Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-19-2011, 09:44 AM #51
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iggle-

As Mark said-check out the tbiguide online. I shared the link with some family and friends so they could hopefully understand some of what I am going thru too (rear-ended in July '11. Subdural hematoma and 11 staples).

It has some great information and really lets you know that you aren't losing your mind.

Best of luck to all!
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Old 11-06-2011, 03:31 AM #52
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this all sounds like what I've gone through. dreadful experience. I have some doubts about whether or not it was due to the possible concussion I had. I guess I'd like some opinions from others about whether or not it could have been related. I had my wisdom teeth removed on the 30th of July, and 5 days later I hit my head quite hard on a steel support beam. There couldn't have been much force behind the impact but it made a loud noise, and the beam vibrated, so so did my head and my brain. I felt dazed, my vision went blank for a second, but other than that I felt okay. I was drowsy and sleepy anyway from having my teeth out so I went to sleep. I had no other physical signs of concussion that I noticed and felt concerned about, I hardly remember having a headache. However, that night, I had an exteme, and I mean extreme, anxiety/panic attack, in which I felt intense fear until I finally calmed myself, and resorted to sitting down with a red face, ringing ears and my swollen and bruised face, feeling half dead. The next morning, I woke up and felt as good as I could have; skin and bones from living on a diet of chocolate moose and icecream, and teary when I had to call off an interview I had planned with a volunteer organization because my face was still so out of whack and so was I emotionally. I was okay for the next 3 days, and on the 4th day, someone upset me, or emotionally abused me, and I got really angry, which was really out of character, and I thought I was going to lose myself, or I'd go mad; and I ended up sobbing in my brother's arms for an hour with an aching heart. I was okay though when I had settled down, and I had an apetite because I ate a whole punnet of strawberries. I had no idea I had concussion. On the 5th day, I made myself get ready and go out. I went to a health food shop to get something to help my skin recover from the ordeal, and while there I found something called anxiety aid, a herbal medicine to help with anxiety and insomnia. I was fine on the first day of taking the pill, I felt great. I realised the dose was a bit high, so I was only taking one pill. The day after however was when I started to have feelings of derealization, I felt extremely detatched, as if the world was buldging, everything seemed bizarre, noise was hurting my ears and I felt so weird. I blamed it all on the pill, presuming it was normal to feel that way. The next week, I wouldn't let myself rest, I was out and about every day doing something, even though I was fatigued; fatigue was the only real symptom of concussion I had, although it was probably related to my decreased health. (Please give me opinions on whether or not you think I had a concussion). The next week, I was still taking Anxiety Aid, and I picked up a novel for the first time, and the words were just all scrambled and I couldn't process what I was reading. I went to University on the same day, with the foggy feeling, and felt very strange and extremely unsettled because of the strange feeling. I took myself to the doctor afterwards, and in the waiting room I was noticing that when a new person entered, I'd completely forget they were there until I saw them again a few minutes later. The doctor ran blood tests, and they were fine. The weeks after became a living nightmare; I scrutinized my every move in fear of becomming mad. And I absolutely convinced myself I had brain damage from the anaesthesia or the hit on the head, and which lead to a melt down. I was in a huge daze as if I hadn't woken up properly, I had, or felt like I had poor concentration, mental dullness, concrete thinking, DP and DR, anxiety, panic attacks, depression, lethargy, fatigue, feeling detatched from reality, personality changes. I was working my way up to distinctions at university, and I could not begin a simple essay, leading to me withdrawing from subjects. I just feel tired. No creativity, I was apathetic, emotionally numb, disorganized thinking, and bad forgetfulness, feeling disoriented and dissociated. Insomnia at times, seeing stars, blurred vision, and sensitivity to noise. I wasn't feeling as bright or capable as I did before the crazy events, and felt less insightful. I couldn't communicate my emotions to others because it is near impossible to describe. My doctors thought I was mad; I was referred to a psychiatrist, to be screened for mental illness, which I refused to do. In all that I did have a CT scan, which came back fine, of course. It seems to Anixety Aid did this to me, but I know it could have been post concussion syndrome. Is that possible without headaches and other physical symtoms like that?
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Old 11-09-2011, 12:30 AM #53
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orfray's post with some spacing for readability

this all sounds like what I've gone through. dreadful experience. I have some doubts about whether or not it was due to the possible concussion I had. I guess I'd like some opinions from others about whether or not it could have been related. I had my wisdom teeth removed on the 30th of July, and 5 days later I hit my head quite hard on a steel support beam. There couldn't have been much force behind the impact but it made a loud noise, and the beam vibrated, so so did my head and my brain.

I felt dazed, my vision went blank for a second, but other than that I felt okay. I was drowsy and sleepy anyway from having my teeth out so I went to sleep. I had no other physical signs of concussion that I noticed and felt concerned about, I hardly remember having a headache. However, that night, I had an extreme, and I mean extreme, anxiety/panic attack, in which I felt intense fear until I finally calmed myself, and resorted to sitting down with a red face, ringing ears and my swollen and bruised face, feeling half dead.

The next morning, I woke up and felt as good as I could have; skin and bones from living on a diet of chocolate mousse and ice cream, and teary when I had to call off an interview I had planned with a volunteer organization because my face was still so out of whack and so was I emotionally.

I was okay for the next 3 days, and on the 4th day, someone upset me, or emotionally abused me, and I got really angry, which was really out of character, and I thought I was going to lose myself, or I'd go mad; and I ended up sobbing in my brother's arms for an hour with an aching heart. I was okay though when I had settled down, and I had an appetite because I ate a whole punnet of strawberries.

I had no idea I had concussion. On the 5th day, I made myself get ready and go out. I went to a health food shop to get something to help my skin recover from the ordeal, and while there I found something called anxiety aid, a herbal medicine to help with anxiety and insomnia. I was fine on the first day of taking the pill, I felt great. I realized the dose was a bit high, so I was only taking one pill.

The day after however was when I started to have feelings of derealization, I felt extremely detached, as if the world was bulging, everything seemed bizarre, noise was hurting my ears and I felt so weird. I blamed it all on the pill, presuming it was normal to feel that way. The next week, I wouldn't let myself rest, I was out and about every day doing something, even though I was fatigued; fatigue was the only real symptom of concussion I had, although it was probably related to my decreased health.

(Please give me opinions on whether or not you think I had a concussion). The next week, I was still taking Anxiety Aid, and I picked up a novel for the first time, and the words were just all scrambled and I couldn't process what I was reading. I went to University on the same day, with the foggy feeling, and felt very strange and extremely unsettled because of the strange feeling.

I took myself to the doctor afterwards, and in the waiting room I was noticing that when a new person entered, I'd completely forget they were there until I saw them again a few minutes later. The doctor ran blood tests, and they were fine. The weeks after became a living nightmare; I scrutinized my every move in fear of becoming mad. And I absolutely convinced myself I had brain damage from the anesthesia or the hit on the head, and which lead to a melt down.

I was in a huge daze as if I hadn't woken up properly, I had, or felt like I had poor concentration, mental dullness, concrete thinking, DP and DR, anxiety, panic attacks, depression, lethargy, fatigue, feeling detached from reality, personality changes. I was working my way up to distinctions at university, and I could not begin a simple essay, leading to me withdrawing from subjects.

I just feel tired. No creativity, I was apathetic, emotionally numb, disorganized thinking, and bad forgetfulness, feeling disoriented and dissociated. Insomnia at times, seeing stars, blurred vision, and sensitivity to noise. I wasn't feeling as bright or capable as I did before the crazy events, and felt less insightful. I couldn't communicate my emotions to others because it is near impossible to describe.

My doctors thought I was mad; I was referred to a psychiatrist, to be screened for mental illness, which I refused to do. In all that I did have a CT scan, which came back fine, of course. It seems to Anxiety Aid did this to me, but I know it could have been post concussion syndrome. Is that possible without headaches and other physical symptoms like that?
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Old 04-03-2012, 04:09 PM #54
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Default You are not alone.

I felt the exact same way as the original post.

I have struggled to describe what I have been going through since I am not the best with words. My doctor has put me through every test in the book. I even had an MRI. Now I am on an anti-depressant. I still do not believe this is all from stress however, the anti-depressant has helped to alleviate the anxiety and the social aspects of this and I have been able to function again. I felt defeated at first having to rely on a drug, however I am much better off than I was when this all began at the end of Aug. 2011 (7 months ago). I would actually recommend giving it a try. I got my libido back, however I still don't sleep well. I wake up a few times a night at the same time every night. I feel groggy like I'm hung over as a result and I have a sense of derealization.

I was wondering, were any of you taking a protein supplement when this started happening? This hit me like a brick wall at the same time I ran out of a GNC protein supplement I had been taking for about a month or so. I had also went out drinking the night before and thought I was just hungover as usual.

I would love to get in contact with any of you that want to talk further.

Good Luck all! Just keep looking forward and don't dwell.
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Old 04-03-2012, 06:39 PM #55
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bmroozia,

Welcome to NeuroTalk. I am assuming that you suffered a head impact. You don't say specifically.

If you would like to discuss you situation, I suggest you tell us a bit about yourself, your injury, and the symptoms you are struggling with.

What complaints did you mention to your doctor?

What testing has he done?

There are lots of good people with excellent understanding of PCS here.

My best to you.
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Old 04-11-2012, 07:25 PM #56
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Quote:
Originally Posted by iggle24 View Post
Hello all,

For two months now I have been dealing with what I now suspect to be post concussion syndrome. Prior to reading many of the threads on this forum I wasn't even aware that some people suffer long term effects from minor head injuries.

2 months ago I was horsing around with some friends when I fell and hit the back of my head. It hurt considerably...but as there was no loss of consciousness or naseau vomiting (all of which happened for my sister when she suffered a concussion) I just assumed it was like any other time I've bumped my head in my life and moved on from it. That night I went out and got drunk with friends. The next morning I woke up feeling awful with a nasty hangover, which I thought odd since I tolerate alcohol very well and never get hangovers. Later that night I started feeling sick like I had to throw up but never actually did...I would have passed this off as a simple stomach bug if it weren't for an uncomfortable feeling in my chest and heart palpitations...this concerned me as ive never been able to feel my heart like this without strenuous exercise so I went to see my doctor the next day and after an EKG and blood test came back normal he told me it was probably anxiety and sent me on my way.

Well over the next week or two I started experiencing extreme sleep disruption where id wake up 1.5 hours after falling asleep with racing heart and feeling of intense dread. I also felt sort of spacy when I was awake like I wasn't emotionally connected with the people around me. My bowel movements went haywire...I experienced sexual dysfunction for the first time in my life...basically my body was going haywire and combined with the lack of sleep and fact that I was trying to study for an exam in the midst of all this I felt that I was having a nervous breakdown....though for the life of me I could not comprehend why this would be happening to me.

I went back to the doctor to tell him about the new strange symptoms and he once again said it was anxiety (based on the normal blood test) and sent me on my way with an ambien prescription to help me sleep (which did not help).

At about the two week mark the anxiety lowered and my sleep improved a slight bit to where I could sleep for a bit longer at a time and i didnt feel panicked when I woke up...I thought this was a sign that I was recovering but the feeling of cloudiness persisted during the day and everything still felt dreamlike. Now 2 months later the following symptoms persist ...

-loss of appetite
-heart palpitations (not constant..usually present when I lay down to go to sleep)
-cloudy feeling in head...some say brain fog
-derealization (most noticeable when outside...frustrating symptom as it has made social situations awkward whereas I am normally an extroverted individual)
-lack of ability to concentrate
-insomnia(truly the most frustrating symptom...getting into bed just feels different...body is unable to relax...I miss the way it used to feel crawling into bed after a long day)
-reduced libido
-cold hands/feet/nose
-muscle twitches throughouts legs and arms
-slight ear pain/pressure
-some tinnitus when things are quiet
-fatigue
-light sensitivity


Strangely I am only experiencing very minor headaches that don't even really bother me at all. This factor is causing me some residual doubt over whether what I'm going through is actually post concussion syndrome.

I am truly lost and overwhelmed with this sudden ****-storm that life has thrown at me. This has truly been the worst experience I have ever had and the scary part is that I don't see an end in sight. All of the joy has been sucked out of my life...I feel as if I have been stripped of my personalit. In 2 months I have rapidly transformed from a happy healthy optimistic 24 year old to an absolute neurotic wreck. I wanted a physical diagnosis so badly for what I was experiencing just so I could reassure myself that I am not going insane but now the prospect of permanent brain damage seems just as scary.

I have seen many people on here make the comment about how frustrating it can be to not have people be able to understand what you are going through and let me tell you that I sympathize with you whole heartedly. I called my parents crying telling them about what I was going through and they both think that there is something that I'm not telling them. They keep trying to guess reasons why I'm acting the way I am. Recently I went home for a week and they think that because I can walk and talk and look normal that there is nothing wrong with me. They think that I have just all of a sudden turned into some weak person who can't handle stress.

I can't tell if I have been affected by this cognitively or not. I feel mentally slower but I have been able to pass two exams in the midst of this crisis. I am a medical student and fear that these problems are going to affect my ability to perform. I have a very important exam several months from now that I am supposed to be spending the majority of my time studying for and instead I am completely consumed by thoughts about how I feel throughout the day. Without going too far into my personal life I have a very, very strong reason not to take time off from school to deal with this issue so I intend to mentally push through it and hope for recovery. On the other hand I fear from what I've read on some of these threads that I may be ruining my chance at a full recovery if I continue trying to live my life normally. I already believe that drinking heavily the day after injury and the anxiety over my health has made this thing worse. Is full rest really nessecary for a full recovery?

I also would appreciate any advice on tests that I should get done. As I am a broke student I need the most cost efficient medical tests to aid in identifying any fixable problems. I am thinking now that I should get to a neurologist and an endocrinologist. I definitely want to get my hormones checked...I should probably get an MRI done though I doubt it will show anything at this point.


Most importantly...I need advice on how best to approach this topic with my parents so that they might better understand what I'm going through. I'm not searching for pity...just having them believe that their is something wrong would help at this point. I go to school on the other side of the country and live alone and I don't know how to cope with this without some social support. I appreciate you all listening to my story as well as any advice that anyone might have.










OK. so im 15 and i got a minor concussion in hockey and nothing was wrong honestly i dont even know if i got one. i got hit and had headaches every few days but that could of been from sinus's and id take head medicine. about 3 weeks after that i smoked a joint with a friend one of my first times in a year i dont smoke i just wantd to prove to him i have the balls to so i did. i tripped really bad that day and got home my parents knew they told me to sleep my dad being a drug agent helped and the next day i was still having a weed hangover no big deal. 2 days later i was fine. now i was fine for about 2 weeks then i hit someonme in hockey got a bad headache and got dizzy . then i never stopped playing and 2 weeks after that i would have like an hour phase where i would get light headed and stuff and i would tell my parents they would say jut rest for a few minutes i did and it went away. then all of a sudden one day during school i got the feeling badly. it went away within 2 hours and then not realizing that nwas the feeling of a concussion i went out and played basketball and after i played i got home i was watching a show with my family and then boom it hit me again. i told my mom i was a nervous reck i thought it was from the weed that my body kept getting a high feeling at random times and my mom insinuated it was a concussion. i went to the doctors the next day after waking up with the feeling and was diagnosed with post concussion syndrome. for 2 weeks i couldnt go to school then i was able to go again. i still didnt feel good when i went but good enough to attend it. a month and a half prior to the day were it hit me bad the boom day lol i would get derealization and it went away after two days even though my regular concussion symptoms was still their of being dazed out. now its 2 months after and yesterday i got derealization bad after reading that the weed could of permenantly hurt my brain. now its night time and the feeling hasnt gone away ive been crying alot lately , which is uncommon cause i usually dont cry im a tough 15 year old with an older brother and a great family. my dad had a heart problem and stressed bad me and my dads worst enemy is our minds beacuse when we get a thought we stress about ti and cant get it off which can be good to sports related since were great athletes. My Question to you guys is do you think its PCS that brought on anciety to lead to the Derealization or does the weed have an effect (marijuana) my dad is a drug agent and said after 30 days it leaves my body and its not that which i do agree beacuse days after i smoked i was fine i figured if it was that i would of been bad right then and their that day for then on which isnt the case. And also please if you reply dont tell me you had derealization and this stuff for years and years because im easily scared about this and telling me its not healing or permananatly makes me panic alot more. HELp
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Old 04-11-2012, 08:51 PM #57
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Marijuana doesnt damage your brain the first time you do it..a year ago i smoked half an ounce with friends every weekend for the entire weekend until i stopped for about 2 months. I ended up going back to it and like you did, had a really bad trip.
I panicked and ended up thinking my heart was beating way to fast and almost walked myself to the hospital but come to find out, i started getting allergic to it.

I didnt know it at the time but i tried again a month later and the same thing happened.
As far as i know you have to smoke quite a bit before it damages your brain, you're getting the idea that it might the marijuana thats causing you to have anxiety because, you panicked the last time you smoked.

Derealization is a common symptom of anxiety and anxiety is a most definitely a common symptom of PCS.
Trust me my first week of PCS was terrible, i had the same symptoms you did, i was scaring myself for 3 days straight and had bad insomnia for the first 3 days.
Just know that Concussions can trigger anxiety and attacks, i've had a few attacks since the incident and it was because i was doing exactly what you're doing. Worrying to much.

Just chill out a little bit, DO NOT GO SEARCHING around on the internet for things that might be wrong with you, you're only going to make your anxiety worse.
The best way to approach anxiety is, know that its there and ignore it, be okay with it.
Brain injuries take awhile to heal, the symptoms may come and go and one day you might wake up and come to a full recovery. Just relax and get some rest.
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Old 11-25-2013, 10:49 AM #58
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iggle24 - I'm hoping you can provide some feedback as this thread is dated a couple years back. I can relate to your story, I am feeling the exact same way. (minus the sleep problems) I'm a pretty health 24 year old. I whiplashed and hit the back of my head playing rugby about a month ago. A few hours after the injury I started to feel a little better. I went out that night and had drinks with friends. I woke up feeling foggy and pretty hungover (also have a high tolerance to alcohol and normally wouldn't feel this way)... This was a month ago, I've recently had an MRI which came back fine and seen a neurologist who said I should be fine within 1-2 weeks (it doesn't seem like I will be). My symptoms are:
  • Intolerant to loud noise
  • Intolerant to alcohol
  • Minor headache that I can deal with, it's constant though anytime I get up and move around
  • The derealization feeling is awful
  • Nervousness on how long this will take
  • Keep looking at the calendar thinking I will be okay by a certain day and watching it pass causes false hope

I don't know where to go from here. I have been continuing to work. I'm in IT and don't have to talk to many people during the day. I just look at a computer screen for a long time.. it doesn't seem to bother me or cause my symptoms to flare up. I don't have many issues with memory and can solve problems pretty well still.

I understand that alcohol and trying to exercise has set me back. So I have stopped doing both of those things and have just relaxed the past 2 weeks. My symptoms aren't terrible, they are just enough to keep me from doing anything fun. I literally sit in my apartment and it drives me crazy. I'm planning on taking Thanksgiving to rest and take some time away from work.

How long did this last? Are you feeling better now? Has your life gotten back to where it was before the injury? What were the things that you did to help you recover? What were the things that you did that hindered your recovery? Did you end up pushing through your studies? Any help is appreciated, I'm happy I found this forum (mainly for my sanity)

Thanks
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Old 03-10-2014, 03:29 PM #59
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"-derealization (most noticeable when outside...frustrating symptom as it has made social situations awkward whereas I am normally an extroverted individual)"

I too, felt this as one of my symptoms after falling 4 1/2 months ago . . . I saw an osteopath for the first time last week and this feeling is gone. I feel normal again.
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Old 03-15-2014, 10:26 AM #60
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Just want to thank you all for contributing to this thread. I too am 24 years old experiencing PCS/acute stress disorder after a concussion to the center back of my head with almost identical symptoms to OP, but am only three weeks post injury. The worst symptoms are insomnia, anxiety attacks during sleep and when I'm tired, and occasional fogginess/derealization (fortunately I have good stretches of several hours where the latter feelings are gone). I would love to hear a follow-up from any of you guys to give me some hope for recovery.
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