Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-05-2011, 06:46 PM #1
andy55 andy55 is offline
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hi,

sorry to hear of your problems...I am 1.5 years out from bad concussion and still not better....what are your symptoms exactly (you said feeling out of it and anxiety)....you talked about getting back to "normal"...so my guess is that you wake up everyday and do not feel like you did before the injury (almost like a different person)...anxiety is very common w head trauma....try not to worry as hard as I know that it....tell people that you still do not feel right....pcs can last years....or forever....most docs dont understand (your best bet is a physical medicine and rehab doc with experience in brain injury....
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Old 03-06-2011, 09:06 PM #2
AlexNew AlexNew is offline
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My symptoms are:

-I feel out of it almost all the time, like I'm not really experiencing things fully.
-Occasional anxiety, it's worse on days I feel especially out of it.
-About once or twice a month I'll have trouble falling asleep
-I get very fatigued and sleepy at different periods of the day, but usually if I rest a bit or eat something I can get over it in about an hour or so.
-Uncomfortable sensitiveness sometimes. It's hard to explain, sometimes if something is touching me but it's not in my line of sight, it will start to bother me until I look at or touch it.

"Feeling normal" to me is still feeling a bit out of it, but a lot less than I normally do. I don't get fatigued or get that "uncomfortable sensitiveness." No anxiety at all, almost like if I just continued on that path for a few more days that I'd be completely fine again.

But usually I'll "feel normal" for two days, but at the end of the second day I just start feeling crappy again. It's a strange cycle, but I mean a few days after my accident I felt better than my "normal" period for a week straight, so this gives me hope for recovering again.

I was hoping in not getting tied up in therapies or medicine and simply depending on living healthy and resting to get better.
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Old 03-07-2011, 12:47 AM #3
Mark in Idaho Mark in Idaho is offline
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Alex,

I suggest you relax and stop trying to figure this out. Your symptoms may or may not be PCS. They are so varied and atypical that they could be just a cluster of odd symptoms. There is not much you can do for PCS, especially when the symptoms are so mild and infrequent.

If any of your symptoms were more frequent, then there might be things to do to help with them.

If you start having memory and cognitive difficulties, then it is more likely you have PCS.

You could also keep a journal to see if you can find a link between triggers and symptoms.

Your last statement about living healthy and resting is your best bet.
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Old 03-07-2011, 09:27 PM #4
PCS BULL PCS BULL is offline
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Quote:
Originally Posted by andy55 View Post
hi,

sorry to hear of your problems...I am 1.5 years out from bad concussion and still not better....what are your symptoms exactly (you said feeling out of it and anxiety)....you talked about getting back to "normal"...so my guess is that you wake up everyday and do not feel like you did before the injury (almost like a different person)...anxiety is very common w head trauma....try not to worry as hard as I know that it....tell people that you still do not feel right....pcs can last years....or forever....most docs dont understand (your best bet is a physical medicine and rehab doc with experience in brain injury....
just fyi andy, you sound like me from the past, exactly. I had a wicked concussion and it was hell for 2 years, and even with the lack of hope i had, it went away entirely. Stay strong buddy
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Old 03-08-2011, 12:26 AM #5
AlexNew AlexNew is offline
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Thanks a lot, everyone! This really gives me hope to recovery.

I'll try to remember to post updates! If there's any more tips I'd be happy to hear them as well.
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