Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-20-2012, 02:52 PM #1
worried_mom worried_mom is offline
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Join Date: Jan 2012
Posts: 52
10 yr Member
worried_mom worried_mom is offline
Junior Member
 
Join Date: Jan 2012
Posts: 52
10 yr Member
Default is this "normal" and what works?

Let me start by saying I'm very glad to have found this place!

My 14 y/0 son suffered a severe concussion from being speared head-to-head in football practice on October 7th. He never lost consciousness, but started wandering around talking to himself.

Days 1-3 he seemed very dazed, but overall OK. Days 3-14, he progressively got worse. Sensitivity to light, sound, touch, couldn't sleep, very slow to respond verbally, slurring of words, short term memory loss. We spent 6 weeks in the complete dark at home, no lights/curtains drawn at all times.

He saw urgent care dr, pediatrician, then a sports doctor. Had MRI and CT, showed no bleeding. At 3 weeks, he took the ImPACT test and scored 1% with symptom score of 78.

He has seen dr and taken that test every 2 weeks since. He passes now with flying colors! BUT symptoms are still high. He missed over 3 months of school. He just started back three hours per day.

At 6 weeks doctor put him on Amitriptyline for sleeping, because he couldn't sleep more than two hours per day. We've tried taking him off twice, but he can't sleep and about day three he gets incoherent.

He still feels tired after sleeping 10 hrs, some stumbling to find words, can't remember most of math (which was his strength before), still struggles to find the right words/name sometimes, loss of coordination, slow response to pain stimuli, easily startled, and the headaches.

His headaches are predictable. Reading causes the back of his head to hurt. Reading more than one page causes the white page to turn green and red then black. Focusing on a teacher causes hot or cold spots on front top of head that tingle. The only cure for these are to sleep.

Any pain medication makes him lose memory of that time.

No neurologist wants to see him. He goes today for another CT to recheck, since it's been 3.5 months. Doctor is concerned, but keeps saying "just wait"

Does this sound familiar? Any ideas? Would've been easier for me as mom if he'd broken both arms and both legs!
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