Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 12-20-2011, 04:57 PM #1
ClumsyCharlie ClumsyCharlie is offline
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ClumsyCharlie ClumsyCharlie is offline
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Hey, I know exactly how your mother feels, I've had PCS for 2 months and I'm suffering greatly with noise sensitivity. When our phone rings, which is just the same pitch and loudness as before, feels incredibly painful, as if someone stabbing a pickaxe through my head would be more pleasurable than the screech of the ringing phone.
Ear plugs are a fantastic suggestion, I'm about to get some for myself, as I struggle to deal with everyday sounds such as the tv or people talking. Also suggest she rests for a couple of hours, in darkness, for an hour or so most days. It really helps me feel more refreshed, alive and tolerate towards noises and lights. (Our christmas tree has flashing lights which result in horrible headaches)
I can sympathise with you and your mother with you father for not understanding. My family are still reluctant to accept that I have PCS and are finding it hard to adjust to my condition. But it's not that they don't understand, they're trying to cope in their on way, it's hard for them too, maybe your dad just needs some help expressing how it's affecting him. Because PCS does affect everyone, and it's scary to watch someone you love suffering, and feeling helpless... you know that...
I hope your mother recovers quickly, good luck
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Old 12-20-2011, 05:38 PM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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I think many family and friends who do not understand PCS do so out of a "What you say can't be true" mentality. When they decide to truly listen and accept the PCS sufferers description as reality, they will make light year leaps in understanding PCS. Often times, the PCS sufferer does not fully understand their own symptoms in a way that can be explained to others. This is where the TBI Survival Guide and the YouTube Videos "You Look Great" by John Byler can make a difference.

Achieving understanding of PCS takes effort and a willingness to listen to new ideas. Ego, stubbornness, and 'Just buck up and get over it' attitudes will work against the PCS sufferer. Even doctors and other professionals often have these detrimental attitudes.
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