football,

I would suggest trying to contact Dr. Julian Bailes at University of West Virginia or Dr Cantu at Boston University Medical Center or Dr. Kevin Guskiewicz (Ph.D, not MD) at University of North Carolina at Chapel Hill.


You can also contact the Sports Legacy Institute at http://www.sportsconcussions.org/Lew...sion-bill.html

You do sound like a candidate for CTE. According to Dr Gus at UNCCH, the average football player suffers 700 to 900 subconcussive impacts during a single season. They see CTE starting at 8 years post play. In your case, your threshold of injury was likely met long before you stopped playing.

It would be very interesting to see your brain mapped with qEEG. I bet your map is like mine with asymmetry and out of phase, low power etc, all over.

You likely just have a very sensitive brain like mine. I can get a concussed feeling turning my head quickly, as in saying 'NO.' I can't tolerate sea motions anymore. I used to be very resistant of sea motions. Now, I am almost the first to get sea sick.

I agree with your HBOT idea. It is worth a shot. Also nootropic supplements.

Get your B-12, folate, DHEA and testosterone levels checked.

The above doctors might be interested in following your case to see if anything helps.

As my neurologist said to me after seeing my brain map, "How do you function?"


I'm not just "Been there, done that." I am "There now, doing that."

My best to you.

btw, have you found all of the TBI Survival Guides to help you with daily living? If not, I can email you the files and links.

Regarding meditation, The targeted behavior is a more relaxed state with less reaction/over-reaction to daily stresses. A religious or philosophical change in view of the world around you can make a big difference.

hi DPF

Kundalini Yoga is something I have practiced for years before my injury,it has helped to control myself, and with my head aches also, it slows the thought process down, I often meditate on my posts before I write

welcome

Thanks for the response Vini and MiI !

Mark, how would you suggest I contact Dr Bailes, Cantu, or Guskiewicz? Just give them a ring?

What nootropic supplements do you recommend? Mucuna?

I have gotten a workup by an endocrinologist and nothing was showed. However, I developed SEVERE adrenal fatigue. Doctors don't really understand it at all, they just try to give you ssri's. My symptoms were exhaustion all day every day, unrefreshing sleep, heart palpitations all day every day from the smallest of stressors, etc. I have been 6 weeks into the best adrenal fatigue healer in the world, Dr. Lam, and have been feeling better physically than I have in the last 8 months. However, after coming to this site is it a revelation that my head injuries might be related to me developing adrenal fatigue (more susceptible to "feeling stressed" maybe?)

I would love the TBI survival guide, my email is miller13432(at)yahoo.com
(the (at) is supposed to be an @ but the site wont let me put it there)

I am thinking when it comes to nutrition that massive amounts of antioxidants such as vitamin C may help keep the brain clean and functioning? At least that is a hypothesis. I am still looking into the hbot but have not yet found a success storey. The poster "Mikeyy" used hbot in a post he said he was going to do 20 sessions. However, the next post he posted months later, as well as successive posts, never mentioned a positive/negative effect of it.

I meditate every day, but will definitely get into yoga Vini. Thank you for the support.

football,

You can google the drs and you will find them. Dr Gus is at the UNC Chapel Hill Sports Medicine and Training Department. he is the director. You can also do a phone book look up. I have a few links for you. There are two lectures that are worth the time to watch. I posted the links last week.

I will send you the doc file.

Re hormones. many endocrinologists use a broad range for acceptable levels. My doc likes me at the higher end of the range.

Make sure you are breathing all of the time when you are sleeping. Sleep apnea can cause the foggy days. I have Central Sleep Apnea. If I sleep on my side, my diaphragm stops pulling breaths until I partially wake and start breathing again.

My wife can tell that I will have a bad day if my breathing is irregular.

My most problematic symptoms are receiving information. I have very little immediate or short term visual or auditory memory. I can talk with mostly normal skills until I get stuck trying to find a word or I lose track (forget) of what I am saying. I know to avoid chaotic environments, etc.

Knowing how to explain some of my symptoms to others helps them understand and accommodate me better. To do this, first you need to catalog your symptoms. The TBI Guide will help you with this.

Gotta go get dinner. It is my 30 anniversary to a wife who has put up with my PCS for decades. Now that we both understand PCS better, she can see my symptoms back 30 years. The last ten have been the toughest. At least two of my three adult kids still put up with me.

My best to you.