[carly214]

A little over 2 years ago my husband (40) started experiencing severe confusion, short term memory loss, could not find the right words to say, extreme fatigue, "feeling like information that he needed to comprehend was in jello", he felt like each of his eyes were seeing on a different level or plane, double/blurry vision in one eye, loss of taste, numbness on one side of tongue, "strange" headache in one area of top part of his head, slurring of some speech, etc. Dr. at first thought he might be having stoke symptoms, but was ruled out by MRI and CT scans. He was sent for testing and was found to have a cognitive disorder. He since has had another MRI and CT (normal) and a sleep study (normal). His symptoms have slowly improved over the past 2 years...he doesn't sleep as much and has days where he just feels much better overall. But he has days where he will ask me to drive and I can just look in his eyes and tell he doesn't feel well. Symptoms seem to worsen if he over works himself. He has started and stopped seeing the Drs out of frustration of not finding a dx. I think at first we (my husband and I) just assumed it was a stroke that was not showing up on the scans. But the more research I do the more I am convinced that it is something like a TBI. He fell and hit his head at work about 20 years ago, and has had several blows to his head from tree limbs (he was a logger)....one was a severe blow to his left eye, one he does not remember the actual impact...but his hard hat and equipment where thrown. He has always worked alone...so there was not a witness. His symptoms did not happen directly after these incidents so we never thought to talk to the Dr about it. He is currently seeing our family Dr once a month and he has prescribed Abilify and Depakote. We are frustrated about the Drs visits...it just seems like they aren't trying to get to the bottom of the problems just treating the symptoms. We just don't know where to turn or what to do. My husband is growing more "down" and short tempered. I wonder how much is just frustration of everything he is going through (not being able to work, not feeling well, etc)...or how much is from TBI. We don't know what the next step is that we need to take...where to turn...or what to do. Thank you so much for reading this long post and I would appreciate ANY comments or information.