Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 02-14-2012, 05:02 PM #1
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Yes, there is little correlation between "severity" of the injury and severity or duration of the symptoms. I have talked to several professionals who indicate that people who have "little bumps" often have very painful and/or enduring symptoms.

The symptoms you describe sound very much like my post-concussion symptom progression, including the increased anxiety.

Sorry to hear you're suffering. Glad you found us here, though! Best wishes for a speedy recovery!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

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Eowyn Rides Again: My Journey Back from Concussion

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Old 02-14-2012, 10:47 PM #2
Mark in Idaho Mark in Idaho is offline
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Dalton,

Welcome to NeuroTalk. Sorry to hear of your recent experiences.

What you describe all can be due to a concussion. Add a predisposition to anxiety and you get a double whammy.

The concussion was on the basketball court. The snowboarding added to the concussion with sub-concussive impacts. Any time a concussed brain is shaken, it can act like a new concussion and make the symptoms worse.

To define you, I'd call you a cyber-chondriac. That is a hypochondriac who self-diagnoses from online (cyber) information.

A brain tumor will usually manifest with focal symptoms related to the specific area of the tumor. Your symptoms sound more global as in diffuse axonal injury. This is a subtle injury or stress to thousands of fine connections between brain cells.

I assume that your are a guy (Dalton) but your age may also play a part in your symptoms.
How old are you?
Have you played any contact sports or soccer?
Any prior concussions?

And, forget about the brain tumor. You are more likely to get struck by lightning than have a brain tumor from the symptoms you describe.

Anxiety is the enemy when recovering from a concussion. You need help with your anxiety besides the Xanax. I am concerned that you are taking a benzo (Xanax) while trying to recover from a brain injury. Your brain is already struggling and sedating your brain will not help it heal.

Do you drink any caffeinated drinks? coffee, tea, energy drinks?

You need to stop if you do.

Keep us informed how you are doing. We are here for you.

My best to you.
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Old 02-15-2012, 12:01 AM #3
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Thank you both for your kind words. I am 20 years old and I have never been diagnosed with a concussion but have hit my head plenty of times I'm sure. Just never any lasting symptoms. For example, I hit my head earlier in 2011 (late summer-beginning of fall) while rising up from a bent over position and struck a metal beam right above me at work. It hurt like hell for a few minutes but I took some ibuprofen and never had any problems after that. I don't drink coffee, etc at all.

I do understand your concern about the Xanax sedating my brain because my initial physician did seem to mention that he felt reluctant to prescribe something like that because of the uncertainty of my head. When I went to the psychiatrist, she seemed more concerned about assuming me being an anxious person in my life prior to this incident. She suggested that the concussion+recent stress manifested have resulted in an increase in an already present anxiety.

I never wanted to be medicated at first but I felt compelled to have 'something' just due to the overwhelming anxiety/panic induced by a belief in any possible 'scenarios'. I will say that I do become more anxious when I am alone/unengaged as opposed to being around my dad or doctor (someone who will listen/calm me down).

Sorry to be a pest but I have a couple more questions/thoughts:

1) I know exactly where I got hit playing basketball...Is it common to have these 'headaches' in many different areas of the head/neck besides just the area of impact?
2) Is it also normal for some days to feel okay for the most part with minor instances of headache and than some days I feel the headache as constant/dull or quick flares in different locations?
3) I can understand the twitching/random quick pains being from anxiety/stress BUT how does my leg issue sound... I really can't think of a term to describe it. The feeling isn't constant but when it does come, it lasts in episodes for a few hours and I just feel like I have to move them or else...

Like you said, the anxiety is a huge enemy right now. I just can't seem to stop doubting that I was feeling fine in mid-late December. Its as if I am minimizing my basketball injury and saying to myself :"That hit couldn't have been enough to warrant a concussion, right?"

Thanks again, I'll be keeping everyone updated
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Old 02-15-2012, 03:15 AM #4
Mark in Idaho Mark in Idaho is offline
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Thanks for you good response. This helps me understand your situation.

Your age means you don't have to worry about the issues of adolescence and concussion.

The caffeine and alcohol are also good answers.

Your history of diagnosed concussions of just one needs to be updated with those head impacts that caused head aches and any other symptoms besides a simple swollen bump. This puts you in the spectrum of Multiple Concussion Syndrome.

There is a concussion specialist back east who suggests keeping record of any and all head impacts. He even suggests that ER doctors note possible concussion in the medical records of any patients who are seen in the ER from falls or other like of trauma. He considers it valuable information for future doctors to consider when PCS like symptoms may manifest.

What this means is your symptoms MAY be more prolonged with a lesser level of recovery. It also puts you at a much greater risk of more damaging head injuries. As concussion count increases, the damage caused by the same or even less intense impacts can be much more problematic.

You need to give very serious consideration to finding a way to resolve your anxiety issues and hypochondria. With your history, anxiety will likely follow you do to the weaknesses your brain has from your concussions. Doctors tend to dismiss patients with concussion like symptoms from what appears to be a minor impact. They frequently label the patient's symptoms psycho-somatic or somatoform. This ends up being a ball and chain that can follow the patient for years.

As far as getting on the road to recovery, there are some basic things to do. Get started on a supplemental vitamin and nutrition regimen. This means a B-50 or B-100 complex, 300 mgs of B-6, 500 to 1000 mcgs of B-12, D3, E, niacin, Omega 3's, folic acid, calcium and magnesium, a strong multi-vitamin like GNC Mega Men's. There are a few others that I forget (brain damaged).

Regarding your questions,

It is very common to go through a roller coaster ride with symptoms. After a while, you will start to notice triggers. Many triggers will not cause an increase in symptoms until the next day. Hard to understand but the truth. We can discuss triggers in a latter post.

The head aches in other areas of your head just mean that your injury was not a focal injury at the point of impact but a diffuse injury or coup contra coup (hit with a rebound hit as the brain bounces inside your skull). The head aches are usually tied to the brain's loss of its ability to regulate blood pressure in the skull. There are also head aches from the upper neck injuries common to concussions (the head bone is connected to the neck bones, hit the head and the neck is impacted by the head). These will usually manifest from behind the ears and move to other parts of the head as tension increases.

The restless feeling in your legs can be connected to the concussion for a myriad of reasons. I need to take an anti-seizure med to help my legs settle down so I can sleep without kicking my wife. Gabapentin (Neurontin) works well for this for me. It is well tolerated with minimal side effect, especially compared to Xanax

Regarding your anxiety and hypochondria, if you arm yourself with complete and accurate information, it is quite possible to exclude the many risks that are often obsessed on. There is a saying in medicine, When you hear hoof beats, think horses, not zebras. The idea is to consider the most common and logical issues (horses) and ignore the extreme or rare issues (zebras) until all the common issues are ruled out.

Understanding your concussion symptoms allows a simple, "Oh rats, I did that and now I have to deal with some symptoms for a bit." Download and print a copy of the TBI Survival Guide at www.tbiguide.com. As you read through it, you will have many 'ah ha' moments. Then, realize that concussions rarely ever kill anyone, and usually only when a second concussion happens within the first three or four weeks of a previous concussion.

So, no basketball or risky activities at all for a few more weeks at least. Even better if you wait until you are completely symptom free for two months. If you develop an excruciating head ache or lose control of your muscles or balance or focus or other extreme symptoms, get to an ER right away. But, that will be a very rare situation, again about as likely as getting struck by lightening. There is not much the doctors can do to help you except prescribe meds for individual symptoms. Amitriptyline (10 mgs) is often prescribed for head aches and insomnia. Propanolol can be used as an anti-anxiety med. It is fast acting and easier on the brain and body that benzos like Xanax.

There are lots of trick you can use to help tolerate your symptoms. Tell us about your worst and we can help you with them.

There, I gave you the full flow fire hose treatment. Print this post out so you can read it later and show your parents.

And, get some quiet rest.

My best to you.
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Old 02-15-2012, 09:11 AM #5
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Wow, thanks again. Sorry about double posting; I didn't know the first had went through. You mention the horse/zebra and psychosomatic topics and I think these may be playing a large role in my anxiety. I'm the type of person who needs all the information available so I think hopefully having a CT scan and an MRI (if needed) will do a lot towards reducing my anxiety (assuming the results confirm I have no serious illness).
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Old 02-15-2012, 12:13 PM #6
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You may also want to ask about something like Prozac for anxiety. I was on it before my concussion, and increasing my dose afterwards helped with the increased anxiety I was experiencing.

I also have the restless leg feeling off and on, especially when I am lying down and trying to go to sleep. I think it is just part of your nervous system being a little haywire. I also have random arm twitch/jump things sometimes.
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 02-15-2012, 05:43 PM #7
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Yeah the leg feelings are truly hard to explain. Its almost like a dull soreness that requires motion to satisfy the feeling.

EDIT: These feeling occur mostly below the knees and in the back of the legs wheres calves/muscles are.

Last edited by Dalton; 02-15-2012 at 07:19 PM.
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Old 02-16-2012, 12:08 AM #8
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Quote:
Originally Posted by Dalton View Post
Yeah the leg feelings are truly hard to explain. Its almost like a dull soreness that requires motion to satisfy the feeling.

EDIT: These feeling occur mostly below the knees and in the back of the legs wheres calves/muscles are.
Dalton,

Welcome to NeuroTalk.

It looks like your already getting some help.

I just wanted to drop in and let you know I get the same feeling you describe in my legs. It actually happens in my arms too. This happened before the injury but it happened even more after the injury. When you move, kinda stretch the muscle or flex it you'll satisfy the feeling, correct? If so, I've got the same thing going on. Not sure what it is...I've always wondered myself.

Best of luck to you, bro.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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