Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-19-2012, 11:27 AM #1
SmilinEyesMs305 SmilinEyesMs305 is offline
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Default Finally! A way to explain my daily life!

Someone sent this to me yesterday and it has become an immediate way to explain to everyone what I deal with on an everyday basis due to my fatigue and dysfunction related to a brain injury 15 months ago!

Hopefully it helps someon else!

http://www.butyoudontlooksick.com/ar...e-miserandino/
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Eowyn (06-20-2012)

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Old 06-19-2012, 02:13 PM #2
Mark in Idaho Mark in Idaho is offline
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This is an excellent article.

It can be downloaded in PDF to read or print separately.

Those with difficulty following line to line will likely do best with the online layout that is only 88 characters wide. The PDF is 120 characters wide and much more difficult to follow line to line.

It is worth printing a copy so those who do not understand PCS can read it and get a clue.

It would be great if someone could adapt "Spoon Theory" to PCS.

GREAT FIND!
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"Be still and know that I am God" Psalm 46:10
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Old 06-20-2012, 01:47 AM #3
lattesrus lattesrus is offline
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Default PCS and the Marble Theory

PCS and the Marble Theory
You start the day with all of your marbles. Something happens that day, and you lose some of your marbles. You do not understand that your marbles are gone. People are not making sense; they are talking too loud and too fast. You do not know how many you have lost or when you may get them back. You know you still have some marbles because you used to have a bunch of marbles. However, you can’t remember where your marbles are located.
It feels like you have run a marathon when actually you have just folded a load of laundry. You rest and rest some more. You get up and are excited because you think you have found your marbles!

When you show people your marbles, you are actually showing them your toes. You do not know they are actually your toes. You think they are marbles. When you begin talking about your middle toe, you remember you need to make a phone call. You stop talking and walk away from the person who was listening to your fascinating talk about toes. You try and find the phone. When you find the phone, you can’t remember the phone number of who you need to call. You wonder why you have the phone in your hand and why you are not wearing shoes.

You become self-conscious, frustrated, and tired, so you decide to rest again.

You rest and rest. Finally, you need to get out and do something. So you make a plan to get a ride to the store to get some milk. At the store, you run into someone that you knew before you lost your marbles. They know you lost your marbles five months ago, but assume that by now you have found them. After all, you have had five months to find them. They quickly lose interest when you explain that no, you have only found some of your marbles.

You go home and rest. You decide to call a friend. As you are listening to your friend, you lose track of what they are saying. You are daydreaming about marbles. When it is your turn to talk, you tell them that you are going for a walk tomorrow, when you mean you just got back from one. After you say good-bye, you need to lie down.

The next day, you decide to email another friend. However, what you are thinking is not what appears on the screen. What you write does not match your thoughts. You become sad because when you used to have all of your marbles, this was easy.

You decide to share your thoughts with your new “online community.” It takes 45 minutes to figure out how to copy your document. You think you have posted it, but you really don’t know…
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Old 06-20-2012, 12:28 PM #4
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I like your "marble theory"! I got tired from reading it (not a bad comment, not to worry) so I know you must be exhausted from writing/coming up with it!!!

I love it! I am going to print it out.

Thanks
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD.

So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day.
2 Corinthians 4:16
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