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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-01-2012, 08:47 PM | #1 | ||
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Hi all,
Background: Sept. 30th I Hit my head cleaning out my car on the frame of the car door- coming out of the car- did not give myself enough clearance. Saw stars but did not black out. Was fine for several hours, but before I went to bed had a horrible headache. When I woke up in the morning, I ran the gamet of concussion symptoms for several weeks- headache, blurred vision, forgetfulness, word finding difficulty, depression/anxiety, dizziness, unsteady gait, confusion, tinnitus, and sensitivity to light. I began to get noticably better. I only have a few symptoms sticking around 2 months later- word finding, short term memory issues, anxiety, sensitivity to flourescent light and overstimulation (I am still getting terrible headaches and experience overload where I just can't take anymore in- I stare off into space and cannot concentrate). I am a bit frustrated with my team of Dr.s. At my last Osteopathy appt. my Dr. basically told me that the symptoms I am experiencing do not add up with the injury I experienced...I don't understand why they haven't sent me for a neuro consult sooner...The anxiety really is the toughest part. I suffered from Generalized Anxiety D/O for several years- but had it totally under control pre-concussion..it is now worse than it has ever been- my social anxiety is especially through the roof. Anyone have similar experiences? What do I need to be sure to communicate to the Neuro? Any insight is greatly appreciated. Thanks! |
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12-01-2012, 09:16 PM | #2 | ||
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Every visit I had I would bring my health journal. The night before I would review the journal and record a list of all my symptoms. In retrospect I feel I should have made a record of what I was doing to recover as well. If it were me I would start with what you can do, try to communicate positively. I think the neurologists I saw did not like it when I would start every visit with a list of deficits.
He even recorded in the record that I was focused only on the deficits. I know it is difficult to communicate well when you are suffering. There have been many posts where the visits with a neurologist goes poorly. After 4 1/2 months of visits I was able to communicate better. The difference was I was not suffering from the symptoms as badly. Even the Dr noticed his only comment was this was the best visit so far. I really feel that he did and does not understand how hard it is to frame your thoughts and feelings when everything in your head is a jumble. When you are not yourself. It is as if there is the expectation that you still have full control of your intellect, memory, emotions and reasoning abilities. So if you can indicate you are trying to recover and voice such first before talking about any symptoms will give the Dr more balanced view on what is going on with you. Once you have given him your symptoms make sure he clearly address's each and every one. Also take someone with you that you trust. You need an advocate to support you and help with any memory deficits you may be dealing with. i hope this helps and best of luck.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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