Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-15-2012, 09:45 AM #11
JulieRN JulieRN is offline
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First, and foremost, I can not thank all of your for your responses enough...thank you

I made my way to my treadmill, 2 miles later I felt good...showered and ate lunch and then brought cupcakes to my Son's fifth grade class. OK, I was worried about how exercising and the gym were going to impact me, silly girl...my Son's class was my demise lol!!!

17 fifth grade kids, on Valentine's Day...and there is SUGAR everywhere!! His Teacher is a SAINT...she was finishing up a Math lesson when I arrived and I was SO disappointed at what I saw...(I'm from the "old school" lol..at 45?!) She is standing at the blackboard showing the kids how to figure ratio and several kids are talking; one gets up and randomly walks around the room. I had a REALLY hard time paying attention to what she was saying...I now know why my Son is so "distracted" during class...there is no order

I was EXHAUSTED when I got home...we ordered take out and had a quiet evening...my plans are to do nothing today

Every day is so different for me, I guess that is what I'm having difficulty dealing with. What works one day, isn't even a consideration on another. I'm trying to just listen to my body but at the same time, not give "in" to the point that I do myself more harm than good.

The support from this forum keeps me going...I'm less anxious and feel more at peace with the changes...

Still waiting on the Neuropsych report...very anxious to speak with a psychologist...I know it will help me put things in to perspective...
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July 21, 2010, one month after starting my new job I sustained a concussion after standing up quickly from a sqatting position and subsequently being impaled by the corner of a metal filing cabinet in to the left side of my skull. Dx. Post Concussive Syndrome.

Female, 45 years young
.
Mom of 3 boys (22,19,10)..Registered Nurse 16 years
.


Symptoms: Vertigo, difficulty concentrating, unable to multitask, fatigue, severe transient headaches..severity and location change frequently, anxiety, PTSD, tinnitus, "electrical like sensations" across the top of my head, "hot flashes", numbness and coolness to hands (worsens in A/C), very poor recall ability, processing and comprehension, difficulty finding words and completing thoughts, short term memory is awful.

~I will never give up on myself~

~I run because I can. When I get tired, I remember those who can't run, what they'd give to have this simple gift I take for granted, and I run harder for them...I know they would do the same for me <3
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Old 02-15-2012, 09:57 AM #12
ginnie ginnie is offline
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Default Hi Julie

I just read your latest post. I was old schooled just like you. I am the 50's and we had dominican nuns that beat your hand with a ruler if you didn't pay attention. I remember absolute quiet in the classroom. Maybe the old way is better! I hope you are having a better day Julie. I had to bring in my cat to the Vet today. Even with beauiful weather outside, I still like being home. Take care, ginnie
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Old 02-15-2012, 08:38 PM #13
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JulieRN, be careful that in protecting yourself from overstimulation that you don't isolate too much. That's what I have done and I became even more depressed. And the more depressed I became, the more I isolated myself and the lower my confidence dropped.

I know what you mean when you say that you don't know what you can do day to day. I'm very lucky in that I have a friend who I can generally contact spur of the moment to go for a coffee. That way, I don't have to plan it ahead but can go when I feel like it. This has helped me a whole lot! I hate to plan anything because I don't know how I am going to feel.

It's such a difficult balancing act, isn't it! I'm naturally extroverted and I was very very active and social prior to Oct, 2009. Now I feel like the overstimulation has forced me to be introverted. Especially when my speech problems kick in. Then I really don't want to talk to anyone.

Mark had excellent suggestions which I incorporated this past summer - sunglasses and earplugs! They are a must to have with you at all times! I purchased some of the safety glasses that wrap around and sit right against my face and I find that to be so beneficial - the light coming in the top & sides sometimes bothers me. The safety glasses can be adjusted up or down and they were under $10!

I like the suggestion of a "quick escape". Going to incorporate that one into my life for sure!

Soccergal
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Female, 44 years old. Several concussions over the years - the first was most severe (kicked by horse), recovered well. Last 2 concussions Oct, 2009 and were two weeks apart. I attempted to return to working 12 hrs/wk (working from home), but was unsuccessful. Currently applying for medical disability.

Primary Symptoms: dizziness, light & sound sensitivity, confusion, difficulty focusing attention, headaches, depression, exteme fatigue, some insomnia and occassional speach problems - stammer, halted speach as I try to find the word or thought and using incorrect words. Trouble focusing on conversation if there is other noise around - especially other conversations.

.
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Old 02-15-2012, 09:10 PM #14
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Yes, I have become a bit of a hermit as well. I also have been working two jobs from home for some years before the TBI, though. But now pain levels determine whether I go out. And risk of an accident causing more pain.

Maybe try not to skip a special event you're looking forward to unless you're really feeling bad. I regret an event I skipped when the pain was worse. Then again, maybe it would've been too much.
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Old 02-16-2012, 09:06 AM #15
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Quote:
Originally Posted by ginnie View Post
I just read your latest post. I was old schooled just like you. I am the 50's and we had dominican nuns that beat your hand with a ruler if you didn't pay attention. I remember absolute quiet in the classroom. Maybe the old way is better! I hope you are having a better day Julie. I had to bring in my cat to the Vet today. Even with beauiful weather outside, I still like being home. Take care, ginnie
Yesterday was one of the best days I have had in a very long time. Not physically (I have been feeling EXHAUSTED lately), but cognitively. I had a long conversation with my Atty. on the phone, felt I was able to speak "intellectually"...then again, had a conversation with my 21 year old after and he told me I wasn't finishing "not one sentence"...I ramble alot..

I hope your cat is ok...I LOVE my cats to pieces, I've always been a HUGE cat lover lol!! We are having THE strangest New England Winter I've seen in my lifetime...very mild!

My Son is off from school starting tomorrow and doesn't return until next Wed. I am SO excited that I'll be able to "sleep in"...and am grateful he doesn't really want to DO anything during his time off...

Thank you for your support Ginnie...))
__________________

July 21, 2010, one month after starting my new job I sustained a concussion after standing up quickly from a sqatting position and subsequently being impaled by the corner of a metal filing cabinet in to the left side of my skull. Dx. Post Concussive Syndrome.

Female, 45 years young
.
Mom of 3 boys (22,19,10)..Registered Nurse 16 years
.


Symptoms: Vertigo, difficulty concentrating, unable to multitask, fatigue, severe transient headaches..severity and location change frequently, anxiety, PTSD, tinnitus, "electrical like sensations" across the top of my head, "hot flashes", numbness and coolness to hands (worsens in A/C), very poor recall ability, processing and comprehension, difficulty finding words and completing thoughts, short term memory is awful.

~I will never give up on myself~

~I run because I can. When I get tired, I remember those who can't run, what they'd give to have this simple gift I take for granted, and I run harder for them...I know they would do the same for me <3
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Old 02-16-2012, 09:33 AM #16
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One of the problems my wife observed when she did some test proctoring in the local public schools was classrooms with far to much visual clutter at the front of the class. Behavior and class discipline aside, the visual overload when trying to follow what the teacher is doing at the black board (white board in some schools) explains why there are so many ADHD diagnosis.

It is like a newsletter edited by someone with 50 new fonts in their desktop publishing software. There is a new font used for every article and tid-bit. Just because the teacher has all of this wall space to put visual clutter, it does not mean she should clutter up the view.

It says a lot for the value of uniforms and the stricter discipline used in most uniform schools.

I can't imagine a student with PCS trying to focus in such a classroom.
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Old 02-17-2012, 04:54 PM #17
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Quote:
Originally Posted by JulieRN View Post
I can't go. I just can't. And I can't explain WHY, other than I just can. not.
I want to go, but can't. Reading this doesn't even make sense to me. It's completely how I FEEL though.
I have felt similarly many times, about many things. I too tried to rationalise it in terms of symptoms, but it never quite added up - the worsening of symptoms from any given activity was often not bad enough to justify just how badly I DIDN'T WANT to do that thing.

I've been doing a lot of reading now that I'm well enough to do so, and came across a discussion of 'loss of executive function' as being very common following TBI. This is essentially a 'loss of ability to engage in purposeful activity' and can manifest as lack of motivation as well as problems with attention ie sticking to a task. It seems to basically be a mindset that makes you not want to do anything that is remotely difficult.

It came as a shock to me that I would have suffered from this as it feels kind of worse than my other symptoms, more of a change in who I am than just another bit of pain and discomfort. But I'm certain I had, and to an extent still have this symptom, and it sounds like you do too. It is common and should pass. Good luck!
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Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
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Old 10-03-2012, 09:36 PM #18
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This is how I feel!
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Old 10-03-2012, 10:59 PM #19
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ericalou,

Welcome to NeuroTalk. As your posts have commented, you have found a good place.

Please feel free to introduce yourself. Tell us how we can be of help or support.

To help you understand how this forum works, The top three threads are stickies. They stay in the top three placement. We try to not discuss these posts since they are resources. There is a Thank You button to leave a simple acknowledgement of a post, both in the stickies and in the discussion threads. There is a date above the last posters screen name that shows the last time the thread was active. This thread was last active by Klaus on Feb 17, 2012.

Feel free to start your own thread if you do not see a thread that discusses your question. Use the New Thread button in the upper left to start a New Thread. The New Thread button is only available on the index page http://neurotalk.psychcentral.com/forum92.html

My best to you.
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