Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-12-2012, 05:16 PM #11
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Ah horses, they can be heaven or ?
I have a 20 yr old nutty one that I'm still 'training" LOL
A bit of a schizo ...but she's pretty to look out the window at...


Some of the weight gain is probably related to the stopping smoking, the body trying to re balance itself. Plus a bit less activity than before if you were riding & active every day.

Try not to stress on the weight too much , eat healthy and take the supplements that you can afford.

Maybe Mark can put the most important ones at the top of the list.
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Old 10-12-2012, 06:24 PM #12
Mark in Idaho Mark in Idaho is offline
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Patty,

Go ahead and apply for Calif State Disability Insurance. You have been paying into it since you started working. Your account is likely full funded.

The injured brain needs to do two things, First, it needs to cleanse itself of the toxic remnants of the injury. Second, it needs to regain strength (heal) in the damaged areas. B vitamins are the most important. I suggest:

B-12 (500 to 1000 mcgs daily)
a B-50 complex, for all the other B's so you get a good balance of B's
a high potency multi-vitamin like GNC Mega Women. Centrum and One a Day are too weak.
Some extra anti-oxidants, Vit C and Vit E
D3, plenty of this, 1000 to 5000 iu's
Omega 3, 6, 9 fish oil
Calcium with magnesium

I also have added
Curcumin (pricy but worth it) 950 mgs daily This is a Turmeric extract
DHEA, 25 mgs, a hormone that helps the body balance the other hormones
a Costco High Energy multipack (7 pieces) in place of the multi-vitamin


good meat protein for the amino acids, pork is the best or for vegetarians,
a good amino acid supplement including essential fatty acid and BCAA (broken chain amino acid). Vegetarian diets are usually deficient in these so they need supplements. Spirulina is suggested as comprehensive enough.
avoid trans fats.
No caffeine, alcohol, MSG, artificial sweeteners, high fructose corn sweetener, and only moderate natural sugar.

My regimen based on the above costs about $1.30 to $1.50 per day including some non-brain supplements (arthritis).

I was started on the brain basics by a psychiatrist 30 years ago as a way to treat PCS depression and avoid medication. It was very effective. I am tempted to replace my paroxetine with 5-HTP but have not been able to find any conversion factors.

The B-12 and folic acid in the B-50 is important for repair of the myelin sheath that protects axon and dendrite fibers. The rest are for improving brain metabolism.
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Old 10-13-2012, 05:38 PM #13
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Mark, I don't think I will qualify for state disability. I have been self employed in the mortgage business for the past 28 years. I think I have only paid into social security disability. If I could get that disability insurance, I would love to, but I think the website said I have to wait a year from the onset.

Thank you for the list of vitamins. I will print them up and take it to CVS with me to pick some up.

Yes Jomar, horses can be quirky! What kind of horse do you have? Do you still ride? We have come to the conclusion that the reason the horse that I fell from spooked that night is because I was riding him a little later in the day than normal (7:00 pm), and since he is almost blind in the left eye (he's around 27 years old), the shadows looked different at that time of day when I leaned down to tighten the girth. So he flew backwards and fell down. Normally, this guy is the calmest, quiet lesson horse you could find. Who would have thought!
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Old 10-14-2012, 05:21 PM #14
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Hi Patty and Mark! I hope you had a wonderful birthday, Patty. Mark, I would be very interested to know what supplements you or any one else recommends. I am currently taking Omega-3, a B complete and multi-vitamin. Any others you are privy to that would be of assistance?

Thanks,
Carrie

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Originally Posted by Mark in Idaho View Post
Patty,

Happy birthday.


Welcome to NeuroTalk. Sorry to hear of the extent of your injury. Weight gain is not uncommon as we tend to be less active and sometimes need meds that cause weight gain. I doubt the increase in thyroid meds would make much of a change in only one week. Give it time.

Did your bleed appear to seal on its own? That should be a good sign.

Your symptoms sound like classic concussion symptoms. No way to tell if they are just from the bleed or the concussion too. It does not make much difference because you treat the symptoms, not the cause, except to keep the bleed from bleeding again.

There is nothing a neuro can do to test for concussion damage. Your neuro's only concern should be your bleed.

A head injury can mess up hormones and such. Many of us are into nutritional supplements to help our brains purge the toxins and strengthen. B-12 is the most important.

I can give you the whole list if you are interested. Avoid caffeine, alcohol, MSG and artificial sweeteners. Good meat protein is good for the amino acids and especially the essential fatty acids needed by your brain. Pork is the best for all of the amino acids needed.

Please feel free to post your needs and questions. I appreciate how you formatted your post with plenty of double spaces. It makes it so much easier to read when paragraphs are limited to 5 lines or so.

My best to you.
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Old 10-14-2012, 06:35 PM #15
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carrie,

Scroll up a few posts. You will see the whole supplement regimen. You saw the earlier post with just generalities.
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Old 10-15-2012, 03:43 PM #16
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Today my dr. did the Epley manuever on me for dizziness/vertigo symptoms. A dr doesn't have to do it, there are plenty of videos on you tube explaining it. I am sorry that you are experiencing such distress. Head injuries are so individual, but one thing is for sure severe anxiety/worry will only hold up any progress. I have found this out the hard way. Hang in there!

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Originally Posted by Patty1065 View Post
Hi,

This is my 1st post. I have been lurking around for the past few weeks and finally thought I'd introduce myself.

My name is Patty and I was in a horseback riding accident on 8/9/2012. I have ridden horses for the past 38 years and have been teaching for the past 3 years and this is my first accident where I hit my head. I had just mounted my horse and within 30 seconds he spooked, started backing up quickly, he tripped and we both went down. I was wearing a helmet. I only remember him starting to back up, I do not remember falling. I remember bits and pieces in the the emergency room.

They did a CT and MRI and I had a subarachnoid hemorrhage. I was in the hospital for 4 days and then released.

My symptoms are:

brain fog
vertigo
balance problems
concentration problems
speech problems (finding words etc)
anger
anxiety
slight vision changes (colors changing,text size changing)
tingling
constant hand & feet movement - this happens all the time without my brain telling my fingers or toes to move, I hope this makes sense.

and the last two (that I remember at this time) are the most disturbing to me. I have gained about 15 lbs. I have been watching what I eat (except for today since it is my bday) and have been exercising daily, long walks and eliptical machine. I know that exercising causes my symptoms to be worse, but if I don't exercise then I get extremely anxious and I feel like I HAVE to exercise because I don't want to gain anymore weight. Oh, also, I quit smoking cigarettes the day of the accident.

The last symptom is not necessarily bad for me, but it is not normal. I used to get bad migraines before the accident. After the accident I noticed that I do not feel pain the same way, if at all. For the first few weeks I knew I had headaches by feeling the pulsating, but did not have any pain.

I also used to have bad neck and shoulder pain almost every day(which caused my headaches). That is totally gone. So other than the fogginess and dizziness that can come from walking too long, I do not feel muscle fatigue and I feel like I can just walk and walk and walk because my legs are almost numb like. I know this is not good for my symptoms. How concerned should I be about this lack of pain? Does anybody else have this problem?

Regarding the weight gain, I believe this is from quitting smoking and maybe there was some pituitary gland damage? I had hypothyroidism and on meds before the accident. My internist raised my meds just last week, I think just to appease me, but still no weight loss. Any ideas?

I have not driven a car since the accident. I have not been back to a Neurologist since the hospital, My internist doesn't think it is necessary, but I am now looking into finding one to get tested. Not sure what tests they are going to do at this stage, but I feel like I need answers.

Lastly, I know that a subarachnoid hemorrhage is pretty bad. Other than the brain bleeding, (mine stopped bleeding while still in the hospital) it seems like all the symptoms are the same as pcs. Am I missing something? Why do the drs say these are so much worse? Are my symptoms more apt to be permanent? Do I have a higher risk of another bleed? Any info would be helpful? My mother had a brain aneurysm at my exact age (46) and is now paralyzed and I guess I am a little freaked out and nervous for my future.

Sorry this is so long. I tried to put this in shorter paragraphs so it would be easier to read. I also have a problem with long paragraphs.

Thank you,

Patty
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Old 10-18-2012, 11:17 PM #17
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Just a note to get this thread of page 3.
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Old 10-19-2012, 01:18 PM #18
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Hi Patty,
Just wanted to say hi to another fellow equestrian with a horse related brain injury.

I fell off right on my head in Feb 2012 and have not been back in the saddle yet. I'm getting very antsy. Asked my rehab doc about it again today and he reminded me that until I can walk unaided (cane) and am stable on my own feet that he feels its too risky for me to ride.

I feel I'd be more stable sitting on a horse than walking on my own feet, but for now I will keep trying to be patient.

I was putting trail miles on a slightly more than green broke horse that was having a melt down. I was fine for 45 minutes of her meltdown, leap, buck, leap, buck... but the thing that unseated me was ducking under a tree branch during the leap, buck, leap, buck! Then combined with one foot hung up in the stirrup and my hands caught up in the reins, I came down head first, with nothing but my helmet to break my fall. A real combination of freak circumstances.

Of course, I remember NONE of it... just pieced it back together, my husband was riding behind me and a couple of friends were out with me. Darn horses!

Anyhow, wish you the best and I hope you recover soon and get back into the saddle.
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Old 10-19-2012, 01:23 PM #19
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Hello all, I don't have PCS but other spinal problems. Down here they are taking horses into the water for disabled people. You mount in the water, and if you fall, nothing to get hurt. I did this earlier in the year. If you can do it, I bet the doc. will OK it. You only walk, and swim. Good excersice and a way to get back in the saddle. I wish all of you the best. ginnie
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Old 10-19-2012, 05:03 PM #20
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Hi Starr! I am sorry to hear about your fall! I know what you mean about being antsy to get back on and feel like you are better on a horse than off a horse right now. I feel the same way. I am still not driving due to vertigo, but I kind of feel that even if the horse spooked my " muscle memory" would take over. Since I can't drive yet, I need someone to take me to the barn which is about 13 miles from here. I have only been back once.

I was talking to my friend who I work with teaching riding and she was telling me that when she told one of our students (who is an orthopedic surgeon) that I was still not driving. Her response was " I had a concussion and was dizzy for a year. Just tell her to lie to her dr. about being dizzy and she'll be able to drive). They just don't get it! I could drive, but I don't want to get in an accident! It is very hard when people don't understand!

Hi Ginny - I have never heard of that kind of therapy for people. Sounds very interesting.
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