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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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01-28-2015, 08:15 AM | #1 | ||
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I can relate for sure. Husb fell almost one year ago. He has had cognitive therapy, PT neck injuries (x 3) and saw counselor. The counselor first said he felt he could help but would need 5-6 months of treatments. Then after listening and talking w/ him decided he should speak w/ his Neurologist. Husb wanted me present, as I am his memory when his fails. He is a completely different person. No joy, laughter, intimacy, feelings except grouchiness.
He was able to return to work, this has made him worse. I know that all ppl are different, not meaning to say this will be your wife in any way, but to say we as caregivers need to be able to support each other. My husband is the love of my life. But it is lonely, when he returns from a long day at work he doesn't feel like talking. I've learned to stay quiet not ask too many questions which aggravates him. To go out in a large public place, the lights and noises causes his brain to overload. If we have the kids over, after that he sleeps sometimes all day and night. He can pretend to be the "old self" in front of others for a couple of hours but it taxes his brain too. I hope and pray that we caregivers can find each other to get tips on what works, etc. I'm blessed in many ways, just trying to learn to live and love the new husband I have. God bless you all. |
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01-28-2015, 12:42 PM | #2 | ||
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Legendary
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Wife......,
Have you looked for a Brain Injury Support Group in your area? Some have good support for caregivers/spouses. I know you want to inquire about his day and discuss other matters, but trying to respond when one is struggling with flat affect can be frustrating. Trying to avoid abstract questions or subjects may help. I know it is a struggle. Women tend to discuss more relational and feeling oriented subjects. The PCS mind can really struggle with those ideas. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-01-2015, 09:26 AM | #3 | ||
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Member
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Not sure if I can help anyone here, but my wife and I (im the one with the injury) have talked about this over and over.
She says im a totally different person, like not even close the guy I was. She pointed out a lot of things, and I listened and wrote it down. Its made me aware of who I am now compared to who I used to be. Im working extremely hard at it, and she says shes slowly seeing a lot of me husband wise return. Granted its exhausting, but I had to learn to live with the pain and the effects of a brain injury, and not let it control you. Im not the kind of person that gives up on anything, or accepts a negative change easily. Im a bit over a year, it would of been easier to give up 6 months ago and accept the new me. Acceptance equals defeat in my mind. While I havent accepted this, im learning to live with it. Try talking to your spouses. Ask them the hard questions. Its going to be a multiple time conversation, but it needs to be done. My wife did this to me, and I hated it at the time because it made me extremely emotional and feel less like a husband and father. But it needs to be done, trust me. Once you are both on the same exact page, stuff flows a lot easier. For me now its easier to be the husband to her that she married. Granted im still far away from that man I used to be, but theres light at the end of the tunnel so to speak. Just keep trying, its possible. If you need anymore assistance, just private message me. Maybe I can assist you in what to ask, or have my wife respond to your questions if you private message me. Take Care. |
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08-18-2015, 05:26 PM | #4 | ||
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Newly Joined
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Quote:
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08-18-2015, 06:07 PM | #5 | ||
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Legendary
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valleylow,
Welcome to NeuroTalk. Do I understand you correctly that you have been support for a husband who has been dealing with PCS or worse for 25 years ? What can we do to help and support you ? |
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