Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 06-18-2010, 01:25 PM #4
t97tab t97tab is offline
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Join Date: May 2010
Posts: 12
10 yr Member
t97tab t97tab is offline
Junior Member
 
Join Date: May 2010
Posts: 12
10 yr Member
Default Thank you

Quote:
Originally Posted by PCSLearner View Post
t97tab: I'm so sorry you have to go through this with ill-informed health care providers. It's hard enough when your docs have a decent understanding of and compassion for concussion.

Have you had any luck following up with an ENT or eye doc? How is your son's dizzyness and nausea?

My daughter just went to her first vision therapy session. During his diagnosis the doc had her walk a straight line...I was astounded how hard that was for her and how much she has learned to move her body to accomodate for her skewed center line of vision. He then put some goggles on her and she walked the same line perfectly straight with normal posture. She will wear glasses all the time for 12 weeks, plus therapy, and see if that center line can shift back.

Our neuro's opinion of vision therapy was, "It hasn't been studied enough..but it won't hurt her so give it a try."

Another thing to consider...our neuro is convinced that people who are prone to getting migraines anyway really suffer with head injuries. She has a low threshold for migraine now. No way to really know if we are dealing with migraine or concussion symptoms at any given time. Not sure if this is the case for your son, but it is something to consider.

All this is just to encourage you to keep on searching for supportive health care providers and to remind you that even though your son's experience is "atypical" there are lots of us out here fighting this same fight. Embrace every little improvement and hang in there.
Thank you for your advice and encouragement. I wish the best for you and your daughter. I am in the process of seeking out vision therapy. I must say, at this point, that both my son and myself have become a bit gunshy with regards to the medical community!
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