Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-03-2012, 02:08 AM #1
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
Default Possible TBI

A little over 2 years ago my husband (40) started experiencing severe confusion, short term memory loss, could not find the right words to say, extreme fatigue, "feeling like information that he needed to comprehend was in jello", he felt like each of his eyes were seeing on a different level or plane, double/blurry vision in one eye, loss of taste, numbness on one side of tongue, "strange" headache in one area of top part of his head, slurring of some speech, etc. Dr. at first thought he might be having stoke symptoms, but was ruled out by MRI and CT scans. He was sent for testing and was found to have a cognitive disorder. He since has had another MRI and CT (normal) and a sleep study (normal). His symptoms have slowly improved over the past 2 years...he doesn't sleep as much and has days where he just feels much better overall. But he has days where he will ask me to drive and I can just look in his eyes and tell he doesn't feel well. Symptoms seem to worsen if he over works himself. He has started and stopped seeing the Drs out of frustration of not finding a dx. I think at first we (my husband and I) just assumed it was a stroke that was not showing up on the scans. But the more research I do the more I am convinced that it is something like a TBI. He fell and hit his head at work about 20 years ago, and has had several blows to his head from tree limbs (he was a logger)....one was a severe blow to his left eye, one he does not remember the actual impact...but his hard hat and equipment where thrown. He has always worked alone...so there was not a witness. His symptoms did not happen directly after these incidents so we never thought to talk to the Dr about it. He is currently seeing our family Dr once a month and he has prescribed Abilify and Depakote. We are frustrated about the Drs visits...it just seems like they aren't trying to get to the bottom of the problems just treating the symptoms. We just don't know where to turn or what to do. My husband is growing more "down" and short tempered. I wonder how much is just frustration of everything he is going through (not being able to work, not feeling well, etc)...or how much is from TBI. We don't know what the next step is that we need to take...where to turn...or what to do. Thank you so much for reading this long post and I would appreciate ANY comments or information.
carly214 is offline   Reply With QuoteReply With Quote
Old 07-03-2012, 09:49 PM #2
roadrunner63 roadrunner63 is offline
Member
 
Join Date: May 2010
Location: Central Kentucky
Posts: 241
10 yr Member
roadrunner63 roadrunner63 is offline
Member
 
Join Date: May 2010
Location: Central Kentucky
Posts: 241
10 yr Member
Default

I noticed there were no comments to your post. I'm sure it's not because no one wants to help. I couldn't read through it because it was such too long. Perhaps you could make it into short paragraphs to make it more readable for those of us with TBI.
__________________
My life has been interrupted by PCS (Post Concussion Syndrome) aka TBI (Traumatic Brain Injury) due to a car wreck April 13, 2010. It can go back to normal any day now!
roadrunner63 is offline   Reply With QuoteReply With Quote
Old 07-03-2012, 11:38 PM #3
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
Default

Quote:
Originally Posted by roadrunner63 View Post
I noticed there were no comments to your post. I'm sure it's not because no one wants to help. I couldn't read through it because it was such too long. Perhaps you could make it into short paragraphs to make it more readable for those of us with TBI.
A little over 2 years ago my husband (40) started experiencing severe confusion, short term memory loss, could not find the right words to say, extreme fatigue, "feeling like information that he needed to comprehend was in jello", he felt like each of his eyes were seeing on a different level or plane, double/blurry vision in one eye, loss of taste, numbness on one side of tongue, "strange" headache in one area of top part of his head, slurring of some speech, etc.

Dr. at first thought he might be having stoke symptoms, but was ruled out by MRI and CT scans. He was sent for testing and was found to have a cognitive disorder. He since has had another MRI and CT (normal) and a sleep study (normal).

His symptoms have slowly improved over the past 2 years...he doesn't sleep as much and has days where he just feels much better overall. But he has days where he will ask me to drive and I can just look in his eyes and tell he doesn't feel well. Symptoms seem to worsen if he over works himself. He has started and stopped seeing the Drs out of frustration of not finding a dx. I think at first we (my husband and I) just assumed it was a stroke that was not showing up on the scans. But the more research I do the more I am convinced that it is something like a TBI. He fell and hit his head at work about 20 years ago, and has had several blows to his head from tree limbs (he was a logger)....one was a severe blow to his left eye, one he does not remember the actual impact...but his hard hat and equipment where thrown. He has always worked alone...so there was not a witness. His symptoms did not happen directly after these incidents so we never thought to talk to the Dr about it.

He is currently seeing our family Dr once a month and he has prescribed Abilify and Depakote. We are frustrated about the Drs visits...it just seems like they aren't trying to get to the bottom of the problems just treating the symptoms. We just don't know where to turn or what to do. My husband is growing more "down" and short tempered. I wonder how much is just frustration of everything he is going through (not being able to work, not feeling well, etc)...or how much is from TBI.

We don't know what the next step is that we need to take...where to turn...or what to do. Thank you so much for reading this long post and I would appreciate ANY comments or information.
carly214 is offline   Reply With QuoteReply With Quote
Old 07-03-2012, 11:59 PM #4
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,700
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,700
15 yr Member
Default

Have you considered upper cervical chiropractic?
With any head hit or such , it makes sense to me to get the cervical spine evaluated for misalignment. Generally most MDs don't even suggest or consider this.

Some info sites
www.upcspine.com
www.nucca.com
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-04-2012, 12:13 AM #5
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
carly214 carly214 is offline
New Member
 
Join Date: Jul 2012
Posts: 5
10 yr Member
Default

[QUOTE=Jo*mar;894132]Have you considered upper cervical chiropractic?
With any head hit or such , it makes sense to me to get the cervical spine evaluated for misalignment. Generally most MDs don't even suggest or consider this.



He has been seeing a chiropractor for his back and neck 2X's a week for a few months.
carly214 is offline   Reply With QuoteReply With Quote
Old 07-04-2012, 12:18 AM #6
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

carly214,

Welcome to NeuroTalk. Sorry to hear about your husband's struggles. Thanks for reposting in paragraphs. Many of us struggle to follow from line to line when the paragraph is more than 5 lines or so. Unfortunately, we are not allowed to repost others posts with the paragraph spacing.

It sounds like your husband is experiencing Multiple Impact/Concussion Syndrome. It tends to become more evident as we reach about 40 years old.

Has he had any other traumas or illnesses in the past few years? A high fever can cause concussion symptoms. Getting badly drunk can also cause problems.

He likely needs to get started on a brain health nutrition regimen with a low stress lifestyle.

The basic regimen starts with B-12 (500 to 1000 mcgs per day) a B-50 complex, a high potency multi-vitamin like GNC Megamen, D3, Omega's, magnesium, calcium, all of the anti-oxidants and some others that I forget. My memory is stuck tonight. Someone will probably add to this list.

Avoid caffeine, alcohol, MSG and artificial sweeteners. A single serving per day of caffeine and alcohol is considered OK by some.

There are lots of work-arounds and accommodations to help tolerate the symptoms. More about that later.

I am recovering from a week of visiting family in California so I know it will take me a few days to get my brain going again. I slept most of today after the long drive home yesterday. And, I didn't even drive. My wife has to do the driving.

Let us know the specific struggles he has. There are lots of good and experienced people here to help.

My best to you.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:31 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.