05:38 PM #5
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(((hugs))) I really want to urge anyone who's had a head trauma and is dealing long-term with headaches that they go to a dentist or orthodontist or oral surgeon and have their TMJs evaluated for TMD. Head trauma often affects the jaw joints (TMJs) as well, and having either of them off the slightest can cause horrific symptoms, including migraines, tinnitis, and other sensory issues. ((((hug)))
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Old 03-11-2010, 07:51 PM #6
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PCSLearner and other,

Second Impact Syndrome is more a diagnosis than a risk. By that I mean, after a second impact that causes serious problems, it can be diagnosed as Second Impact Syndrome. There is nothing that helps with understanding when Second Impact Syndrome becomes a non-risk.

At five months, common logic would suggest that the risk is low, but Post Concussion Syndrome does not follow any common logic. The issue that needs to be considered is simple.

There are two risks after a concussion. Second Impact Syndrome, that can cause life threatening consequences, and Multiple Impact Syndrome, that can cause life long consequences.

Second Impact Syndrome is a rare occurrence.
Multiple Impact Syndrome is not rare at all.

I suffer from Multiple Impact Syndrome. My first few impacts were the result of chance (falling down stairs at 8 years old, horrible bike fall at 10 years old, assaulted by a bully at 11 years old) A life changing impact as a high school sophomore was the result of lack of understanding the risk of heading a soccer ball.

Plain and simple, I had no idea that playing soccer and heading the ball put me at risk. Of the thirteen or so memorable concussions I have suffered, only that one was the result of putting myself at risk, even if unknowingly.

Most of the others were very mild concussions with no immediate symptoms. The symptoms did not become evident until days or weeks later. I knew I bumped my head at the time, I just did not recognize any immediate symptoms.

So, to make this longer post end, the answer is that you can never let your guard down. Your child will always be at risk of a second impact, either of life threatening or life long consequences.

The greatest risk is from those impacts with a rotational force. This would be a punch to eh chin in boxing, a bad tackle in football, an elbow to the chin in basketball, a helmet glancing pitch in baseball, or a angled header in soccer.

I have commented many times about the weakness in systems like the ImPACT test or CNS Vital Signs that test current brain function but not current brain durability.
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