Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-06-2013, 10:58 PM #11
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Originally Posted by SpaceCadet View Post
Normal?

When I wake up...almost every morning...a few different things can happen. I'll either wake up feeling like im in a dream, wake up kind of delirious and have strange thoughts or I will wake up sort of confused or just weird. Sometimes I won't remember what I did the day before.

It takes me about 5-10 min to get my bearings....but it takes longer (2-3 hours) before I can actually talk to someone. I'm sure the injured brain takes awhile to boot up in the morning...just wondering if anyone experiences something similar.

Thanks!

hey bra,

yea i experiecne odd symptoms in the morning. I used to get the shakes. really bad ones in the morning, followed with terrible thoughts and then a headache. If i didnt get the shakes I would just get the feeling of 'something being not right'. I do not get the shakes anymore, i just feel a little spacd out and have bad thoughts. This may be because most often anxiety is worse in the morning. I am 5 months post injury and 4 months into symptoms.

How are you doing mate>?
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Old 01-08-2013, 09:14 PM #12
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ditto.... Sometimes when i wake up i feel like i got blackout drunk the night prior (without drinking), that confused surreal state of mind looking around like everything is new to my brain its strange. I definitely am not even remotely productive until after 2pm
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**KRISTARA**
Let the sun shine and everything will be fine

Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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Old 01-08-2013, 09:35 PM #13
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Originally Posted by SpaceCadet View Post
, I'll wake up feeling normal, have breakfast and start to get ready for the day and then slowly but surely my symptoms will start to become noticeable.
That's how I feel most days. It usually becomes especially unbearable after lunch, but often eases up around 7 or 8 pm. Not tonight, though!

I'm feeling the same way about my responsibilities. I often feel bad for my son. When he was a baby (he is six now), before I started feeling terrible every day, I was such a good mother. Although I still make sure to play with him every night, my heart usually isn't in it anymore because I can't focus. Some days I have to just lay down when I get home because I just can't function anymore.

But, I always get through it! It's not always easy and not always fun, and I definitely feel guilty at times knowing that I am not the parent I used to be. On the other hand, I know that I love him to pieces, and he still has a great life. Even if it's difficult, I still spend time with him. It might just be some board games, puzzles, or something else where I can rest and interact simultaneously, but I do what I can.

I think the fact that you are so concerned says a lot. I have unfortunately known quite a few parents who wouldn't even care (and they have nothing wrong with them!) because it's all about them. You did not ask for this to happen to you. As long as you are well enough to keep your son safe, I think that he will be fine with what you are able to give him.
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Old 01-08-2013, 09:45 PM #14
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Kristara,

I think we could safely nickname you "Crash Test Dummy" lol. It sounds like you've been through a lot, just by reading your signature. Hope you don't take offense to it; I'm only pullin your leg.

You can call me a punching bag or something cuz I got my ### beat. Bwahaha.

How you been lately?
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-08-2013, 10:30 PM #15
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LOL nice... crash test dummy i shall be....
ive been overall ok ups n downs as usual, seeing a new doc on the 14th suppose to be a 'headache specialist' or something of the sort but we'll see i suppose... hopefully they're worth a damn but my expectations are pretty low for all doctors these days.

How have you been
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Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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Old 01-08-2013, 11:10 PM #16
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Mornings are awful for me too. I dread them. Coffee helps, even though it is supposed to be bad for mtbi (is it?!). It feels like the longest hangover. And none of the fun of a good party the night before!
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Old 01-09-2013, 04:54 AM #17
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Does anyone get a little nauseous in the morning and a little dizzy? That's what I experience. Its awful. And the worst part my neck feels awful along with my head. Ugh...
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Old 03-26-2013, 03:04 AM #18
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Hey, I'm new here (I actually signed up specifically to replay to this thread) and I have been dealing with these same symptoms for a some now, waking up feeling delirious, out of my mind, or what have you. Now, I am only 17 and I don't quite know if I have TBI or PCS but, a while back I was jumped by several kids and a couple of them had bats, when it happened, I can only remember them coming up to me and starting to rough me up, the next thing I new I was walking down my street, gushing blood from my head. My step dad is an EMT so he stitched up my head and told me to take it easy. I have not been to the ER or had any kind of examination since long before that incident, even though I have fought with my parents to take me before they cant because we don't have the money and im not on medi-cal.

It seems like every day it gets worse, don't get me started on the "brain tingles". I used to be able to read very fluently, now I stutter through the simplest of sentences. I used to type 120 words a minute, now I struggle through it at 10-15 words a minute and im sure that if my Chrome didn't have spell check built in, this whole post would be a bunch of garbage. I used to love music and practiced my drumming daily, now I can't stand to listen to any thing even if its playing softly, even right now, the sound of my computer fan is making my head screech. I also find it VERY hard to find the correct words to place in my sentences I am saying, my friend remarks about it all the time. Im sure he knows there is something wrong with me, I never used to "uuhhhhhmmmm, uuhhhhhh, F#$@! ugh, what was I thinking about?! uhhhhh" before. (Just so you know, I am not a user of any type of mind altering substance, people have tried to tell me "Oh, its cus you smoke too much pot you stoner!" but I've only smoked it once in my life and I don't think thats enough to cause that much damage to the brain)

I want help but I know of no where else to turn, my parents absolutely REFUSE to accept the fact that I am not ok, I tell them everyday "you know, I don't feel like im right in the head" and they wont do anything about it. They just look at me like im crazy. I feel like they aren't listening to me, they just act like im guaranteed to be ok cus I was able to walk home after that incident, I dont even remember how long I was out, they could have beat on my unconscious body for an hour for all I know.

Well, anyways. I posted here cus I felt like everyone here would relate the most to my story and be able to steer me in the right direction for some help.
thank you,
Alex
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Old 03-26-2013, 04:04 AM #19
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Alex,

Welcome to NeuroTalk. It sure sounds like you symptoms are from a concussion. There is not a lot the doctors can do. You need to get quiet rest so your brain can have a break from the over-stimulation so it can heal.

Check out the Vitamins thread. It will help you get good nutrition to your brain.

What is you day like ? Are you in school ? Study stress can be a problem.

Did you report the assault ? California has a Victims fund that can help injured victims. Was this maybe a "Knock-out Game" assault ?

It might be worth starting your own thread. You will get lost posting to a thread that is from January. Just copy and paste your post to a new thread.
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Old 03-26-2013, 11:18 AM #20
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Hi Guys,
You are not alone. I also have these same issues going on. My doctor told me this weird feeling is called disassociation. I hate it. It is the worst feeling ever. There is no way that I could take care of a kid. I am so grateful my daughter is 21 now. I feel for you all that are struggling to take care of your children with this condition.
I feel as if I kind of am a child myself again. I am not able to be independent in some areas. I mean if my mom was not helping me and I was not back living at my parents, I would have to live in one of those assisted living places. Not the nursing home type but the type that gives you your medication, cooks meals for you, provides transportation and checks on you throughout the day.
Space cadet, I know exactly what you mean when you say- you just bought a new car that needs repairs and are struggling with even calling him and explaining what needs to be done and getting him over to take care of it. What I have discovered is that I have like a 2-3 hour window of time during the day that I can actually get things done, handle business, phone calls, people etc. after that I am done. Need to sleep to reset my brain.
I am so tired and fed up with this brain damage.
Brain
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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