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Old 06-01-2015, 10:07 PM #5
Sabrinaj Sabrinaj is offline
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Join Date: Jun 2015
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8 yr Member
Sabrinaj Sabrinaj is offline
New Member
 
Join Date: Jun 2015
Posts: 1
8 yr Member
Default Having severe photophobia please help!

Hello. My fiancée suffered a corneal flash burn about a year ago and his photophobia has only gotten progressively worse. We have found that he can be out in light once he becomes accustomed to it and even then activity is extremely limited. He sits outside looking at plants while wearing polarized glasses, and a large towel that covers his head to block out peripheral vision as well. He has a major pain, like sharp stings in the eyes, when exposed to unexpected bright light, or when he moves his eyes too quickly in a bright area. He also cannot stand contrast light, ie reflections are the worst. Such as silverware, smart phones, cars, or other metal or chrome surfaces. He cannot physically look at a dimmed phone or TV in a darkened room. We have blocked out all our windows and covered everything that is reflective. He has developed severe dry eye as well which I know this affects photophobia. We are putting in Systane Ultra High Performance eye drops in every 6 minutes when he is in light. The doctors have been utterly useless. We have seen several opthamalogist and a neurologist but no one seems to help. We have gotten blood test and its proven not to be Sjogren's Disease. We are looking for an MRI now but seem to be lost about what to do next. We desperately need advise from people who have overcome this kind of severe photophobia and those who may still be living with it. What kind of advise, treatment, or suggestions do you have? Did you do any exercises that helped? Take any medication or supplements that improved the light sensitivity? How were you able to introduce contrast light to your eyes again? We feel completely alone and are in desperate need of support and answers. Thank you to any and all replies.
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