Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-22-2012, 03:45 PM #1
ruthven78 ruthven78 is offline
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Join Date: May 2012
Location: Spokane, WA
Posts: 1
10 yr Member
ruthven78 ruthven78 is offline
New Member
 
Join Date: May 2012
Location: Spokane, WA
Posts: 1
10 yr Member
Frown symptoms decades later? wrong diagnosis?

For the last 7 years Ive been trying to get a definite diagnosis oh my problems. One psychologist believes it to be post-concussion but there has been nothing definite. My GP is not interested in a diagnosis, only in treating the symptoms which irritates me to no end.

1st concussion - 1985 - age 5 - slipped on ice at school and hit the back of my head. Blacked out for unknown length of time, woke up at my desk, could hardly see, mostly black. Was scared and crying and was walked to nurses office, began throwing up in hall along the way, lost consciousness again for unknown length of time, woke up in hospital room, periodic vomiting but could see, was in observation for unknown length of time.

2nd concussion - between 1987-88 - age between 7-8 - hit by line drive baseball to the forehead (was playing 2nd base). knocked unconscious for unknown length of time. woke up crying on my hands and knees, mother picked me up, hospital said she didnt need to bring me in but to keep me under observation at home. vomiting at home.

3rd concussion - not entirely sure when, around 12-13 years of age, sledding accident. hit on left side and right side hit adjacent child's head. knocked out for unknown length of time, at least a couple minutes. walked home, went to bed, had vomiting.

never once had I ever had any imaging, no x-rays, nadda...course in today's age I would have probably undergone a CT scan or something.

So now I am 34 and experience all the symptoms of post-concussion. My GP thinks it is possibly PCS, one psychologist does, one neuropsych does not, cant remember what the other one thinks, . I've had two neuropsych evals which say mild ADD and anxiety....first one says general anxiety and 2nd one says performance anxiety. Each done by different psychologlists. I've had an MRI with volumetrics that was "unremarkable".

Nobody has been willing to send me for an EEG or PET, and I know SPECT is not covered by insurance.

The sad part is I do pretty well during the neuropsych testing but it is in a nice quite, stimulus free environment. Get me out in the "working world" and my performance drops considerably, but there is no way to test for that.

Ive tried Adderall, Adderall XR, Ritalin, Ritalin SR, Strattera, Provigil, Antivert, Vyvanse, Dexedrine, Intuniv, Wellbutrin, Wellbutrin XL, and a couple others I dont remember. Also tried Lexapro, Celexa, and Zoloft by themselves or in combination with the ADD meds.

None of them seemed to help. The ADD meds made it worse, made me hyper and then more irritable when they are wore off. The SSRI's just seemed to cause nothing but sexual dysfunction, felt no change after 2 months.

So now Im just on my metformin, nothing else.

Any thoughts, or inputs? Considering filing for SSDI since I cant hold down a job, keep forgetting to do stuff or complete tasks which gets me canned after awhile.
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