Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-09-2012, 08:48 PM #1
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Default It Won't Stop!!!!

I am going on 3 1/2 years, only seven months since last concussion though, and I just can't feel good. I feel trapped, like you do when someone throws a blanket over your head and you can't breath and you start to panic and can't find the way out...That is how I feel!!!! I have had a minimum of 5 concussions (the ones the docs would count) in the past 3.5 years, and now I am a 23 year old whose greatest pleasure is sitting in a dark medium temperature room listening to a book on tape. Lights, hot or cold temperatures, hot or cold breezes ( I have started to sleep with a hat on because otherwise I wake up with a really bad headache)...
What I think is the real problem is that my PCS started migraines, so now I have both. It is not just migraines without the PCS because every time I get another concussion, the migraines get way worse, and then they get a little better as time goes on and then I get another concussion.
I cannot bring myself to commit to a job, that is more than part time because I cannot bear to think of losing that job because I miss to many days, or being unable to stay home because I feel like I will lose my job.
If I mention this to my family, it becomes an argument of "Oh it must be caused by that something you ate last night for dinner, or maybe it is that you need more vitamins or maybe more sleep or more water or less sugar or less coffee or more coffee or or or or or....It can never be that I had a concussion and am still suffering the effects. NO! Nor could it be that I have chronic migraines caused by the repeated concussions. NO! Neither could it be that no matter what I do it won't stop. NO! Obviously I just haven't tried hard enough, I just haven't....
Anyways, sorry to rant, it has been a long time since I have been on here, and the emotional burden of loneliness is overwhelming. Funny that surrounded by the people I love the most, I am the most lonely I have ever been.
Despite my depressed mood, I know that I am merely in a tunnel that will someday end (even if it isn't until I die, hopefully many years from now). I wish you all a speedy journey through your tunnels. Thank you for listening, and don't worry, I still love life!
Live Long and Prosper!
In Christ,
Margarite
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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Old 10-09-2012, 11:16 PM #2
Mark in Idaho Mark in Idaho is offline
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Have you applied for Social Security Disability Income? It will at least be a way to try to move forward. The examination process can be helpful.

My best to you.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10
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Old 10-10-2012, 08:17 AM #3
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I am glad you were able to post to us. Thinking of you...
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD.

So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day.
2 Corinthians 4:16
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