Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 06-04-2012, 09:54 AM #1
pcslife pcslife is offline
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I also have some weird dizziness. My body wants to move and if I have to stand in a grocery store or anywhere it makes it worse. Some places with poor lighting or certain noises makes it worse. I get that tilt feeling on certain carpet color and designs.

Also my dizziness worse when I am sitting than standing. Almost like the blood flow to the brain is restricted.

For me Xanax works to some extent. I am very cautious though since if I take regularly then I don't get that much benefit (of course). Also some days are worse and some days are ok. For some reason all that dizzy feeling subsides in the night and my fatigue/headaches also goes down. fter 10 pm and so now I try to do all my shopping etc., at that time. No doctor has a clue what is the reason. Alcohol helps too some times

This link explains a bit about dizziness. I do have something described in this article "patients may feel sick watching a movie, scanning the aisles while grocery shopping, even looking at stripes on a shirt"

I did vision therapy and didn't see much result besides the training prism lenses helps some what. Neurofeedback helped to relieve quite some symptoms but the effect didn't last longer. Cranio sacral therapy helps too. I still has to find some thing where to get persistent results.

http://bodyodd.msnbc.msn.com/_news/2...an-happen?lite
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Old 06-04-2012, 10:03 AM #2
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Originally Posted by pcslife View Post
I also have some weird dizziness. My body wants to move and if I have to stand in a grocery store or anywhere it makes it worse. Some places with poor lighting or certain noises makes it worse. I get that tilt feeling on certain carpet color and designs.

Also my dizziness worse when I am sitting than standing. Almost like the blood flow to the brain is restricted.
Alcohol helps too some times

This link explains a bit about dizziness. I do have something described in this article "patients may feel sick watching a movie, scanning the aisles while grocery shopping, even looking at stripes on a shirt"
Thank you for the link! I do have similar issues to you; its weird that dizziness is worse some times than others; i have also had the sitting thing being worse than standing. (although now it has switched up again).

I also seem to do better if I drive places, rather than be the passenger. (one would think motion sickness would apply at all times in the vehicle, but I am NOT complaining, lol)

Grocery shopping and stripes...argh. The WORST for me!

And I wish that I could drink. I miss alcohol. teehee Oh well!

Thanks again. PCS is so weird. (understatement of the century but I can't find a better word for it)
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD.

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Old 06-04-2012, 10:55 AM #3
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Type of dizziness we suffer from most doctors (including dizzy specialized doctors never heard of. They look at me blank.

For me another weird thing is when the car is moving I am ok. When I come to a stop I feel dizzy. I even took it for a spin in the highways and I did good. Once I took the exit come to a busy city road I felt worse. Noticed busy city streets, tall buildings I feel immediately. Now I find streets, roads where it is not too busy and my travelling time increased a lot Residential neighborhood is best for me.

Sometimes I feel I have "Mal de Debarquement Syndrome'. Very rarely happens after Head Injury and I fit the profile almost

http://en.wikipedia.org/wiki/Mal_de_debarquement
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Old 06-04-2012, 01:03 PM #4
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I get weird dizzy and see slants and angles in things that aren't really there too. I also see movement when it's not there too - like walls, floors and static things on webpages and stuff like that.

I've personally decided (no professional has even remotely backed this up as far as I can tell) that it might be caused by my vision and that vision therapy might help me. I mean, it makes sense, right? If the information from my two eyes aren't being received or processed by my brain correctly, maybe it's causing it - and I think the perception of it is what's making me dizzy.

I've kind of decided that vision therapy is going to fix a lot of weird impairments that I'm still dealing with.

I have my first appointment this Saturday and I'm looking forward to it. I'll be sure to post what it actually helps with.
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Old 06-05-2012, 09:26 AM #5
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Ethersdoll, have you considered you may have a Nystagmus? My PT tested me for this and I don't have it.

I feel as though my body is in motion when i'm still. But I don't feel like the world is spinning around me. I feel unsteady on my feet but I can walk. Usually brought on by too much head movement or physical movement or too much loud noise. Also worse when I lay down and close my eyes (which is why i have insomnia).

They don't think it's labyrinthitis because it usually goes away within a month if it's that.

I am going to ask my chiro and neurologist if they think it my be cervical vertigo. As the MRI did find a disk bulge in my cervical spine.
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Old 06-05-2012, 12:22 PM #6
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Quote:
Originally Posted by Valleybob View Post
Ethersdoll, have you considered you may have a Nystagmus? My PT tested me for this and I don't have it.

I feel as though my body is in motion when i'm still. But I don't feel like the world is spinning around me. I feel unsteady on my feet but I can walk. Usually brought on by too much head movement or physical movement or too much loud noise. Also worse when I lay down and close my eyes (which is why i have insomnia).

They don't think it's labyrinthitis because it usually goes away within a month if it's that.

I am going to ask my chiro and neurologist if they think it my be cervical vertigo. As the MRI did find a disk bulge in my cervical spine.
I have no idea what it is. If it's this Nystagmus, then I'm sure the eye specialists will figure that out while I'm in therapy.

The dizziness I've experienced has gotten better and better over time. Recently, I've had full days where I haven't been dizzy at all, so that gives me a lot of hope that whatever is causing it is healing. Then it will come back a little and I think that the vision therapy might help it.

All I can do, is try to look a the big picture and recognize that every problem I have because of this brain injury is still getting better.
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