[HopeGirl]

So...I thought about PCS proofing my house. Kinda like how you baby proof your house for kids...

What would be great advise for PCS proofing. PCS patients, can you share with me some things that would make life around the house easier for my PCS hubs?

[Eowyn]

First thing that comes to my mind...

Move TV, radio, video games (anything loud or visually stimulating) OUT of shared family areas or turn them off most of the time so DH can be with the family without having his brain assaulted. My MIL (who was dying of cancer) had the TV on in the living room all the time. I understood that it was a good way for her to pass the time, but it ended up restricting me to my bedroom. I couldn't spend much time with the family.

Will think about it more and post back...

[Eowyn]

Okay, have been giving this more thought:

1) As stated above, have some TV/stim-free time in the main household so he can be out and about with everybody else

2) Also, have a quiet, dark place where he can go so everybody else can have some "normal" time in the rest of the house. This should be a room where he can be relatively closed off. For me, it was my bedroom. We have light-blocking shades, it is fairly soundproof (good earplugs also help), and I knew no one would bother me while I was in there. I got extra pillows as needed so I could sit or lie comfortably for long periods of time and just rest. I stocked up on meditation podcasts, nature sounds (rain falling), and other things that I could do to pass the time without hurting my brain. It was my little recovery cave.

3) You mentioned that you need to be around in case he "needs something." What kinds of things is he needing from you? Are these predictable things? Can you build them into a routine so that he is getting them on a regular basis and then you can have some more freedom through the rest of the day? For me, there was very little I needed "on demand" as long as I had my meds, my recovery supplies, and water, etc. nearby. Of course I needed meals and so forth on a regular basis, but that should be a fairly simple matter to plan.

Hope these ideas help. What other kinds of symptoms or complaints is your husband having?

[GlassHead]

I have put cushions up against the wall in my bed so I donīt accidentally bump into it in my sleep.

I also bought floor mats to my bathroom so i donīt slip and risk jerking my head.

In the beginning when I used my computer i turned the brightness all the way down making it easier for me to watch the screen. Now I use F.lux instead which changes the screen colors to warmer tones.

I also bought some nice soft slippers so it didnīt hurt so much in my head when I walked around on a hard floor.

-Glasshead