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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Anyone else 1yr + with PCS? (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/178554-else-1yr-pcs.html)

roadrunner63 10-28-2012 02:12 PM

I am 2 1/2 years into this. Definitely better than when it started but still a long way from what I was before.

Concussion 10-28-2012 04:12 PM

Last, and "The Injury" - June 2010.

Kept working, keeping up within the rules for FMLA, etc. until April 2012, and things just got ahead of me, and I could no longer keep up, with every growing disconcertment.

Out of work since April 2012.

Ongoing problems.

hillie1971 10-28-2012 04:14 PM

Roadrunner63, right there with you on that! Still waiting to go back to normal too. It's been almost a year for me. Symptoms come and go but there is no rhyme or reason when they come and I think I may just lose my mind if this goes on for much longer :(

hillie1971 10-28-2012 05:00 PM

That metallic taste....does anyone know what I am talking about? I mean, after the accident, my taste was off for a few months, and then went back to normal. And it was only with certain foods. When I finally drank my first beer after the accident it tasted metallic. Very strange. Thought it was that particular beer so tried a different one. Same thing. Now, almost 11 months later, the metallic taste comes and goes but it's only with beer. It's very strange.

And I'm still not sure if I will be going to Disney in January. I don't want to waste the money if I can't go on any rides, not to mention paying for the plane ticket. I tend to get nauseous driving in a circle in the car. I always was prone to motion sickness but since my accident it is 10 times worse.
:Sigh:

pcslife 10-28-2012 05:30 PM

hillie1971 : I am 3 and a half years. I don't want to spook you but hey it is halloween time. :)

Yes symptoms keep changing on a daily basis and some times hourly basis :) Doesn't matter if I overdo/underdo or do nothing. I just gave up on finding triggers and has some workarounds.

I had metallic taste but that was because I had olfactory damage (both smell and taste) and did have that metallic taste for some time. It improved a lot though after 2 years. I remember all ENT specialists asking whether I had metallic taste on back of the throat. May be you can check up with them. I assume you have no smell disorder.

xanadu00 10-28-2012 09:40 PM

Hillie, have you tried vestibular rehabilitation? Some physical and occupational therapists offer it, and it does have a decent track record in helping people with dizziness (it has helped me some). If you do get it, be sure to check into your insurance coverage; it is exorbitantly expensive and my insurance co. twice tried to deny my treatment, without justification. I appealed it twice and got it covered.

I'm at 20 months since my injury, 14 and a half months since a very bad relapse, and 10 months since a second relapse. I've made gradual improvement over the past 10 months, but I have a VERY long way to go.


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