Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 11-08-2012, 07:40 PM #1
louann louann is offline
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louann louann is offline
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Quote:
Originally Posted by Trecker-Wielgos View Post
My son asked if I could let you know that he has probably blacked out some times, and probably does not know what he is saying or what people are saying to him. My son asked me to tell you that he was like that, but that he did not understand what was going on then and that if you can get him to a cabin in the woods or just away from all people and any problems that overwork his brain so that his brain can heal. He asked me to let you know that you can not help him by being around him or any one else either. Just that his only hope would be quiet and privacy.
If he was able to be on his own that might help, he still has problems doing everything on his own. He has problems walking completely on his own,he has incontinence problems I have to help him getting changed and with bathing. He is having to live with me and mostly his brother comes by a couple times a day and that is about all the people. He has never liked being by his self before the accident. He calls people like they are here when they are not,I guess some are his friends, some I know and some I don't. Then he gets mad when they don't answer or if I say they are not here and cusses me out, calls me very vulgar names. He gets upset very easily about everything if I ask him what he said he gets upset, if I don't answer the way he thinks I should he gets mad. He even sometimes cusses the people on the TV. He does not remember where the bathroom is or where the kitchen is. He wakes up about 4 in the morning and will lay there talking and hollowing at me and other people. He just needs more help than I can give and I am trying available sources to get him help. Thanks for the advice.
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Old 11-08-2012, 10:44 PM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Trecker,

Welcome to NeuroTalk. If sounds like you have a son who is struggling with PCS. You have found a good place for support. Please feel free to introduce yourself and tell us how we can help you. There are years and decades of experience with PCS here.

My best to you.

Louann,

Sounds like your son qualifies seriously for state services. Please use the leverage you have to get him the care he needs. The responsibilities you are trying to take on are far more than you can handle. It sounds like the same tasks my mother had with my dad, except he was not so abusive during his last few years.

We are here to support you.
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"Be still and know that I am God" Psalm 46:10
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"Thanks for this!" says:
louann (11-10-2012)
Old 11-10-2012, 01:12 PM #3
louann louann is offline
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louann louann is offline
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Originally Posted by Mark in Idaho View Post
Trecker,

Welcome to NeuroTalk. If sounds like you have a son who is struggling with PCS. You have found a good place for support. Please feel free to introduce yourself and tell us how we can help you. There are years and decades of experience with PCS here.

My best to you.

Louann,

Sounds like your son qualifies seriously for state services. Please use the leverage you have to get him the care he needs. The responsibilities you are trying to take on are far more than you can handle. It sounds like the same tasks my mother had with my dad, except he was not so abusive during his last few years.

We are here to support you.

I have went online and found a list and called about 24 facilities and they all say they will put him on their waiting list which seems to be a long one. He has been approved for a waiver from South Carolina Long Term Care which will give a little help with supplies, meals, and some adult day care. This may give me a little relief but as I understand it they just keep them a few hours a day and have some activities for them. This does not help him a whole lot. I think I will call adult protection as you suggested, that is about the last resort I have. I have talked to several social workers one from the long term care and the Head and spinal cord injuries of South Carolina (HASCI). I have told them both I want placement and not just home care. It is like you said earlier they do try to get you to keep them at home. They say they can not place him but all they can do is evaluate him that he needs a certain level of care which they have done as needing intermediate care. I still have to find a place that will accept him. In the mean time I can get the little help I mentioned above. I am also going to call his primary care Dr. he had taken him off of respidone that they had him on in the hospital and put him on an excelon patch which they use on people with Alzheimer to improve short term memory. It does not seem to help I have used it a month, I am thinking he did better with the respidone. Do you know anything about these two medicines?
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